Evaluating YouTube as a source of patient information for pediatric tracheostomy care

Duymaz, Yaşar Kemal; Şahin, Sedef; Erkmen, Burak; Uzar, Tuğçe; Önder, Serap Şahin

doi:10.1016/j.ijporl.2023.111580

Cited by 2 publications

(1 citation statement)

References 15 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Our findings are consistent with some ear, nose, and throat studies, as Duymaz et al [ 79 ] evaluated the quality of pediatric tracheostomy care information on YouTube and reported low JAMA scores for channels managed by both health care professionals and independent users. Similarly, only a small percentage of thyroid cancer websites assessed by Doubleday et al [ 65 ] satisfied the JAMA criteria, whereas the same websites were classified as “fair” when the DISCERN tool was applied.…”

Section: Discussionsupporting

confidence: 92%

The Readability and Quality of Web-Based Patient Information on Nasopharyngeal Carcinoma: Quantitative Content Analysis

Tan,

Ko,

Fan

2023

JMIR Form Res

View full text Add to dashboard Cite

Background Nasopharyngeal carcinoma (NPC) is a rare disease that is strongly associated with exposure to the Epstein-Barr virus and is characterized by the formation of malignant cells in nasopharynx tissues. Early diagnosis of NPC is often difficult owing to the location of initial tumor sites and the nonspecificity of initial symptoms, resulting in a higher frequency of advanced-stage diagnoses and a poorer prognosis. Access to high-quality, readable information could improve the early detection of the disease and provide support to patients during disease management. Objective This study aims to assess the quality and readability of publicly available web-based information in the English language about NPC, using the most popular search engines. Methods Key terms relevant to NPC were searched across 3 of the most popular internet search engines: Google, Yahoo, and Bing. The top 25 results from each search engine were included in the analysis. Websites that contained text written in languages other than English, required paywall access, targeted medical professionals, or included nontext content were excluded. Readability for each website was assessed using the Flesch Reading Ease score and the Flesch-Kincaid grade level. Website quality was assessed using the Journal of the American Medical Association (JAMA) and DISCERN tools as well as the presence of a Health on the Net Foundation seal. Results Overall, 57 suitable websites were included in this study; 26% (15/57) of the websites were academic. The mean JAMA and DISCERN scores of all websites were 2.80 (IQR 3) and 57.60 (IQR 19), respectively, with a median of 3 (IQR 2-4) and 61 (IQR 49-68), respectively. Health care industry websites (n=3) had the highest mean JAMA score of 4 (SD 0). Academic websites (15/57, 26%) had the highest mean DISCERN score of 77.5. The Health on the Net Foundation seal was present on only 1 website, which also achieved a JAMA score of 3 and a DISCERN score of 50. Significant differences were observed between the JAMA score of hospital websites and the scores of industry websites (P=.04), news service websites (P<.048), charity and nongovernmental organization websites (P=.03). Despite being a vital source for patients, general practitioner websites were found to have significantly lower JAMA scores compared with charity websites (P=.05). The overall mean readability scores reflected an average reading age of 14.3 (SD 1.1) years. Conclusions The results of this study suggest an inconsistent and suboptimal quality of information related to NPC on the internet. On average, websites presented readability challenges, as written information about NPC was above the recommended reading level of sixth grade. As such, web-based information requires improvement in both quality and accessibility, and healthcare providers should be selective about information recommended to patients, ensuring they are reliable and readable.

show abstract

Section: Discussionsupporting

confidence: 92%

The Readability and Quality of Web-Based Patient Information on Nasopharyngeal Carcinoma: Quantitative Content Analysis

Tan,

Ko,

Fan

2023

JMIR Form Res

View full text Add to dashboard Cite

show abstract

Analysis of YouTube Videos on Circumcision: Evaluating Reliability and Quality for Patients and Parents

Çoşkun,

Demir

2024

Eur J Ther

View full text Add to dashboard Cite

Objective: Circumcision is a significant issue for child health and parents, and the reliability and quality of information published on platforms like YouTube can affect patients' access to accurate information. This study aimed to evaluate the quality and reliability of Turkish YouTube videos as a source of information about circumcision. Methods: In this cross-sectional study, a search was conducted on YouTube using the keyword "circumcision" on June 1, 2024. After applying exclusion criteria, the 45 most viewed Turkish videos (more than 10,000 views) were included in the study. Videos that were irrelevant, contained advertisements, personal experiences, or were in languages other than Turkish were excluded. The duration, view count, likes, dislikes, number of comments, and upload date of the videos were recorded. The Video Power Index (VPI) was calculated to measure video popularity. Two pediatric surgeons independently assessed the quality and reliability of the videos using the Modified DISCERN (mDISCERN), Journal of the American Medical Association (JAMA), and Global Quality Scale (GQS) scores. Scale scores were compared between groups based on the purpose and publisher of the video using the Mann-Whitney U test. Correlations between video characteristics and scale scores were evaluated with the Spearman correlation coefficient, and inter-observer agreement was assessed with the intraclass correlation coefficient (ICC). Results: According to the inclusion and exclusion criteria, 39 (86.7%) of the 45 videos were informational, and 6 (13.3%) were surgical. The average length of the videos was 213.5 ± 206 (35 - 1164) seconds. The average duration since the videos were published until June 1, 2024, was 1653 ± 980 (350 - 3985) days. The average view count of the videos was 73,862 ± 114,210 (11,736 – 679,985). The average Video Power Index of the videos was 39.9 ± 40.85 (3.69 - 247.1). The average mDISCERN score was 2.87 ± 1.24, the JAMA score was 2.71 ± 0.7, and the GQS score was 3.38 ± 1.19. According to the GQS scale, 22.3% (n=10) of the 45 videos were of low quality, 33.3% (n=15) were of medium quality, and 44.4% (n=20) were of high quality. All scale scores of informational videos were statistically significantly greater compared to the surgical videos (P=0.008, P=0.041, P=0.024, respectively). Conclusion: YouTube is a significant source of information with the potential to influence the knowledge and behavior of a wide audience regarding circumcision. Patients and their relatives should consider videos uploaded by expert physicians. There is a need for more high-quality educational surgical circumcision videos and short, clear, unbiased, high-quality informational videos addressing controversial issues and containing necessary resources created by expert physicians. This will help increase the accurate knowledge of families about circumcision and consequently reduce unnecessary anxiety and expectations.

show abstract

Evaluating YouTube as a source of patient information for pediatric tracheostomy care

Cited by 2 publications

References 15 publications

The Readability and Quality of Web-Based Patient Information on Nasopharyngeal Carcinoma: Quantitative Content Analysis

The Readability and Quality of Web-Based Patient Information on Nasopharyngeal Carcinoma: Quantitative Content Analysis

Analysis of YouTube Videos on Circumcision: Evaluating Reliability and Quality for Patients and Parents

Contact Info

Product

Resources

About