Evaluating a novel cervical orthosis, the Sheffield Support Snood, in patients with amyotrophic lateral sclerosis/motor neuron disease with neck weakness

Baxter, Susan; Reed, Heath; Clarke, Zöe; Judge, Simon; Heron, Nicola M.; McCarthy, Avril D.; Langley, Joe; Stanton, Andrew; Wells, Oliver; Squire, Gill; Quinn, Ann; Strong, Mark; Shaw, Pamela J.; McDermott, Christopher J.

doi:10.3109/21678421.2016.1148170

Cited by 31 publications

(25 citation statements)

References 9 publications

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“…Es kommen abhängig vom klinischen Bild diverse Orthesen zum Einsatz, mittels derer eine Schmerzkontrolle, Kontrakturprophyla xe und Zunahme der Selbständigkeit erzielt werden kann [37]. Pu bliziert wurde der erfolgreiche Einsatz von Handorthesen [37,38,39], UnterschenkelFußOrthesen [15,40] und Halsorthesen bei Schwäche der Nackenmuskulatur [41,42], allerdings profitieren nicht alle Patienten von einer Orthese [43]. Wichtig ist der Ein satz zum richtigen Zeitpunkt, um einen optimalen Effekt auf die Aktivitäten des täglichen Lebens und die Lebensqualität zu erzie len [38,39].…”

Section: Orthesen Und Prothesenunclassified

Rehabilitation bei Amyotropher Lateralsklerose

Groß¹,

Summ²

2019

Nervenheilkunde

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ZUSAMMENFASSUNGIn der stationären neurologischen Rehabilitation in Deutschland werden vorwiegend akute neurologische Erkrankungen, aber nur selten schwere, fortschreitende neuromuskuläre Erkrankungen wie die Amyotrophe Lateralsklerose behandelt. Mittlerweile liegt jedoch in Bezug auf die Amyotrophe Lateralsklerose eine umfangreiche Evidenz für den positiven Nutzen in der Rehabilitation angewandter Methoden und den Einsatz von in der Rehabilitation tätigen Fachbereichen vor: Physiotherapie, Übungsbehandlung, Atmungstherapie, Logopädie, Ernährungstherapie, Ergotherapie, der Einsatz von Hilfsmitteln, assistive Technologien, Elektrorollstühlen und Unterstützter Kommunikation sowie multidisziplinäre Zusammenarbeit und Palliative Care können das Leben der Patienten verlängern, Teilhabe und Lebensqualität verbessern und ein würdevolles Sterben ermöglichen. Essenziell sind die Integration der Angehörigen und beatmungsmedizinischer Expertise in die Behandlung. Ambulante und stationäre neurologische sollten daher fester Bestandteil der Behandlung der Amyotrophen Lateralsklerose sein.

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Section: Orthesen Und Prothesenunclassified

Rehabilitation bei Amyotropher Lateralsklerose

Groß¹,

Summ²

2019

Nervenheilkunde

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“…Dialogue with our patient participants in our co-design team indicated that the neck orthosis given to MND patients were worn as little as possible, with 20-30 minute periods being cited by some although greater time frames being cited by others. This view from MND patients was formally captured in a later evaluation (Baxter et al 2016) with a wider, external group of MND patients.…”

Section: Limitationsmentioning

confidence: 99%

A comfort assessment of existing cervical orthoses

et al. 2017

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Purpose: identify location and intensity of discomfort experienced by healthy participants wearing cervical orthoses.Method: convenience sample of 34 healthy participants wore Stro II, Philadelphia, Headmaster, and AspenVista ® cervical orthoses for four-hour periods. Participants reported discomfort level (scale 0-6) and location.Results: participants reported mean discomfort for all orthoses over the four-hour test between 'a little discomfort' and 'very uncomfortable' (mean discomfort score=1.64, SD=1.50). Seven participants prematurely stopped tests due to pain and six reported maximum discomfort scores. Significant linear increase in discomfort with duration of wear was found for all orthoses. Significantly less discomfort was reported with Stro II than Headmaster and Philadelphia. Age correlated with greater perceived discomfort. Orthoses differed in the location discomfort was experienced. Conclusion: existing cervical orthoses cause discomfort influenced by designand duration of wear with orthoses' design the more significant factor. This work informed the design of a new orthosis and future orthoses developments.Keywords: comfort assessment; neck collar; neck support; Motor Neurone Disease; amyotrophic lateral sclerosis; neck weakness; assistive technology;Head-up; Headup Practitioner SummaryThe purpose of this study was to gain knowledge about discomfort caused by wearing existing neck orthoses in order to inform the design and development of a new neck orthosis. This study gathers empirical data from a surrogate population and concludes that orthosis design is more influential than the duration of wear.4

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“…After successful completion and evaluation in healthy participants (11), the HeadUp collar was assessed in people living with ALS, using a mixed methods cohort study (12). Twenty patients with both ALS and neck weakness (who had also tried other neck orthoses) were recruited and fitted with the HeadUp collar.…”

Section: Introductionmentioning

confidence: 99%

Fit for purpose? A cross-sectional study to evaluate the acceptability and usability of HeadUp, a novel neck support collar for neurological neck weakness

Sproson

Lanfranchi

Collins

et al. 2020

Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration

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The HeadUp collar (previously known as the Sheffield Support Snood) provides support for neck weakness caused by amyotrophic lateral sclerosis (ALS) and has shown to be superior to alternative options in a small cohort of patients from one single center. Here we report the assessment of the HeadUp collar in a larger cohort of patients, exploring the use in other neurological conditions and expanding to other centers across the UK and Ireland. An interventional crosssectional study design was implemented to investigate the usability and acceptability of the HeadUp collar. A total of 139 patients were recruited for the study, 117 patients had a diagnosis of ALS and 22 patients presented with neck weakness due to other neurological conditions. Participants were assessed at baseline, fitted a HeadUp collar and followed-up one month later. The performance of the HeadUp collar was rated favorably compared to previously worn collars in terms of the ability to eat, drink and swallow. Findings suggest that the collar also permitted a more acceptable range of head movements whilst maintaining a good level of support. We conclude that the HeadUp collar is a suitable option for patients with neck weakness due to ALS and other neurological conditions.

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Evaluating a novel cervical orthosis, the Sheffield Support Snood, in patients with amyotrophic lateral sclerosis/motor neuron disease with neck weakness

Cited by 31 publications

References 9 publications

Rehabilitation bei Amyotropher Lateralsklerose

Rehabilitation bei Amyotropher Lateralsklerose

A comfort assessment of existing cervical orthoses

Fit for purpose? A cross-sectional study to evaluate the acceptability and usability of HeadUp, a novel neck support collar for neurological neck weakness

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