Evaluating a patient-centred intervention to increase disclosure and promote resilience for children living with HIV in Kenya

Vreeman, Rachel C.; Nyandiko, Winstone; Marete, Irene; Mwangi, Ann; McAteer, Carole I.; Keter, Alfred; Scanlon, Michael; Ayaya, Samuel; Aluoch, Josephine; Hogan, Joseph W.

doi:10.1097/qad.0000000000002183

Cited by 24 publications

(44 citation statements)

References 34 publications

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“…Weekly group discussion topics were informed by formative qualitative work with this cohort, as well as a multimedia curriculum developed previously by this research team that has modules on stress management, drug and alcohol abuse prevention, intimate relationships, and issues related to HIV adherence, disclosure, and stigma. 43 Additionally, the What-sApp chat platform remained open outside of the structured modules to allow for natural communication among participants, and these conversations were monitored by the study counselor. In addition, the counselor contacted individual participants via direct WhatsApp ® messaging every other week throughout the duration of the study period.…”

Section: What Are Your Research's Implications Toward Theory Practicmentioning

confidence: 99%

HIV-Related Knowledge, Attitudes, Behaviors and Experiences of Kenyan Adolescents Living with HIV Revealed in WhatsApp Group Chats

Chory

Nyandiko

Martin

et al. 2021

J Int Assoc Provid AIDS Care

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Introduction: Mobile technologies represent a scalable platform for delivering knowledge and interventions targeting adolescents living with HIV (ALWH) in low and middle income countries. Data from mobile interventions can be used to assess the contextual understanding and experiences of ALWH. Methods: We examined HIV-related knowledge, attitudes, beliefs, behaviors, and experiences of Kenyan ALWH revealed in the contextual data from enrollment in a WhatsApp® group chat intervention. Results: Thirty ALWH (17 female, mean age 15.4) on ART, engaged in HIV care and aware of their status, were enrolled. Qualitative analysis of WhatsApp® chat discussions identified a gap in HIV knowledge, high medication-taking literacy, need for mental health support and significant barriers to adherence. Participants discussed challenges with HIV stigma and medication-taking in the school setting. Conclusion: These discussions demonstrate a need for education on HIV topics, mental health support for ALWH, and interventions for stigma mitigation in the school setting.

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Section: What Are Your Research's Implications Toward Theory Practicmentioning

confidence: 99%

HIV-Related Knowledge, Attitudes, Behaviors and Experiences of Kenyan Adolescents Living with HIV Revealed in WhatsApp Group Chats

Chory

Nyandiko

Martin

et al. 2021

J Int Assoc Provid AIDS Care

Self Cite

View full text Add to dashboard Cite

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“…This nding suggests that a culturally and developmentally sensitive disclosure process did not worsen depression symptoms. In contrast, a recent report on a disclosure intervention in Kenya showed that children in the intervention arm had higher odds of moving from a less to a more severe depression category on the Patient Health Questionnaire-9 at a time when the prevalence of disclosure in the study cohort had increased [32,33]. Notably, the difference in odds between the control and intervention arms nearly resolved by the study's last measurement [33], suggesting that the risk of depression is present in the months following disclosure then resolves over time.…”

Section: Discussionmentioning

confidence: 67%

Sankofa Pediatric HIV Disclosure Intervention Did Not Worsen Depression Scores in Children Living with HIV and their Caregivers in Ghana

Radcliffe

Sam

Matos

et al. 2020

Preprint

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Abstract BackgroundThe ‘Sankofa’ pediatric HIV disclosure study (2013–2017) was an intervention that aimed to address the low prevalence of disclosure of HIV status in Ghana.MethodsWe conducted a cross-sectional study at the intervention site in Kumasi, Ghana, in 2019, (2 years after study closure) and administered the 21-item Beck Depression Inventory (BDI) and the 10-item Child Depression Inventory (CDI) to caregiver-child dyads who received the intervention.ResultsWe enrolled 65% (N = 157) of the original dyads in the present study. Between Sankofa enrollment baseline and the present study, both children and caregivers had significant (p < 0.0001) mean reductions in CDI scores and BDI scores, respectively. CDI scores of the children were significantly correlated with BDI scores of the caregivers (r = 0.019, p = 0.019). No statistically significant associations between disclosure status and either CDI score or BDI score were found.ConclusionsOur findings did not support caregivers’ fears that disclosure leads to depression.Trial Registration: NCT01701635 (ClinicalTrials.gov Identifier)

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“…This nding suggests that a culturally and developmentally sensitive disclosure process did not worsen depression symptoms. In contrast, a recent report on a disclosure intervention in Kenya showed that children in the intervention arm had higher odds of moving from a less to a more severe depression category on the Patient Health Questionnaire-9 at a time when the prevalence of disclosure in the study cohort had increased [33,34]. Notably, the difference in odds between the control and intervention arms nearly resolved by the study's last measurement [34], suggesting that the risk of depression is present in the months following disclosure then resolves over time.…”

Section: Discussionmentioning

confidence: 67%

Sankofa Pediatric HIV Disclosure Intervention Did Not Worsen Depression Scores in Children Living with HIV and their Caregivers in Ghana

Radcliffe

Sam

Matos

et al. 2020

Preprint

View full text Add to dashboard Cite

Background: The ‘Sankofa’ pediatric HIV disclosure study (2013-2017) was an intervention that aimed to address the low prevalence of disclosure of HIV status in Ghana. Methods: We conducted a cross-sectional study at the intervention site in Kumasi, Ghana, in 2019, (2 years after study closure) and administered the 21-item Beck Depression Inventory (BDI) and the 10-item Child Depression Inventory (CDI) to caregiver-child dyads who received the intervention. Results: We enrolled 65% (N=157) of the original dyads in the present study. Between Sankofa enrollment baseline and the present study, both children and caregivers had significant (p <0.0001) mean reductions in CDI scores and BDI scores, respectively. CDI scores of the children were significantly correlated with BDI scores of the caregivers (r = 0.019, p = 0.019). No statistically significant associations between disclosure status and either CDI score or BDI score were found. Conclusions: Our findings did not support caregivers’ fears that disclosure leads to depression. Trial Registration: NCT01701635 (ClinicalTrials.gov Identifier)

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Evaluating a patient-centred intervention to increase disclosure and promote resilience for children living with HIV in Kenya

Cited by 24 publications

References 34 publications

HIV-Related Knowledge, Attitudes, Behaviors and Experiences of Kenyan Adolescents Living with HIV Revealed in WhatsApp Group Chats

HIV-Related Knowledge, Attitudes, Behaviors and Experiences of Kenyan Adolescents Living with HIV Revealed in WhatsApp Group Chats

Sankofa Pediatric HIV Disclosure Intervention Did Not Worsen Depression Scores in Children Living with HIV and their Caregivers in Ghana

Sankofa Pediatric HIV Disclosure Intervention Did Not Worsen Depression Scores in Children Living with HIV and their Caregivers in Ghana

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