Evaluation of a National Register on Occupational Exposure to Carcinogens: Effectiveness in the Prevention of Occupational Cancer, and Cancer Risks among the Exposed Workers

Kauppinen, Timo; Saalo, Anja; Pukkala, Eero; Virtanen, S; Karjalainen, Antti; Vuorela, Raija

doi:10.1093/annhyg/mem030

Cited by 7 publications

(2 citation statements)

References 4 publications

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“…An example of this is the mandatory Finnish ASA registry* which collects information on carcinogen use (both type and amount) in Finnish workplaces. 19,20 Kauppinen et al (2007) undertook an evaluation of the ASA registry by focussing on workplaces that had ceased reporting, to determine whether carcinogens were no longer in use, or whether the cessation of reporting was in error. 21 Making the exposure registry reporting available to front-line inspectors provides a mechanism for reminding workplaces about the need to report (where mandatory) or the benefits of reporting (where voluntary).…”

Section: Discussionmentioning

confidence: 99%

“…19,20 Kauppinen et al (2007) undertook an evaluation of the ASA registry by focussing on workplaces that had ceased reporting, to determine whether carcinogens were no longer in use, or whether the cessation of reporting was in error. 21 Making the exposure registry reporting available to front-line inspectors provides a mechanism for reminding workplaces about the need to report (where mandatory) or the benefits of reporting (where voluntary). Linkages with regulatory bodies that collect exposure measurement can also provide the opportunity for evaluating whether a registry has any effect on exposure prevalence or exposure levels in workplaces, or industries more broadly.…”

Section: Discussionmentioning

confidence: 99%

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Designing exposure registries for improved tracking of occupational exposure and disease

Arrandale

Bornstein

King

et al. 2016

Can J Public Health

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OBJECTIVES: Registries are one strategy for collecting information on occupational exposure and disease in populations. Recently leaders in the Canadian occupational health and safety community have shown an interest in the use of occupational exposure registries. The primary goal of this study was to review a series of Canadian exposure registries to identify their strengths and weaknesses as a tool for tracking occupational exposure and disease in Canada. A secondary goal was to identify the features of an exposure registry needed to specifically contribute to prevention, including the identification of new exposure-disease relationships.METHODS: A documentary review of five exposure registries from Canada was completed. Strengths and limitations of the registries were compared and key considerations for designing new registries were identified. RESULTS:The goals and structure of the exposure registries varied considerably. Most of the reviewed registries had voluntary registration, which presents challenges for the use of the data for either surveillance or epidemiology. It is recommended that eight key issues be addressed when planning new registries: clear registry goal(s), a definition of exposure, data to be collected (and how it will be used), whether enrolment will be mandatory, as well as ethical, privacy and logistical considerations.CONCLUSIONS: When well constructed, an exposure registry can be a valuable tool for surveillance, epidemiology and ultimately the prevention of occupational disease. However, exposure registries also have a number of actual and potential limitations that need to be considered.KEY WORDS: Registries; occupational exposure; exposure registries; surveillance La traduction du résumé se trouve à la fin de l'article.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Designing exposure registries for improved tracking of occupational exposure and disease

Arrandale

Bornstein

King

et al. 2016

Can J Public Health

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Role of Registers in Occupational Cancer Control

Grimsrud

Weiderpass

2014

Occupational Cancers

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Biobanks and Registers in Epidemiologic Research on Cancer

Pukkala

2010

Methods in Molecular Biology

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The Nordic countries have a long tradition of register-based epidemiologic studies. Numerous population-based specialized registers offer high-quality data from individuals, and the extensive use of register data further improves the quality of the registers. Unique personal identity codes given to every resident and used in all registers guarantee easy and accurate record linkage. A legislation that makes the use of the existing data possible for purposes that benefit both registered individuals and the society - instead of forcing researchers to use their energy in repeated questionnaire studies, disturbing individuals' privacy and leading to response and recall biases - is a prerequisite for effective epidemiologic research. Biobanks can be considered an additional type of registers. They may offer data from individuals that cannot be reliably collected via questionnaire surveys. In turn, other types of registers are crucial in biobank-based studies (1) in defining for how long the persons in biobank cohorts are at risk of getting the diseases, (2) to get information on cofactors that may modify the relative risk measured by the biomarkers, and (3) to get information on the long-term outcome events. This chapter describes the possibilities of register use mainly in Finland - a typical representative of the Nordic "paradise of register-based epidemiological research" - in research of cancer etiology. The ongoing Nordic research project Changing work life and cancer risk in the Nordic countries (NOCCA) will be described as an example of a massive register use, including both direct linkages on an individual level and indirect group level linkages.

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Evaluation of a National Register on Occupational Exposure to Carcinogens: Effectiveness in the Prevention of Occupational Cancer, and Cancer Risks among the Exposed Workers

Abstract: These results suggest that a national exposure register may stimulate preventive measures at workplaces. Partially based on the results of the present study the Finnish Ministry of Social Affairs and Health continues ASA registration.

Cited by 7 publications

References 4 publications

Designing exposure registries for improved tracking of occupational exposure and disease

Designing exposure registries for improved tracking of occupational exposure and disease

Role of Registers in Occupational Cancer Control

Biobanks and Registers in Epidemiologic Research on Cancer

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