EVALUATE-AD and Tele-STAR: Novel Methodologies for Assessment of Caregiver Burden in a Telehealth Caregiver Intervention – A Case Study

Thomas, Neil; Lindauer, Allison; Kaye, Jeffrey

doi:10.1159/000497805

Cited by 15 publications

(21 citation statements)

References 31 publications

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“…These are presented in Table 2 . Table 1 and Table 2 lists articles in reverse chronological order: 2019 (4) [ 3 , 19 , 20 , 21 ], 2018 (12) [ 22 , 23 , 24 , 25 , 26 , 27 , 28 , 29 , 30 , 31 , 32 , 33 ], 2017 (14) [ 34 , 35 , 36 , 37 , 38 , 39 , 40 , 41 , 42 , 43 , 44 , 45 , 46 , 47 ], 2016 (11) [ 48 , 49 , 50 , 51 , 52 , 53 , 54 , 55 , 56 , 57 , 58 ], 2015 (7) [ 59 , 60 , 61 , 62 , 63 , 64 , 65 ].…”

Section: Resultsmentioning

confidence: 99%

Evaluating the Facilitators, Barriers, and Medical Outcomes Commensurate with the Use of Assistive Technology to Support People with Dementia: A Systematic Review Literature

et al. 2020

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Background: Assistive technologies (AT) have been used to improve the daily living conditions of people living with dementia (PWD). Research supports the positive impact of the use of AT such as decreased burden on caregivers and behavioral support for people with dementia. Four reviews in the last six years have analyzed AT and PWD, but none have incorporated the dimension of medical outcomes. Objectives: The purpose of this review is to identify the facilitators, barriers, and medical outcomes commensurate with the use of AT with PWD. Method: This review queried The Cumulative Index of Nursing and Allied Health Literature (CINAHL), Web of Science, Science Direct, and PubMed databases for peer-reviewed publications in the last five years for facilitators, barriers, and medical outcomes commensurate with the use of AT with PWD. The study is reported and conducted in accordance with the Preferred Reporting Items for Systematic Reviews and Meta-Analysis (PRISMA) and the Kruse Protocol for conducting a systematic review. Results: 48 studies were analyzed. Fourteen types of AT, 17 facilitators, 17 barriers, and 16 medical outcomes were identified in the literature. The two most frequently mentioned ATs were cognitive stimulators (9/48, 19%) and social robots (5/48, 10%). The two most frequently mentioned facilitators were caregivers want AT (8/68, 12%) and enables increased independence (7/68, 10%). The top two barriers were cost (8/75, 11%) and PWD reject AT (8/75, 11%). The top medical outcomes were improved cognitive abilities (6/69, 9%), increased activities of daily living (ADLs), and increased autonomy (each at 5/69, 7%): Zero negative outcomes were reported. Conclusion: The systematic review revealed the positive relations that occur when PWD and their caregivers use AT. Although many reservations surrounding the use of AT exist, a majority of the literature shows a positive effect of its use. Research supports a strong support for AT by caregivers due to many positive medical outcomes, but also a reticence to adopt by PWD. If ATs for PWD are a way to reduce stress on caregivers, barriers of cost and complexity need to be addressed through health policy or grants.

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Section: Resultsmentioning

confidence: 99%

Evaluating the Facilitators, Barriers, and Medical Outcomes Commensurate with the Use of Assistive Technology to Support People with Dementia: A Systematic Review Literature

et al. 2020

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“…We used the ROB 2 tool to evaluate 14 of the 15 studies for bias; however, we did not use it for the Spring et al (2009) study, because they reported only qualitative data. Of the 14 studies, 9 (64.3%) were appraised as having a “high risk” of bias, with the most common source stemming from the randomization process domain (Figueiro et al, 2015; Gibson et al, 2017; Jain et al, 2014; Paller et al, 2015; Simpson & Carter, 2010; Thomas et al, 2019). We deemed the remaining three studies as high risk due to significant concerns with measurement of the sleep outcomes (Elliott et al, 2010; Hirano et al, 2011) and intervention fidelity (Sloane et al, 2015).…”

Section: Resultsmentioning

confidence: 99%

“…Nine studies (Elliott et al, 2010; Figueiro et al, 2015; Fowler et al, 2016; Gibson et al, 2017; Hirano et al, 2011; Jain et al, 2014; Korn et al, 2009; Paller et al, 2015; Sloane et al, 2015) used a pre/posttest design, whereas the other six studies (Rose et al, 2009; Rowe et al, 2010; Simpson & Carter, 2010; Spring et al, 2009; Thomas et al, 2019; Williams et al, 2019) used repeated measures. The studies’ data collection schedules ranged from several weeks (Figueiro et al, 2015; Gibson et al, 2017; Hirano et al, 2011; Jain et al, 2014; Korn et al, 2009; Paller et al, 2015; Rose et al, 2009; Simpson & Carter, 2010; Sloane et al, 2015) to several months (Elliott et al, 2010; Fowler et al, 2016; Rowe et al, 2010; Spring et al, 2009; Thomas et al, 2019; Williams et al, 2019) Table 2 provides a summary of the included studies’ methodologies.…”

Section: Resultsmentioning

confidence: 99%

Sleep Interventions for Informal Caregivers of Persons with Dementia: A Systematic Review

et al. 2021

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We conducted a systematic review on the state of the science related to sleep interventions for informal caregivers of persons with Alzheimer’s disease or related dementia (ADRD). This review included English-written, peer-reviewed articles that studied the effect of an intervention on sleep health outcomes for informal caregivers of persons with ADRD. Our search yielded 15 articles that met our a priori inclusion criteria. We categorized interventions into four categories: environmental, physical, cognitive, and collaborative. Intervention effects were heterogeneous, with most yielding nonsignificant sleep health effects. There is a need for theoretically sound and robust sleep health interventions for informal caregiver samples. Future research in this area could benefit from the use of more controlled, pragmatic, and adaptive research designs, and the use of objective measures that conceptually represent the multiple domains of sleep health to enhance intervention quality.

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“…Daily activity, determined via the number of total steps, was collected using the Withings Activite actiwatch (Withings; Issy-les-Moulineaux, France). This actiwatch has been used within the ORCATECH home assessment platform and specifically for studies related to the national Collaborative Aging Research using Technology (CART) initiative [ 45 ] and the Ecologically Valid Ambient Longitudinal and Unbiased Assessment of Treatment Efficacy in Alzheimer’s Disease (EVALUATE-AD) study [ 46 ]. The Withings Activite has previously been validated against the Actigraph wGT3X-BT (Pensacola, FL, USA) and StepsCount PiezoRxD (Deep River, ON, Canada) [ 47 ].…”

Section: Methodsmentioning

confidence: 99%

Tunable White Light for Elders (TWLITE): A Protocol Demonstrating Feasibility and Acceptability for Deployment, Remote Data Collection, and Analysis of a Home-Based Lighting Intervention in Older Adults

Elliott

Tinsley

Reynolds

et al. 2022

Sensors

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Sleep disturbances are common in older adults and may contribute to disease progression in certain populations (e.g., Alzheimer’s disease). Light therapy is a simple and cost-effective intervention to improve sleep. Primary barriers to light therapy are: (1) poor acceptability of the use of devices, and (2) inflexibility of current devices to deliver beyond a fixed light spectrum and throughout the entirety of the day. However, dynamic, tunable lighting integrated into the native home lighting system can potentially overcome these limitations. Herein, we describe our protocol to implement a whole-home tunable lighting system installed throughout the homes of healthy older adults already enrolled in an existing study with embedded home assessment platforms (Oregon Center for Aging & Technology—ORCATECH). Within ORCATECH, continuous data on room location, activity, sleep, and general health parameters are collected at a minute-to-minute resolution over years of participation. This single-arm longitudinal protocol collected participants’ light usage in addition to ORCATECH outcome measures over a several month period before and after light installation. The protocol was implemented with four subjects living in three ORCATECH homes. Technical/usability challenges and feasibility/acceptability outcomes were explored. The successful implementation of our protocol supports the feasibility of implementing and integrating tunable whole-home lighting systems into an automated home-based assessment platform for continuous data collection of outcome variables, including long-term sleep measures. Challenges and iterative approaches are discussed. This protocol will inform the implementation of future clinical intervention trials using light therapy in patients at risk for developing Alzheimer’s disease and related conditions.

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EVALUATE-AD and Tele-STAR: Novel Methodologies for Assessment of Caregiver Burden in a Telehealth Caregiver Intervention – A Case Study

Cited by 15 publications

References 31 publications

Evaluating the Facilitators, Barriers, and Medical Outcomes Commensurate with the Use of Assistive Technology to Support People with Dementia: A Systematic Review Literature

Evaluating the Facilitators, Barriers, and Medical Outcomes Commensurate with the Use of Assistive Technology to Support People with Dementia: A Systematic Review Literature

Sleep Interventions for Informal Caregivers of Persons with Dementia: A Systematic Review

Tunable White Light for Elders (TWLITE): A Protocol Demonstrating Feasibility and Acceptability for Deployment, Remote Data Collection, and Analysis of a Home-Based Lighting Intervention in Older Adults

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