Evaluating data quality in trauma registries

Bonilla-Escobar, Francisco J.; Birda, Vaibhav; Puyana, Juan Carlos

doi:10.1097/ta.0000000000001238

Cited by 3 publications

(4 citation statements)

References 5 publications

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“…27,32,33 Previous authors have found similar difficulties when analyzing trauma datasets. 34,35 Consequently, multiple endeavors have been proposed to overcome obstacles related to data reporting and data accessibility, especially in LMICs. 36,37 Nonetheless, nonstandardized reports generated at local and rural hospitals still account for lack of reliability in the absence of more accurate registrations at a national level.…”

Section: Discussionmentioning

confidence: 99%

The Association of Blood Banks per City with Mortality Due to Traumatic Hemorrhagic Shock in Colombia: A Population-Based Analysis

2023

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Background: Hemorrhagic shock is the second leading cause of death for injured people and disproportionately affects low resource economies. The potential role of spatial allocation of blood banks and the unmet transfusion needs of patients are yet to be characterized. We aimed to estimate the effect of the number of blood banks in mortality due to traumatic hemorrhagic shock (THS) in Colombia. Methods: We performed a population-based cross-sectional study using secondary data from the Colombian Government: including annual reports from the Blood Bank Network, mortality, and population estimates for 2015-2016. International Classification of Disease 10th code T79.4 identified THS as the primary cause of death. A city-clustered multivariate negative binomial regression, weighted by violent deaths rate, was used to obtain incidence rate ratios (IRR) of death due to THS with 95% confidence intervals (95%CI). Results: Of the 59,030 violent deaths in Colombia in 2015-2016, 36.76% were due to THS. Only 3.13% of Colombian municipalities had a blood bank. THS incidence decreased as the number of blood banks in a city increased, and the lowest incidence was observed at ten banks (IRR:0.18, 95%CI:0.15-0.22). Receiving medical care in a city with blood banks had a more substantial impact on THS (IRR:0.85; 95%CI:0.76-0.96). Conclusion: The number of blood banks per city was associated with lower incidence of THS deaths. These findings may highlight the inequitable distribution of blood systems and their association with preventable deaths. Further studies with more focused clinical and geographical data might clarify the geographic determinants of blood products’ availability.

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Section: Discussionmentioning

confidence: 99%

The Association of Blood Banks per City with Mortality Due to Traumatic Hemorrhagic Shock in Colombia: A Population-Based Analysis

2023

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“…As trauma registries proliferate in LMICs, 8,9 there have been a growing number of studies examining the quality of data within these registries. 3,[10][11][12] As stated by Porgo, et al, problems of data quality affect the reliability of said data in inform clinical decision-making, resourceallocation planning, and any quality improvement initiative. 3 There has been widespread recognition that some existing and well-established trauma registries, such as, the International Trauma Registry in Latin America and the Caribbean regions, could benefit from integrating more rigorous data quality measures.…”

Section: Discussionmentioning

confidence: 99%

“…3 There has been widespread recognition that some existing and well-established trauma registries, such as, the International Trauma Registry in Latin America and the Caribbean regions, could benefit from integrating more rigorous data quality measures. 10,11 It is important to note, however, that definitions of data quality vary significantly within the published literature, and methods described for evaluating such quality in trauma registries are inconsistent. 12 In the growing field of global surgery, there is no doubt that trauma is a central driver of morbidity and mortality among the young and productive members of society, across all income levels.…”

Section: Discussionmentioning

confidence: 99%

Identifying Pediatric Trauma Data Gaps at a Large Urban Trauma Referral Center in Santiago, Chile

St-Louis¹,

Roizblatt²,

Deckelbaum³

et al. 2017

Panamerican Journal of Trauma, Critical Care &Amp; Emergency Surgery

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Background: Trauma registries contribute to improving trauma care, but their impact is highly dependent on the quality of the data. A simplified point of care pediatric trauma registry (PTR) was developed at the Centre for Global Surgery from the McGill University Health Centre (MUHC) for implementation in Low-middle income countries (LMICs). Pilot deployment was launched at a large urban trauma center in May 2016 in Santiago, Chile. Prior to deployment, we sought to identify missing data in existing trauma records in order to optimize PTR practicality and user benefit. Materials and methods:The project was approved by the local Institutional Review Board. Retrospective chart review was conducted on trauma patients below the age of 15 who were evaluated at the emergency room (ER) of Hospital Dr. Sotero del Rio (HSR) between January 1st and June 30th 2015. Data missingness was evaluated for each component of the PTR (demographics, mechanism, injury and outcomes). Potential independent predictors of data missingness were evaluated using multiple linear regression.Results: A total of 351 patients were included. Demographic data missingness ranged from 0% (age) to 95% (mode of arrival). Mechanism data missingness ranged from 6% (cause of injury) to 42% (site of injury). Injury physiology data missingness ranged from 37% (oxygen saturation) to 99% (respiratory rate). Interestingly, mean injury anatomy data missingness was significantly inferior to physiology data (0.6% vs. 78.6%, p < 0.05). Outcome data missingness reached 54% at 2 weeks. Conclusion:In resource-limited settings, high quality data is essential to guide responsible resource allocation. We believe implementation of a simplified trauma registry has the potential to reduce data gaps for pediatric trauma patients by streamlining trauma data collection at point of care. This should include streamlined data collection with a short per-patient completion time, and should forego attempts to collect data at 2 weeks, which has proven unsuccessful.

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“…As a registry, the data being collected attempt to be as minimal as possible to increase accuracy in the data collection and acceptability by staff filling the registry. There is a struggle between the need for strong data and the minimal data required to have a useful and sustainable registry 3–5 …”

mentioning

confidence: 99%

Letter to the Editor: Comment on Ngaage LM, et al. Global Burn Registry Perspective on Head and Neck Burns (Ann Plast Surg 2021;87:33-38)

Ocampo-Dominguez

2022

Ann Plast Surg

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Regarding follow-up studies, one arm of our current work focuses on more rigorously evaluating simulator construct validity to determine its utility for assessing surgeon competence. This is a critical step before incorporating it into training or using it to measuring surgeons' ability. A second arm of current research is determining whether improvements gained through simulation are maintained over time. This is a particularly important focus as a high-fidelity cleft simulator not only enables technical skills acquisition but also allows residents to think through steps of an operation, manage intraoperative challenges, and experience consequences of their mistakes, theoretically lessening a steep intraoperative learning curve without risk to patients. It also begins to marry the concepts of technical and nontechnical skills into a comprehensive simulation program.The authors make an important point about evaluating impact of simulation on actual intraoperative performance. Although our ultimate goal, it is logistically challenging given that trainees do not experience operative autonomy for cleft lip repair until later stages of their career after considerable experience assisting with the procedure. This is where simulating a complex multistep operation like cleft lip repair diverges from a procedure-like cystoscopy as the authors described. Within the subspecialty of urology, it more closely compares to simulating proximal hypospadias correction in terms of the challenges in teaching/learning, ramifications of giving autonomy to relative novices, and long duration over which outcomes manifest (but with the emergence of hypospadias simulators, we will certainly look out for work in this area). Regardless, we fully agree that improving actual performance in the operating room is the ultimate goal and measuring that effect a holy grail of surgical simulation.

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Evaluating data quality in trauma registries

Cited by 3 publications

References 5 publications

The Association of Blood Banks per City with Mortality Due to Traumatic Hemorrhagic Shock in Colombia: A Population-Based Analysis

The Association of Blood Banks per City with Mortality Due to Traumatic Hemorrhagic Shock in Colombia: A Population-Based Analysis

Identifying Pediatric Trauma Data Gaps at a Large Urban Trauma Referral Center in Santiago, Chile

Letter to the Editor: Comment on Ngaage LM, et al. Global Burn Registry Perspective on Head and Neck Burns (Ann Plast Surg 2021;87:33-38)

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