Evaluating the quality of internet information for breast cancer

Nghiem, Allan Zhifa; Mahmoud, Yamil D; Som, Robin

doi:10.1016/j.breast.2015.10.001

Cited by 67 publications

(61 citation statements)

References 4 publications

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“…The HONcode has been widely used in the literature in assessing health-related websites[19]. The two instruments, the DISCERN and HONcode, do not exactly cover the same issues/topics, although there are some overlaps.…”

Section: Methodsmentioning

confidence: 99%

Inflammatory bowel disease: An evaluation of health information on the internet

Azer

AlOlayan

Alghamdi

et al. 2017

WJG

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AIMTo evaluate the quality and accuracy of websites written to the public on inflammatory bowel disease (IBD) (Crohn's disease and ulcerative colitis) and assess their readability level.METHODSGoogle™, Bing™, and Yahoo™ search engines were searched independently by three researchers in December 2014. Only English-language websites were selected on the basis of predetermined inclusion and exclusion criteria. Researchers independently evaluated the quality of each website by using the DISCERN and the HONcode instruments. The readability levels were calculated using two formulas; the Flesch-Kincaid Grade Level Index, and the Coleman-Liau Readability Index. The agreement between the evaluators was calculated using Cohen kappa coefficient.RESULTSEighty-four websites were finally identified. Scores varied from a minimum DISCERN score of 18 to a maximum of 68 [mean ± SD, 42.2 ± 10.7; median = 41.5, interquartile range, interquartile range (IQR) = 15.8] and a minimum score of HONcode of 0.14 and a maximum of 0.95 (mean ± SD, 0.16 ± 0.19; median = 0.45, IQR = 0.29). Most of these websites were reviewed in 2014 and 2015 (n = 51). The creators of these websites were: universities and research centers (n = 25, 30%), foundations and associations (n = 15, 18%), commercial and pharmaceutical companies (n = 25, 30%), charities and volunteer work (n = 9, 10%), and non-university educational bodies (n = 10, 12%). The Flesch-Kincaid Grade Level readability score (mean ± SD) was 11.9 ± 2.4 and the Coleman-Liau Readability Index score was 12.6 ± 1.5. Significant correlation was found between the two readability scores (R2 = 0.509, P = 0.001). The overall agreement between evaluators measured by Cohen kappa coefficient was in the range of 0.804-0.876; rated as "Good".CONCLUSIONThe DISCERN and the HONcode scores of websites varied and the readability levels of most websites were above the public readability level. The study highlights the areas that need further improvement and development in patient education online materials about IBD.

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Section: Methodsmentioning

confidence: 99%

Inflammatory bowel disease: An evaluation of health information on the internet

Azer

AlOlayan

Alghamdi

et al. 2017

WJG

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“…According to the results of their research, the internet is preferred because it is an easy, cheap, and fast way of accessing information; 30.4% of internet users make their health-related decisions based on the internet; and they also use this information to communicate with their physicians. lated information, validation tools were developed that can assess various properties of internet sites (4)(5)(6). Quality Criteria for Consumer Health Information (DISCERN), Journal of American Medical Association (JAMA) benchmarks, LIDA (Minervalidation Inc.), Health on the Net Code of Conduct (HONCode) are some of those.…”

Section: Introductionmentioning

confidence: 99%

Evaluation of Internet Information about Lingual Orthodontics Using DISCERN and JAMA Tools

Olkun

Demirkaya

2018

Turk J Orthod

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Objective: To investigate the quality and reliability of websites providing information about lingual orthodontics in Turkish.Methods: An internet search was conducted on March 6th, 2017, using popular search engines in Turkey: Google TM , bing TM , YAHOO!®, and Yandex® for the keywords "lingual ortodonti, görünmeyen braketler, and görünmeyen teller". The top 10 websites for each keyword and search engine were examined, and duplicates, irrelevant websites, websites showing scientific articles, and orthodontic supplies market sites were excluded. The remaining 58 sites were assessed using the DISCERN instrument and JAMA benchmarks Results:The authors of the remaining sites were orthodontists (48%) and dentists (5%), while 46% of the websites did not state author names. Ninety-one percent lacked references, and 87% lacked a date. Only 30% were balanced and unbiased. The mean overall DISCERN score was very poor (43%) or poor (40%). Of the 58 websites, 48% (28 sites) met authorship, 7% (4 sites) attribution, 71% (41 sites) disclosed website ownership, and 3% (2) currency benchmarks of JAMA. Conclusion:Information on the internet related to lingual orthodontics is poor. Clinicians should warn patients that information on the internet about lingual orthodontics might be inadequate, and they should direct patients to higher-quality websites.

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“…This study also demonstrates that cancer information is readily available to individuals with cancer but, even on the most popular sites, the nature of the information is variable (Nghiem, Mahmoud, & Som, ). Of particular concern is the common provision of online information without attribution.…”

Section: Discussionmentioning

confidence: 73%

Ways of knowing on the Internet: A qualitative review of cancer websites from a critical nursing perspective

et al. 2018

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People diagnosed with cancer typically want information from their doctor or nurse. However, many individuals now turn to the Internet to tackle unmet information needs and to complement healthcare professional information. The purpose of this study was to qualitatively explore the content of commonly searched cancer websites from a critical nursing perspective, as this information is accessible, and allows patients to address their information needs in ways that healthcare professionals cannot. This qualitative examination of websites is informed by Carper's fundamental patterns of knowing and complemented with the critical view to technology espoused by the philosophy of technology. We conducted a review of 20 websites using a two-step interpretive descriptive approach and thematic analysis. We identified the dominant discourse to be focused on empirical information on treatment, prognosis, and cure, and a paucity of sociopolitical, ethical, personal, and esthetic information. In place of holistic, nuanced, and accurate knowledge nurses may provide, patients find predominantly empirical and biomedical information online. Discussion explores and critiques online cancer content, gaps in information, and the importance of information diversity. Implications focus on needed discourse around pervasive technologies and the nursing role in assessing and directing patients to holistic information.

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Evaluating the quality of internet information for breast cancer

Cited by 67 publications

References 4 publications

Inflammatory bowel disease: An evaluation of health information on the internet

Inflammatory bowel disease: An evaluation of health information on the internet

Evaluation of Internet Information about Lingual Orthodontics Using DISCERN and JAMA Tools

Ways of knowing on the Internet: A qualitative review of cancer websites from a critical nursing perspective

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