Evaluation of Cancer Patient Education and Services

Gauthier-Frohlick, Denise; Boyko, Susan; Conlon, Michael; Damore-Petingola, Sheila; Lightfoot, Nancy; Mackenzie, T C; Mayer, Carole; Reed, Elaine; Steggles, Shawn

doi:10.1007/s13187-009-0008-y

Cited by 7 publications

(6 citation statements)

References 7 publications

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“…A patient binder has been introduced in many breast units to provide patients with clear and easy to understand information, as well as to organize and manage appointments, treatment schedules, medical documents, and contact details. It has been proven that such a tool could help to reduce psychological distress and improve adaptation to cancer [4,5]. In the current technological era, the old concept of the patient binder has been improved and modernized.…”

Section: Introductionmentioning

confidence: 99%

A Breast Cancer Smartphone App to Navigate the Breast Cancer Journey: Mixed Methods Study

Petrocchi¹,

Filipponi²,

Montagna³

et al. 2021

JMIR Form Res

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Background Several mobile apps have been designed for patients with a diagnosis of cancer. Unfortunately, despite the promising potential and impressive spread, their effectiveness often remains unclear. Most mobile apps are developed without any medical professional involvement and quality evidence-based assessment. Furthermore, they are often implemented in clinical care before any research is performed to confirm usability, appreciation, and clinical benefits for patients. Objective We aimed to develop a new smartphone app (Centro di Senologia della Svizzera Italiana [CSSI]) specifically designed by breast care specialists and patients together to help breast cancer patients better understand and organize their journey through the diagnosis and treatment of cancer. We describe the development of the app and present assessments to evaluate its feasibility, usefulness, and capability to improve patient empowerment. Methods A mixed method study with brief longitudinal quantitative data collection and subsequent qualitative semistructured interviews was designed. Twenty breast cancer patients participated in the study (mean age 51 years, SD 10 years). The usability of the app, the user experience, and empowerment were measured after 1 month. The semistructured interviews measured the utility of the app and the necessary improvements. Results The app received good responses from the patients in terms of positive perception of the purpose of the app (7/20, 35%), organizing the cure path and being aware of the steps in cancer management (5/20, 25%), facilitating doctor-patient communication (4/20, 20%), and having detailed information about the resources offered by the hospital (2/20, 10%). Correlation and regression analyses showed that user experience increased the level of empowerment of patients (B=0.31, 95% CI 0.22-0.69; P=.009). The interviews suggested the need to constantly keep the app updated and to synchronize it with the hospital’s electronic agenda, and carefully selecting the best time to offer the tool to final users was considered crucial. Conclusions Despite the very small number of participants in this study, the findings demonstrate the potential of the app and support a fully powered trial to evaluate the empowering effect of the mobile health app. More data will be gathered with an improved version of the app in the second phase involving a larger study sample.

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Section: Introductionmentioning

confidence: 99%

A Breast Cancer Smartphone App to Navigate the Breast Cancer Journey: Mixed Methods Study

Petrocchi¹,

Filipponi²,

Montagna³

et al. 2021

JMIR Form Res

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“…The availability of language services varies but is mandated in all federally funded hospitals and is known to improve patient–provider communication for limited English-proficient patients ( 20 ). In addition, evidence suggests that offering patient education improves communication by giving patients the opportunity to play a more active role in their care team decisions ( 21 ). Patient education centers aim to enhance clinical communication by defining “written goals and objectives for the patient and family related to therapeutic regimens, medical procedures, and self-care” ( 14 ).…”

Section: Methodsmentioning

confidence: 99%

Associations Between Nonclinical Services and Patient-Experience Outcomes in US Acute Care Hospitals

Schiaffino

Suzuki

et al. 2019

Journal of Patient Experience

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Background: Patient experience is an important measure of hospital quality and performance. Since the passage of the Affordable Care Act, patient experiences with their care encounters are embedded into the framework of payment incentives. However, drivers of patient experience in the context of the supportive, nonclinical, services that relate to patient care have not been as well understood. Aims: To assess the role of organizational factors on patient experience. Methods: This crosssectional analysis integrates hospital patient-experience scores from Hospital Consumer Assessment of Healthcare Providers and Systems, and Centers for Medicaid and Medicare Service data from 2013 to 2015 (N ¼ 3392). Based on hospitals with "top-box" responses, the aggregate proportion of hospital patients responding "always" on a Likert scale represented a top-box hospital. Domains were split at the mean for analysis (above average ¼ 1). Multivariable logistic regression models for each domain were analyzed against hospital factors and services, including offering a patient education center, patientenabling services, and language services. Results: Most hospitals reported a full-time hospitalist (64.4%) and a patient education center (60.4%), while fewer provided enabling/support services (33.7%). In multivariable models, small and medium hospitals performed better compared to the largest hospitals (300þ beds; P < .0001). Structurally, medium and small hospitals reported significantly greater odds of top-box patient-experience versus large hospitals. Across all domains, only hospitals with patient education centers returned better performance (adjusted odds ratio: 1.27-1.64; P ¼ .0002-.0166). Discussion/Conclusion: Patient education centers provide relevant information at the point of service and may improve overall patient experience of care. Given the growing reliance on accountable care delivery models, opportunities to partner with community health education partners may be profitable.

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“…Taip pat pacientų švietimas gali būti laikomas įrankiu, užtikrinančiu sklandesnį ligos gydymo procesą, nes pacientai, turintys jiems reikalingos ir patikimos informacijos, dažniau laikosi gydymo rekomendacijų. Kompetentingos informacijos turėjimas įgalina pacientus aktyviau dalyvauti savo ligos gydyme, pagerina komunikaciją ir bendradarbiavimą su specialistais [18,24].…”

Section: Edukacinė Veikla Kaip Integralios Sveikatos Priežiūros Sąlyga: Teorinės įžValgos Ir Praktinis Pritaikomumasunclassified

Edukacinė Veikla Kaip Integralios Sveikatos Priežiūros Sąlyga: Teorinės Įžvalgos Ir Praktinis Pritaikomumas

Česnavičius¹,

Savickaitė²,

Remeikienė³

et al. 2019

Public Health

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Tyrimo tikslas - aptarti teorinius ir praktinius pacientų edukacijos aspektus kaip integralią krūties vėžiu sergančių pacienčių sveikatos priežiūros sąlygą. Mokslinės literatūros studijos atskleidė, kad pacientų, sergančių navikinėmis ligomis, edukacija yra labai aktuali problema visuomenėje. Onkologiniams ligoniams būdingų fizinių, socialinių ir psichologinių problemų kontekste informacijos poreikis apie ligą ir pagalbos galimybes yra vienas iš svarbiausių. Ypatingas dėmesys turėtų būti skiriamas krūties vėžiu sergančioms moterims, kadangi tai dažniausiai diagnozuojama jų onkologinė liga, ir moterims kyla didesnė rizika patirti stiprų nerimą ar netgi susirgti depresija ligos gydymo laikotarpiu. Tuo tarpu mokslinių tyrimų rezultatai parodė, kad edukacinė veikla teikia įvairialypę naudą pirmiausia patiems pacientams bei jį gydantiems specialistams. Edukacinės intervencijos paneigia klaidingus įsitikinimus, „stigmas“, kuriuos pacientai neretai sužino naršydami internete, paskatina aktyviau dalyvauti savo ligos gydyme, gerina pacientų gyvenimo kokybę ir prisideda prie sklandesnių ligos gydymo procesų užtikrinimo.

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Evaluation of Cancer Patient Education and Services

Cited by 7 publications

References 7 publications

A Breast Cancer Smartphone App to Navigate the Breast Cancer Journey: Mixed Methods Study

A Breast Cancer Smartphone App to Navigate the Breast Cancer Journey: Mixed Methods Study

Associations Between Nonclinical Services and Patient-Experience Outcomes in US Acute Care Hospitals

Edukacinė Veikla Kaip Integralios Sveikatos Priežiūros Sąlyga: Teorinės Įžvalgos Ir Praktinis Pritaikomumas

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