Evaluating the Experience of Children With Type 1 Diabetes and Their Parents Taking Part in an Artificial Pancreas Clinical Trial Over Multiple Days in a Diabetes Camp Setting

Abstract

Participants manifested a positive attitude toward the AP. Further studies are required to explore participants' perceptions early in the AP development to individualize the new treatment as much as possible, and to tailor it to respond to their needs and values.

The impact of using a closed‐loop system on food choices and eating practices among people with Type 1 diabetes: a qualitative study involving adults, teenagers and parents

“…These systems need varying levels of user input, with most requiring users to count carbohydrates and announce this information prior to snacking or eating a meal [1]. While studies have previously consulted users of closed-loop systems, these have often focused on experiences of overnight systems [4][5][6][7][8][9] and/or systems used for very short periods (typically ≤5 days) in supervised environments [10][11][12], with none focusing specifically on how the use of a closed-loop might affect users' dietary practices. Specifically, it has been hypothesized that the use of a closed-loop may result in a transition from what has been termed 'restrained' to 'nonrestrained' eating behaviour, prompting calls for further research [3].…”

Psychosocial Research and Care in Diabetes: Altering Lives by Understanding Attitudes

“…This is followed by the presentation of a collection of articles that represent important aspects of psychological science spanning from the development of measures to assess psychological constructs (5) to community-based interventions to treat psychological outcomes of diabetes (6). These articles also represent work conducted with samples across the life span ranging from the experiences with artificial pancreas in children with type 1 diabetes and their parents (7) to adult couples with type 2 diabetes (8). Three articles address the emotional and affective experience of diabetes by examining 1 ) stigma associated with type 2 diabetes (5), 2 ) the course of depressive disorders in adults with type 2 diabetes (9), and 3 ) linkages between emotional distress and self-care behaviors (10).…”

“…Troncone et al (7) used structured interviews and surveys to investigate the experience of 33 Italian children aged 5–9 years (and that of their parents) wearing an artificial pancreas for 3 days at a summer camp. This study is an example of the benefits of qualitative and quantitative data collection that provides researchers and science consumers with a robust understanding of the phenomena at hand.…”

Artificial Pancreas in Young Children

“…19 In another study, Russell et al found lower mean glucose and decreased hypoglycemia (including decreased interventions needed for hypoglycemia) in the bihormonal AP group versus the participant's home CSII in a population of children aged 6-11 years. 21 Interestingly, parental satisfaction and trust in the AP system was high in a group of 5-9-year olds (and their parents) taking part in a week-long summer camp, 15 suggesting that this technology may not only be beneficial for glucose control but also helps to improve parental anxiety and burden of disease.…”

“…[11][12][13][14] Recent technological advancements with continuous subcutaneous insulin infusion (CSII) pumps and continuous glucose monitors (CGMs) have led to decreased parental anxiety and improved quality of life in the T1D population. [15][16][17][18] Several small studies using AP in young children have shown reduced rates of hypoglycemia, although without significant improvements in glycemic control [19][20][21] as has been seen in older children and adults. [22][23][24][25] While these results are encouraging, widespread use of AP in young children may continue to be limited by parental fear of hypoglycemia.…”