Ethics of qualitative research: are there special issues for health services research?

Richards, Helen; Schwartz, Lisa

doi:10.1093/fampra/19.2.135

Cited by 211 publications

(245 citation statements)

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“…64 Practitioner-research, therefore, requires careful planning in order to minimise the risk to participants and to navigate issues of consent, confidentiality, misinterpretation and misrepresentation of data. These issues were addressed in accordance with ethical guidelines 65 at each stage of this research by the authors.…”

Section: Data Analysis and Representationmentioning

confidence: 99%

The challenge and impact of engaging hard-to-reach populations in regular physical activity and health behaviours: an examination of an English Premier League ‘Football in the Community’ men's health programme

et al. 2016

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SummaryObjectives: To investigate the challenges that men from hard-to-reach (HTR) populations encounter when attempting to commit to regular participation in physical activity and health behaviours and to explore the psychological and social effects of participation in a twelve week football-led health improvement intervention.Study Design: A twelve week football specific physical activity intervention targeting men from HTR populations was delivered by Everton Football Clubs' Football in the Community (FitC) scheme as part of a national programme of men's health delivered in/by English Premier League (EPL) football clubs. Men living in homeless shelters and/or recovering from substance misuse were recruited over a period of three months. The programme consisted of a two hour football session, twice weekly, alongside the dissemination of healthy living messages. Football sessions were conducted by a qualified FitC coach.Methods: This research was conducted during a twelve week period of immersed practitioner-research. Ethnographic and observational methodologies were adopted. Psychosocial issues were discussed with participants through informal client-researcher interactions and data were logged via field notes. Records of attendance were logged. Participants who failed to attend a session were contacted and their reason(s) for nonattendance were recorded. Data were analysed using deductive and inductive reasoning.Results: Despite the apparent ambition of the participants to regularly participate in the FitC programme, adherence to the programme was poor. Economic, environmental and social barriers to engagement in the programme were apparent. Engagement in the programme resulted in positive psychosocial developments; the development of structure, social interaction and social capital. Conclusion:Community based football-led health improvement programmes endorsed by professional football clubs appear well positioned to connect with, and attract, men from HTR populations. The evidence suggests that such programmes can improve psychosocial health amongst these populations. However, a bottom-up programme design and management strategy is required in order to reduce the challenges facing HTR participants when attempting to regularly engage in physical activity and health behaviours.

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Section: Data Analysis and Representationmentioning

confidence: 99%

The challenge and impact of engaging hard-to-reach populations in regular physical activity and health behaviours: an examination of an English Premier League ‘Football in the Community’ men's health programme

et al. 2016

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“…In a number of instances, qualitative research has been found to conflict with guidelines laid down by medical research ethics committees (Ramcharan & Cutcliffe 2001;Richards & Schwartz 2001). Research designs favoured by such committees often do not allow for the evolving nature of social-research questions and the range of people who may be involved in projects.…”

Section: Case Notes From Anthropologists In the Fieldmentioning

confidence: 99%

Negotiating human research ethics: Case notes from anthropologists in the field (Respond to this article at http://www.therai.org.uk/at/debate)

Chenhall¹,

Senior²,

Belton³

2011

Anthropology Today

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The human ethics issues surrounding the conduct of health science research have been the subject of increasing debate among biomedical and social science researchers in recent years. Ethics procedures in health‐science research are typically concerned with protecting anonymity and confidentiality, and are tailored to work that primarily uses quantitative methodologies. For qualitative research in the health social sciences, a different set of ethical issues often arises in the research process. This article examines three case studies of qualitative researchers working with Indigenous Australian communities, focusing on the researchers’ experiences with ethics committees and how they approached a range of ethical issues arising in the course of their research. Key issues include: obtaining informed consent for participant observation; the evolving nature of qualitative research; the difficulties in foreseeing changes in approach; and the distinction between the research team and the researched in participatory action research.

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“…The researcher questioned if this recall of painful memories would do harm or provide comfort as it allowed an opportunity to be heard when conducting the interviews. Richards and Schwartz (2002) identified anxiety and distress as a potential risk area for participants. Questions are intended to be deep reaching to bring forth information.…”

Section: Yellow School Busesmentioning

confidence: 99%

“…Most participants knew of the university or knew someone who attended the university and could relate to the researcher. Richards and Schwartz (2002) described possible ethical risks to those participating in qualitative research. The risks included: "anxiety and distress; exploitation; misrepresentation; and identification of the participant in published papers by themselves or others" (p. 135).…”

Section: Given Enoughmentioning

confidence: 99%

See 1 more Smart Citation

Ethical Dimensions within Qualitative Research

Fnp¹,

Jennie²

2007

OJHE

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Ethics of qualitative research: are there special issues for health services research?

Cited by 211 publications

References 23 publications

The challenge and impact of engaging hard-to-reach populations in regular physical activity and health behaviours: an examination of an English Premier League ‘Football in the Community’ men's health programme

The challenge and impact of engaging hard-to-reach populations in regular physical activity and health behaviours: an examination of an English Premier League ‘Football in the Community’ men's health programme

Negotiating human research ethics: Case notes from anthropologists in the field (Respond to this article at http://www.therai.org.uk/at/debate)

Ethical Dimensions within Qualitative Research

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