Evaluating the Manitoba Infant Feeding Database: a Canadian infant feeding surveillance system

Abstract

Objective The Manitoba Infant Feeding Database (MIFD) is being piloted as a surveillance system leveraging infant vaccination visits as a point of contact to collect infant feeding data during the first year of life. The objective of this study was to assess data quality and acceptability of the MIFD as a sustainable population-based surveillance system. Methods Internal completeness and internal validity were measured to assess data quality. Internal completeness was defined as the number of completed data fields out of the total number of data fields. Internal validity was defined as the proportion of translation errors from one level of the system, the paper questionnaire, to the next, the electronic database. A survey assessed staff's acceptance of data collection and submission processes. Results A total of 947 records were reviewed. Data were 98.5% complete. Discrepancies were noted in 13.5% of data. The survey response rate was 78.4%. Nearly all respondents reported that the MIFD data collection tool was easy to use (96.6% agreed or strongly agreed). Whereas some challenges were identified, the majority were willing to continue with the MIFD data collection tool and process (93.1%). Conclusion Results from this evaluation suggest that the MIFD data collection process worked well; however, data validation will require human resources. The MIFD approach provides a sustainable mechanism for collecting data on infant feeding for surveillance and research purposes.

Robust estimation of infant feeding indicators by data quality assessment of longitudinal electronic health records from birth up to 18 months of life

“…Despite the relevance and advantages of using EHR data for infant feeding monitoring and research [17,18,[21][22][23][24][25], to our understanding, this is the first study that deals with the assessment of DQ to obtain a robust estimation of IYCF indicators over a population-based IDR of routine collected EHR. There are two examples of infant feeding population-based studies that use EHR registries exclusively [23,27], but none of them mentions the use of a DQ assessment procedures and one of them needs a complementary manual review of EHRs [27].…”

“…One of the main barriers to establishing a regular monitoring system is obtaining relievable population data, that brings to the problem to get a relevant set of variables to measure and assess the quality of large datasets. [10,[17][18][19][20].…”

“…Currently, routine collected electronic health records (EHR) data from infant community care health reviews is an excellent data source candidate for infant feeding monitoring, research and surveillance due to its population coverage and its continuity in time [17,18,[21][22][23][24][25]. Concerning this, there are previous research studies in infant feeding based on routine collected EHR [23,24,26,27].…”

Diseño, construcción y evaluación de repositorios estandarizados con calidad de datos asegurada para la monitorización de la atención a la alimentación infantil

“…Sin embargo, hoy en día, una minoría de países realiza una monitorización regular de indicadores de alimentación infantil (Pérez-Escamilla & Moran, 2016;UNICEF, 2020). Una de las principales razones es la dificultad de obtener datos poblacionales fiables (Chapman & Pérez-Escamilla, 2009;European Centre for Disease Control Prevention, 2014;Nickel et al, 2017;Paul et al, 2019;Pérez-Escamilla & Chapman, 2012).…”

“…En definitiva, un obstáculo insalvable para la explotación eficaz de la información. Respecto a la fuente para la obtención de dichos datos, frente a las costosas encuestas ad-hoc, lo que actualmente se conoce como "datos del mundo real" o en inglés "real world data" y, en concreto, los registros de HCE tienen el potencial de constituirse en una fuente de datos idónea para la investigación, la calidad de la atención sanitaria o la monitorización y vigilancia de la salud, incluyendo la salud infantil, debido a su cobertura poblacional y su continuidad en el tiempo (Ajetunmobi et al, 2014;American Academy of Pediatrics et al, 2008;Euro-Peristat project with SCPE and Eurocat, 2010;Halvorsen et al, 2015;Nickel et al, 2017;Paul et al, 2019;Weng et al, 2012). Sin embargo, el establecimiento de la HCE como fuente de conocimiento en el ámbito clínico plantea importantes retos a las organizaciones sanitarias.…”