Evaluating the Theoretical Content of Online Physical Activity Information for People with Multiple Sclerosis

Shirazipour, Celina H.; Baillie, Colin P.T.; Galavíz, Karla I.; Jarvis, Jocelyn W.; Latimer-Cheung, Amy E

doi:10.7224/1537-2073.2013-048

Cited by 3 publications

(2 citation statements)

References 31 publications

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“…There have been advances in the reporting of BCTs employed within the MS PA literature, although this is limited. Shirazipour and colleagues 22 examined the coverage of BCTs in internet resources about PA for people with MS and coded 20 websites that aimed to provide information on PA. The authors concluded that the coverage of BCTs needs improvements with BCTs such as stress-management and motivational interviewing rarely used.…”

Section: Introductionmentioning

confidence: 99%

Changing Physical Activity Behavior in People With Multiple Sclerosis: A Systematic Review and Meta-Analysis

Casey

Coote

Hayes

et al. 2018

Archives of Physical Medicine and Rehabilitation

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Current evidence supports the efficacy of PA intervention on subjective but not objective outcomes. However, conclusions from this review should be interpreted with caution because of the small number of studies included and small sample size. Further, while using theory in intervention design, interventions in this review have not reported the refining of theory. Exploration of the use of additional BCTs to change PA behavior is also required within future interventions.

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Section: Introductionmentioning

confidence: 99%

Changing Physical Activity Behavior in People With Multiple Sclerosis: A Systematic Review and Meta-Analysis

Casey

Coote

Hayes

et al. 2018

Archives of Physical Medicine and Rehabilitation

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“…People with MS are highly active on social media [ 18 , 19 ]. We have previously shown that the demographics of cohorts of patients with MS identified by their activities on social media correspond well with cohorts identified in other sources, indicating that social media data analysis can be usefully applied to outcomes research [ 12 ].…”

Section: Discussionmentioning

confidence: 99%

Linked Patient-Reported Outcomes Data From Patients With Multiple Sclerosis Recruited on an Open Internet Platform to Health Care Claims Databases Identifies a Representative Population for Real-Life Data Analysis in Multiple Sclerosis

Risson¹,

Ghodge²,

Bonzani³

et al. 2016

J Med Internet Res

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BackgroundAn enormous amount of information relevant to public health is being generated directly by online communities.ObjectiveTo explore the feasibility of creating a dataset that links patient-reported outcomes data, from a Web-based survey of US patients with multiple sclerosis (MS) recruited on open Internet platforms, to health care utilization information from health care claims databases. The dataset was generated by linkage analysis to a broader MS population in the United States using both pharmacy and medical claims data sources.MethodsUS Facebook users with an interest in MS were alerted to a patient-reported survey by targeted advertisements. Eligibility criteria were diagnosis of MS by a specialist (primary progressive, relapsing-remitting, or secondary progressive), ≥12-month history of disease, age 18-65 years, and commercial health insurance. Participants completed a questionnaire including data on demographic and disease characteristics, current and earlier therapies, relapses, disability, health-related quality of life, and employment status and productivity. A unique anonymous profile was generated for each survey respondent. Each anonymous profile was linked to a number of medical and pharmacy claims datasets in the United States. Linkage rates were assessed and survey respondents’ representativeness was evaluated based on differences in the distribution of characteristics between the linked survey population and the general MS population in the claims databases.ResultsThe advertisement was placed on 1,063,973 Facebook users’ pages generating 68,674 clicks, 3719 survey attempts, and 651 successfully completed surveys, of which 440 could be linked to any of the claims databases for 2014 or 2015 (67.6% linkage rate). Overall, no significant differences were found between patients who were linked and not linked for educational status, ethnicity, current or prior disease-modifying therapy (DMT) treatment, or presence of a relapse in the last 12 months. The frequencies of the most common MS symptoms did not differ significantly between linked patients and the general MS population in the databases. Linked patients were slightly younger and less likely to be men than those who were not linkable.ConclusionsLinking patient-reported outcomes data, from a Web-based survey of US patients with MS recruited on open Internet platforms, to health care utilization information from claims databases may enable rapid generation of a large population of representative patients with MS suitable for outcomes analysis.

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The technical quality of online leisure time physical activity resources for people with physical disabilities

Shaw

Mallory

Arkell

et al. 2017

Disability and Health Journal

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Evaluating the Theoretical Content of Online Physical Activity Information for People with Multiple Sclerosis

Abstract: This study, which examined quality and coverage of physical activity behavior change techniques described online for people with MS, illustrated that the dissemination of these techniques requires improvement.

Cited by 3 publications

References 31 publications

Changing Physical Activity Behavior in People With Multiple Sclerosis: A Systematic Review and Meta-Analysis

Changing Physical Activity Behavior in People With Multiple Sclerosis: A Systematic Review and Meta-Analysis

Linked Patient-Reported Outcomes Data From Patients With Multiple Sclerosis Recruited on an Open Internet Platform to Health Care Claims Databases Identifies a Representative Population for Real-Life Data Analysis in Multiple Sclerosis

The technical quality of online leisure time physical activity resources for people with physical disabilities

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