Evaluation of Autism‐Related Health Information on the Web

Grant, Nicole; Rodger, Sylvia; Hoffmann, Tammy

doi:10.1111/jar.12127

Cited by 38 publications

(29 citation statements)

References 21 publications

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“…Decision making was reportedly a complex process that required balancing a range of aspects/factors such as time requirements, cost, and location of services, (Grant et al, 2015) as was also found by others , Carlon, 2014. Parents reported that they valued highly the opinion of therapists and other practitioners on whose opinion they relied (Grant et al, 2014;.…”

Section: Chapter 7 -Discussion and Conclusionmentioning

confidence: 99%

“…In the present study, Autism Advisors proposed that autism information is best provided in a range of formats, which is supported by what is understood of parent preferences, and their use of information sources (Batchelor & Ohya, 2009;Grant et al, 2015;Mackintosh et al 2005;. It is important therefore, that any educational resources or information aimed at assisting parents with decision making about ASD interventions, be made available in a variety of formats.…”

Section: Discussionmentioning

confidence: 99%

“…Study 2 (Grant et al, 2014(Grant et al, , 2015 found that while there were some high quality Australian websites, such as (www.raisingchildren.net), many of the websites contained information that was inaccurate, out-dated and/or potentially misleading. Only six out of the 20 websites evaluated cited research evidence that supported the claims made about intervention effectiveness.…”

Section: Chapter 7 -Discussion and Conclusionmentioning

confidence: 99%

“…Practitioners are a trusted information source (Grant et al 2015), but are challenged to keep up to date with the research evidence in order to adhere to EBP principles (Glasziou & Haynes, 2005). Another challenge of information provision is that ASD is a heterogeneous condition and characteristics are experienced by individuals in vastly different ways at different stages of their lives.…”

Section: Challenges Of Providing Education To Parents Of Children Witmentioning

confidence: 99%

“…However, parents tend to explore information in a range of formats (Grant et al, 2015) and future research is required to determine the feasibility and effectiveness of providing the decision aid in a different format (for example in printed form) and the optimal timing of providing it (for example, before commencing therapy sessions). The use of decision support tools is optimal if they are accompanied by discussion with a treating practitioner, and may be viewed before, during, or after consultations (Hoffmann, Legare, Simmons et al, 2014).…”

Section: Implications For Future Researchmentioning

confidence: 99%

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Assisting parents of children with autism to make intervention decisions by improving their health literacy about evidence

Grant¹

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Parents of children newly diagnosed with Autism Spectrum Disorders (ASD) are faced with the daunting task of choosing from numerous autism interventions. At the time this research project began, little was understood about how parents made decisions for their child following the diagnosis. A few groups and organisations, in Australia and overseas, have designed and disseminated resources in various formats to help parents with decision making, but none had been evaluated in a clinical trial that tested the effectiveness of the resource in facilitating this process. Based on a review of the literature, and with consideration for the gap in research on this topic, a mixed methodology project was designed. The project incorporated five studies aiming to: 1) develop an understanding of the information that parents of children with ASD currently use to make intervention decisions, and their information preferences; 2) develop an understanding of parents' decision making processes; 3) evaluate the quality of information most commonly accessed by parents, particularly web-based information; 4) determine how best to help parents understand what interventions are available and how they are classified; and 5) develop and conduct a pilot evaluation of the effectiveness of a decision aid. Study 1 was a cross sectional survey of Autism Advisors, and parents across Australia who were accessing the Helping Children With Autism (HCWA) funding package. The study aimed to obtain a better understanding of how parents made decisions about autism interventions, and which resources they accessed to obtain intervention information. Participants were Autism Advisors (n=13) and parents (n=113) attending initial consultations with an Autism Advisor. After determining that parents frequently accessed the Internet for ASD intervention information, it was considered important to investigate the quality of information parents were likely to be finding. Study 2 analysed the quality of health information in a sample of autism-related websites using a valid and reliable health information evaluation tool called DISCERN. This study found that websites were of variable quality and frequently lacked references to research evidence. Study 3 involved conducting focus groups and individual interviews with parents (n = 23) whose children were aged under 18 years and diagnosed with an ASD.iii The aim was to further investigate parents' decision making processes and further explore the various formats and sources of information used. This study revealed that parents engaged in both a pragmatic and emotional journey and gained confidence over time in relation to their decision making regarding interventions for their child. Study 4 involved developing a web-based decision aid informed by the results of the first three studies, and with consideration for the literature on shared decision making, health literacy and patient education.The resource aimed to assist parents to make better-informed decisions about autism interventions, with considera...

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Section: Chapter 7 -Discussion and Conclusionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Chapter 7 -Discussion and Conclusionmentioning

confidence: 99%

Section: Challenges Of Providing Education To Parents Of Children Witmentioning

confidence: 99%

Section: Implications For Future Researchmentioning

confidence: 99%

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Assisting parents of children with autism to make intervention decisions by improving their health literacy about evidence

Grant¹

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How Relevance Affects Understanding of Conflicts Between Multiple Documents: An Eye‐Tracking Study

Stadtler

Scharrer

Bromme

2019

Reading Research Quarterly

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The authors examined how information relevance affects readers' understanding of conflicting information in multiple documents and how relevance affects the processing of conflicting information on a moment-by-moment level. Sixty-four undergraduate students read a set of documents about a medical topic containing three intertextual conflicts addressing subtopics that were either highly relevant or irrelevant to the readers' task. Eye movements were recorded during reading, and afterward, readers' memory for conflicting information and their ability to apply their knowledge about the conflicting information was assessed. Relevance had a powerful influence on readers' understanding of conflicts between multiple documents: Readers for whom the intertextual conflicts were relevant remembered conflicting information better and reported conflicts more frequently than readers for whom the conflicts were irrelevant. The time course of this effect revealed that relevance exerts its influence only during a later stage of processing. Readers appear to initially detect conflicts regardless of their relevance, but only readers for whom conflicts are relevant invest the additional regulatory effort needed to include them in their mental representation.

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Interdisciplinary Teams and Autism Spectrum Disorder

Lemay

Rieske

Johnston

2019

Handbook of Interdisciplinary Treatments for Autism Spectrum Disorder

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Evaluation of Autism‐Related Health Information on the Web

Abstract: Many websites did not meet criteria for quality health information and failed to cite evidence supporting described interventions. Implications of these findings are discussed.

Cited by 38 publications

References 21 publications

Assisting parents of children with autism to make intervention decisions by improving their health literacy about evidence

Assisting parents of children with autism to make intervention decisions by improving their health literacy about evidence

How Relevance Affects Understanding of Conflicts Between Multiple Documents: An Eye‐Tracking Study

Interdisciplinary Teams and Autism Spectrum Disorder

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