European Achondroplasia Forum Practical Considerations for Following Adults with Achondroplasia
Svein Fredwall,
Moeenaldeen AlSayed,
Tawfeg Ben-Omran
et al.
Abstract:Achondroplasia is a lifelong condition requiring lifelong management. There is consensus that infants and children with achondroplasia should be managed by a multidisciplinary team experienced in the condition. However, many people are lost to follow-up after the transition from paediatric to adult care, and there is no standardised approach for management in adults, despite the recent availability of international consensus guidelines. To address this, the European Achondroplasia Forum has developed a patient… Show more
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