Abstract:Recognition of the family as a component of patient-centered critical care has shifted our attention to the assessment of family satisfaction in the intensive care unit (ICU). To date, there are no established measures of satisfaction with ICU care for family members of the chronically critically ill (CCI). This study evaluated psychometric properties of the Critical Care Family Satisfaction Survey (CCFSS) in 326 family members of the CCI using exploratory and confirmatory factor analysis (CFA). From the explo… Show more
“…Therefore, nursing care should be both family and patient centred, adding another quality demand in the evaluation process (Hickman et al . ). Unfortunately, a high incidence of conflicts between patients' relatives and staff members has been documented in previous studies, such as team–family disputes, ineffective or inappropriate communication by the health care team and unclear or insufficient information (Davidson , Roberti & Fitzpatrick ).…”
Section: Introductionmentioning
confidence: 97%
“…Given the involvement of families as decision makers during hospitalization, family satisfaction should be taken into account when quality of care is assessed in the ICUs (Wall et al 2007a, Gerstel et al 2008). Therefore, nursing care should be both family and patient centred, adding another quality demand in the evaluation process (Hickman et al 2012). Unfortunately, a high incidence of conflicts between patients' relatives and staff members has been documented in previous studies, such as team-family disputes, ineffective or inappropriate communication by the health care team and unclear or insufficient information (Davidson 2009, Roberti & Fitzpatrick 2010.…”
Nurse managers should plan for the successful involvement of family members in the decision-making process. Higher levels of nurse staffing might improve the care provided.
“…Therefore, nursing care should be both family and patient centred, adding another quality demand in the evaluation process (Hickman et al . ). Unfortunately, a high incidence of conflicts between patients' relatives and staff members has been documented in previous studies, such as team–family disputes, ineffective or inappropriate communication by the health care team and unclear or insufficient information (Davidson , Roberti & Fitzpatrick ).…”
Section: Introductionmentioning
confidence: 97%
“…Given the involvement of families as decision makers during hospitalization, family satisfaction should be taken into account when quality of care is assessed in the ICUs (Wall et al 2007a, Gerstel et al 2008). Therefore, nursing care should be both family and patient centred, adding another quality demand in the evaluation process (Hickman et al 2012). Unfortunately, a high incidence of conflicts between patients' relatives and staff members has been documented in previous studies, such as team-family disputes, ineffective or inappropriate communication by the health care team and unclear or insufficient information (Davidson 2009, Roberti & Fitzpatrick 2010.…”
Nurse managers should plan for the successful involvement of family members in the decision-making process. Higher levels of nurse staffing might improve the care provided.
“…Subsequently, adding ‘questionnaire’ in the title and abstract resulted in 43 articles. To explore relevant topics, we studied the Critical Care Family Needs Inventory (CCFNI) [9, 27], the Family Satisfaction in the Intensive Care Unit (FS-ICU 24/34) [12], the Critical Care Family Satisfaction Survey (CCFSS) [16], the Parent Satisfaction Instrument [28] and the CQI-palliative care relatives [29]. The resulting topic list with relevant quality aspects consisted of: support at first entrance in ICU, information and communication, attitude of the caregivers, (multidisciplinary) support, participation, organization of ICU, discharge to a general ward, and aftercare.…”
Section: Resultsmentioning
confidence: 99%
“…Because of this conceptual difference, the FS-ICU was not used to translate and adapt the items of the questionnaire. The ‘Critical Care Family Satisfaction Survey’ (CCFSS) was assessed as a reliable and valid tool to measure the satisfaction of relatives as well [16]. Yet, both instruments, the FC-ICU 24 and the CCFSS, have a disadvantage when being implemented in the Netherlands, as they have been developed and used in a non-Dutch situation.…”
BackgroundThe quality standards of the Dutch Society of Intensive Care require monitoring of the satisfaction of patient’s relatives with respect to care. Currently, no suitable instrument is available in the Netherlands to measure this. This study describes the development and psychometric evaluation of the questionnaire-based Consumer Quality Index ‘Relatives in Intensive Care Unit’ (CQI ‘R-ICU’). The CQI ‘R-ICU’ measures the perceived quality of care from the perspective of patients’ relatives, and identifies aspects of care that need improvement.MethodsThe CQI ‘R-ICU’ was developed using a mixed method design. Items were based on quality of care aspects from earlier studies and from focus group interviews with patients’ relatives. The time period for the data collection of the psychometric evaluation was from October 2011 until July 2012. Relatives of adult intensive care patients in one university hospital and five general hospitals in the Netherlands were approached to participate. Psychometric evaluation included item analysis, inter-item analysis, and factor analysis.ResultsTwelve aspects were noted as being indicators of quality of care, and were subsequently selected for the questionnaire’s vocabulary. The response rate of patients’ relatives was 81% (n = 455). Quality of care was represented by two clusters, each showing a high reliability: ‘Communication’ (α = .80) and ‘Participation’ (α = .84). Relatives ranked the following aspects for quality of care as most important: no conflicting information, information from doctors and nurses is comprehensive, and health professionals take patients’ relatives seriously. The least important care aspects were: need for contact with peers, nuisance, and contact with a spiritual counsellor. Aspects that needed the most urgent improvement (highest quality improvement scores) were: information about how relatives can contribute to the care of the patient, information about the use of meal-facilities in the hospital, and involvement in decision-making on the medical treatment of the patient.ConclusionsThe CQI ‘R-ICU’ evaluates quality of care from the perspective of relatives of intensive care patients and provides practical information for quality assurance and improvement programs. The development and psychometric evaluation of the CQI ‘R-ICU’ led to a draft questionnaire, sufficient to justify further research into the reliability, validity, and the discriminative power of the questionnaire.Electronic supplementary materialThe online version of this article (doi:10.1186/s12913-016-1975-4) contains supplementary material, which is available to authorized users.
“…The ProVent score was developed as a mortality prediction model using four clinical variables (age, platelet count, requirement for vasopressors, and hemodialysis) on day 21 of mechanical ventilation to identify patients at high and low risk of mortality [12 ▪▪ ], and can be used to guide families and the care team in their discussions. Written information regarding CCI is available for families [52], as are tools to evaluate the satisfaction of communication perceived by families [53]. An innovative decision aid to assist with communication of prognosis and goals of care is currently being studied in a multicenter randomized trial [54 ▪ ].…”
Purpose of review
The population of chronically critically ill patients is growing as advances in intensive care management improve survival from the acute phase of critical illness. These patients are characterized by complex medical needs and heavy resource utilization. This article reviews evidence supporting a comprehensive approach to the prevention and management of chronic critical illness (CCI).
Recent findings
The most efficient approach to weaning patients with CCI at long-term acute care hospitals is daily unassisted breathing trials through a tracheostomy collar. However, a substantial number of patients transferred to long-term acute care hospitals pass their spontaneous weaning trials. Transfer to long-term acute care hospitals is associated with higher acute care costs and payments, but lower costs through the entire episode of illness. Universal decontamination is more effective than targeted decontamination or screening and isolation for preventing nosocomial bloodstream infections.
Summary
Combating CCI begins with prevention in the acute phase of illness. Management strategies include a spectrum of ventilatory, nutritional, and rehabilitation support. Further patient-centered outcome-based research in this specific population is needed to continue to help guide optimal care.
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