Ethics in health promoting PD

Lindberg, Susanne; Thomsen, Michel; Åkesson, Maria

doi:10.1145/2661435.2661449

Cited by 4 publications

(4 citation statements)

References 27 publications

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“…Figure 3 shows one of the scenes in the environment. In order to trigger conversations between users, which are the underlying mechanic to achieve peer support effects through friendship [26], user avatars display content from their respective interests listed in their profiles that Bobo helped set up in the onboarding process. By automatically displaying a user’s interest thought bubble (eg, “I like to draw” or “I love to play Minecraft”), the avatar provides an actionable conversation starter for surrounding users.…”

Section: Resultsmentioning

confidence: 99%

“…After both rounds of workshops had been performed, the 7 children who had participated took part in a summary session where they gave feedback on the outcomes and early prototypes. This also served to inform the children of what their contribution had contributed to, as is recommended from an ethical standpoint [26]. …”

Section: Methodsmentioning

confidence: 99%

“…The aim of the workshop was to gather feedback on suggested design concepts. We chose to include healthy children at this stage to not overuse the limited target group [26], and the sought feedback was not unique to this target group.…”

Section: Methodsmentioning

confidence: 99%

“…The design context for children who have survived cancer is of a sensitive nature, where ethical considerations need to be addressed regarding what topics can be handled during interviews and workshops to ensure a healthy environment for all participants [26]. This puts additional requirements on the design methodology, as the restrictions inherent in this sensitive design context limit the ways user data can be collected compared with traditional approaches.…”

Section: Introductionmentioning

confidence: 99%

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Effects of Using Child Personas in the Development of a Digital Peer Support Service for Childhood Cancer Survivors

Wärnestål¹,

Svedberg²,

Lindberg³

et al. 2017

J Med Internet Res

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BackgroundPeer support services have the potential to support children who survive cancer by handling the physical, mental, and social challenges associated with survival and return to everyday life. Involving the children themselves in the design process allows for adapting services to authentic user behaviors and goals. As there are several challenges that put critical requirements on a user-centered design process, we developed a design method based on personas adapted to the particular needs of children that promotes health and handles a sensitive design context.ObjectiveThe purpose of this study was to evaluate the effects of using child personas in the development of a digital peer support service for childhood cancer survivors.MethodsThe user group’s needs and behaviors were characterized based on cohort data and literature, focus group interviews with childhood cancer survivors (n=15, 8-12 years), stakeholder interviews with health care professionals and parents (n=13), user interviews, and observations. Data were interpreted and explained together with childhood cancer survivors (n=5) in three explorative design workshops and a validation workshop with children (n=7).ResultsWe present findings and insights on how to codesign child personas in the context of developing digital peer support services with childhood cancer survivors. The work resulted in three primary personas that model the behaviors, attitudes, and goals of three user archetypes tailored for developing health-promoting services in this particular use context. Additionally, we also report on the effects of using these personas in the design of a digital peer support service called Give Me a Break.ConclusionsBy applying our progressive steps of data collection and analysis, we arrive at authentic child-personas that were successfully used to design and develop health-promoting services for children in vulnerable life stages. The child-personas serve as effective collaboration and communication aids for both internal and external purposes.

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Section: Resultsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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