Ethics of prevention: An interactive computer-tailored program

Hooren, R.H. van; Borne, Bart W. van den; Curfs, Leopold; Widdershoven, Guy

doi:10.1080/14034940701271890

Cited by 4 publications

(6 citation statements)

References 4 publications

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“…A common concern across disciplines such as public health and philosophy, is the tension and balance between ensuring the safety of people and respecting their right to autonomy (64,99). As the findings show, communication strategy should be tailored to the culture, values and context, and therefore one may argue that an autonomy-supportive healthcare culture may not "work" in some cultures or countries and that without external regulation (e.g., enforceable legislation), the adherence might be low.…”

Section: Discussionmentioning

confidence: 99%

Public Health and Risk Communication During COVID-19—Enhancing Psychological Needs to Promote Sustainable Behavior Change

Porat

Nyrup

Calvo

et al. 2020

Front. Public Health

131

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Background: The current COVID-19 pandemic requires sustainable behavior change to mitigate the impact of the virus. A phenomenon which has arisen in parallel with this pandemic is an infodemic-an overabundance of information, of which some is accurate and some is not, making it hard for people to find trustworthy and reliable guidance to make informed decisions. This infodemic has also been found to create distress and increase risks for mental health disorders, such as depression and anxiety. Aim: To propose practical guidelines for public health and risk communication that will enhance current recommendations and will cut through the infodemic, supporting accessible, reliable, actionable, and inclusive communication. The guidelines aim to support basic human psychological needs of autonomy, competence, and relatedness to support well-being and sustainable behavior change. Method: We applied the Self-Determination Theory (SDT) and concepts from psychology, philosophy and human computer interaction to better understand human behaviors and motivations and propose practical guidelines for public health communication focusing on well-being and sustainable behavior change. We then systematically searched the literature for research on health communication strategies during COVID-19 to discuss our proposed guidelines in light of the emerging literature. We illustrate the guidelines in a communication case study: wearing face-coverings. Findings: We propose five practical guidelines for public health and risk communication that will cut through the infodemic and support well-being and sustainable behavior change: (1) create an autonomy-supportive health care climate; (2) provide choice; (3) apply a bottom-up approach to communication; (4) create solidarity; (5) be transparent and acknowledge uncertainty.

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Section: Discussionmentioning

confidence: 99%

Public Health and Risk Communication During COVID-19—Enhancing Psychological Needs to Promote Sustainable Behavior Change

Porat

Nyrup

Calvo

et al. 2020

Front. Public Health

131

View full text Add to dashboard Cite

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“…It is important to respect the wishes and psychological characteristics of PWS patients, so as to help them feel satisfied, bestow a sense of pride, and achieve the desired goals [28–30]. It has been reported that the medical staff should sensitively respond to the patient's behavior modification, rejoice with them, and praise them and that repeating this cycle can encourage the habit of behavior, resulting in treatment efficacy [7, 22].…”

Section: Discussionmentioning

confidence: 99%

Behavior Modification Maintenance with Long-Term Blood Glucose and Weight Management in Prader–Willi Syndrome Complicated with Diabetes: Team Management Approach Combined with Pharmacological Treatment

Kato¹,

Kimura

Okuda³

et al. 2019

Case Reports in Medicine

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The patient was a 40-year-old woman, who had been diagnosed with Prader–Willi syndrome (PWS) at 1 year of age and type 2 diabetes at 27 years of age. At 34 years of age, she was hospitalized to start insulin therapy and receive guidance on treatment. During the next 6 months and through regular once-monthly outpatient clinic visits, the blood glucose level was relatively stabilized although body weight gradually increased. Two years following discharge, the blood glucose level became unstable, and she was hospitalized again to receive guidance on treatment. A team medicine-based approach was established upon hospitalization. The basic treatment was unchanged (insulin, diet, and exercise). The approach taken by the team included understanding the characteristics of PWS by all team members, clear definition of treatment goals, positive evaluation of the patient, and maintenance of the patient’s motivation for treatment. Anxiety and stress related to mother’s illness dampened motivation and adherence to treatment, but the addition of appropriate pharmacological treatment helped in rapid recovery of motivation to adhere to the treatment protocol. At 3 years after discharge, HbA1c is maintained at around 6%, and body weight continues to fall. Our protocol of the combination of a team medicine approach with appropriately timed pharmacological intervention could probably be applied to not only type 2 diabetes in PWS but also the management of patients with poorly controlled type 2 diabetes.

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“…Autonomy, like privacy, is another theme that is widely addressed but has specific relevance in health and healthcare. A common concern—across disciplines such as medicine, philosophy, and robotics and engineering—is the tension between ensuring the safety of patients, possibly through interventions, and respecting their right to autonomy (Bennett et al 2017 ; Mahoney et al 2007 ; Margot-Cattin and Nygård 2009 ; Sharkey and Sharkey 2012 ; Van Hooren et al 2007 ). However, several articles also warn against the blanket prescription of decontextualized ethical concepts or principles in lieu of a careful examination of how the nature of certain illnesses alter their application.…”

Section: Social Domains: a Review Of Key Issuesmentioning

confidence: 99%

“…maximising engagement) (see Burr et al 2018 for a discussion). Unsurprisingly, therefore, the ethical issues related to autonomy are discussed across a wide-range of records, spanning fields such as psychology, philosophy, public health, and design studies (Calvo and Peters 2013;Desmet and Pohlmeyer 2013;Hart 2016;Lehavot et al 2012;Rughiniş et al 2015;Taddeo 2014;Vallor 2010;Van Hooren et al 2007). However, the approaches taken to autonomy differ widely, suggesting that particular aspects of the concept are only perspicuous when considering specific implementations of digital technology (e.g., an assistive technology for home care).…”

Section: Autonomy and Self-determinationmentioning

confidence: 99%

The Ethics of Digital Well-Being: A Thematic Review

2020

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This article presents the first thematic review of the literature on the ethical issues concerning digital well-being. The term ‘digital well-being’ is used to refer to the impact of digital technologies on what it means to live a life that is good for a human being. The review explores the existing literature on the ethics of digital well-being, with the goal of mapping the current debate and identifying open questions for future research. The review identifies major issues related to several key social domains: healthcare, education, governance and social development, and media and entertainment. It also highlights three broader themes: positive computing, personalised human–computer interaction, and autonomy and self-determination. The review argues that three themes will be central to ongoing discussions and research by showing how they can be used to identify open questions related to the ethics of digital well-being.

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Ethics of prevention: An interactive computer-tailored program

Abstract: Participants' responses support previous research findings, advocating a concept of autonomy in terms of positive freedom, through support by others. The promotion of the client's self-understanding and self-development is central in this concept.

Cited by 4 publications

References 4 publications

Public Health and Risk Communication During COVID-19—Enhancing Psychological Needs to Promote Sustainable Behavior Change

Public Health and Risk Communication During COVID-19—Enhancing Psychological Needs to Promote Sustainable Behavior Change

Behavior Modification Maintenance with Long-Term Blood Glucose and Weight Management in Prader–Willi Syndrome Complicated with Diabetes: Team Management Approach Combined with Pharmacological Treatment

The Ethics of Digital Well-Being: A Thematic Review

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