Evaluation of alternative residential facilities for the severely mentally handicapped in Wessex: Client progress

Smith, J. R.; Glossop, Christine; Kushlick, Albert

doi:10.1016/0146-6402(80)90005-3

Cited by 13 publications

(7 citation statements)

References 4 publications

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“…Some ofthe problems involved in evaluating quality ofcare and quality of life in different environments are only just beginning to become clear. For example, the finding that locally based units (Smith, Glossop, and Kushlick, 1980) and houses (Felce et a,, 1985;Felce, de Kock, and Repp, 1986) provide more flexible environments than hospitals and a higher quality of life for the people living in them is supported in some, but not all, respects by the views of the people interviewed in the present study and some others.…”

Section: Discussionmentioning

confidence: 54%

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Uncertain future: experiences and expectations of people with mental handicaps of life beyond the hospital and hostel

Day

1989

Mental Handicap Research

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This paper is based on a study of the experiences of a small number of people with mental handicaps living in a hospital and a local authority hostel. They all expected to leave long stay accommodation. Their experience of the relatively lengthy periods spent in the hospital and the hostel is thought to have implications for the ways in which they may adapt to imminent changes in their lives. Some of their hopes and uncertainties, and those of staff who know them well, are described and discussed.

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Section: Discussionmentioning

confidence: 54%

“…It should be noted that the people who took part in this study were of higher general capacity than the people studied by Smith, Glossop, and Kushlick (1980). It was clear that, with this reservation in mind, a wide range of abilities and other personal traits were represented in the two groups.…”

Section: Commentsmentioning

confidence: 83%

Uncertain future: experiences and expectations of people with mental handicaps of life beyond the hospital and hostel

Day

1989

Mental Handicap Research

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“…(1981) reported that it was the most able adults who benefited least from transfer from institutional to smaller scale settings in terms of changes in ABS. Smith et al (1980), using a different developmental measure, also found evidence of greater progress among children and adults rated as non-ambulant or severely behaviour disordered compared to those rated as continent, ambulant and without severe behaviour disorder when deinstitutionalised groups were compared to control subjects remaining in hospital. Further analysis of the ABS results is being pursued to investigate whether such results stem from the characteristics of the measure interacting with resident characteristics or the nature of service settings (Perry & Felce, in preparation).…”

Section: Discussionmentioning

confidence: 88%

Outcomes of Ordinary Housing Services in Wales: Objective Indicators

Perry

Felce

1994

Mental Handicap Research

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Outcome data were collected on fourteen, recently provided staffed houses for people with mild, moderate, severe or profound learning disabilities in order to assess the quality of service provided. Quality indicators reflected the quality of the housing provision, social and community integration, social relationships within the houses, resident engagement in activity, developmental progress over time and opportunities for autonomy and choice. The data show that the quality of the houses investigated was broadly similar to that reported for other housing services in British research which has accompanied deinstitutionalisation. Quality levels on many indicators were related to the ability of residents and the data illustrate the difficulty in providing services for people with more severe or profound learning disabilities, which are capable of achieving outcomes comparable with those attained in services for more able residents. This research provides further evidence that the extent of staff support for resident activity is critical to how much residents are able to participate fully in the everyday activities which arise in the conduct of their lives.

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“…Although Portage is frequently used for children with severe developmental disabilities, we used it for its original target population—children with developmental delay. The package has not been the subject of a randomised trial but has been evaluated in Wessex12 and South Wales 13. In practice, the introduction of Portage to the family in the first few months was felt to be weak.…”

Section: Methodsmentioning

confidence: 99%

Randomised trial of parental support for families with very preterm children

Infant

1998

Archives of Disease in Childhood - Fetal and Neonatal Edition

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AIM To test the effectiveness of a home based developmental education programme in very preterm children. METHODS A randomised controlled trial was conducted of developmental or social support intervention, started at discharge for up to 2 years, in 309 consecutive survivors of 32 weeks gestation or less, born to mothers resident in greater Bristol between December 1990 and July 1993. Home visits were made by research nurses trained in either Portage (a developmental education programme) or in non-directional counselling (parent adviser scheme). Interventions were also provided to appropriate primary care and community support for disability. Griffiths Mental Development Scales were used to assess outcome at 2 years. RESULTS Mean (SEM) Griffiths quotients (GQ) were: Portage 96.8 (1.6); parent adviser 95.9 (1.6); preterm control 92.9 (2.0). Despite randomisation, social variables significantly confounded these results. Using linear regression analysis, intervention was associated with improved scores: Portage: + 4.3 GQ points (95% CI 1.6 to 7.0); parent adviser: +3.4 GQ points (1.4 to 6.1). The effect of Portage was greatest in those children with birthweights <1250 g (+5.3 GQ points (0.2 to 10.4) and in those with an abnormal neonatal cerebral ultrasound scan (+7.3 GQ points (1.6 to 13.0). CONCLUSION Primary analysis showed no developmental benefit from long term family support after preterm birth. Secondary analysis controlling for the presence of adverse social markers showed similar small advantage for both intervention groups. In the smallest infants and those with brain injuries, a structured developmental programme may offer advantage over social support intervention.

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Evaluation of alternative residential facilities for the severely mentally handicapped in Wessex: Client progress

Cited by 13 publications

References 4 publications

Uncertain future: experiences and expectations of people with mental handicaps of life beyond the hospital and hostel

Uncertain future: experiences and expectations of people with mental handicaps of life beyond the hospital and hostel

Outcomes of Ordinary Housing Services in Wales: Objective Indicators

Randomised trial of parental support for families with very preterm children

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