Ethical suicide research: A survey of researchers

Lakeman, Richard; Fitzgerald, Michael

doi:10.1111/j.1447-0349.2008.00569.x

Cited by 60 publications

(71 citation statements)

References 17 publications

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“…In this context, objectivity relates to openness in allowing the phenomenon to show itself. This scientific attitude (Norlyk & Harder ) supports the researchers' ethical reflections (Bishop & Shepherd ), which are central in research with vulnerable individuals (Lakeman & FitzGerald ; Liamputtong ). The interviewer's awareness of intersubjectivity (Boden et al ), supported critical reflections on feelings throughout the research process.…”

Section: Discussionmentioning

confidence: 76%

Reconnecting with oneself while struggling between life and death: The phenomenon of recovery as experienced by persons at risk of suicide

Sellin

Asp

Wallsten

et al. 2016

Int J Mental Health Nurs

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The work was carried out at Mälardalen University and the County Hospital Västerås, address as above Author contributions:LS -research planning, contact with clinical setting, data collection, analysis, and manuscript Three meaning constituents emerged: being in an expressive space and giving voice to oneself, regaining dignity through nurturing connectedness, and finding a balance in the tension between life and death. In conclusion, the meaning of recovery is to experience the ability to manage one's own life. Professional caregivers need to acknowledge patients' lifeworlds, in a way that enable patients to experience themselves as capable of managing their own lives. Professional caregivers should also facilitate the involvement of supportive relatives.

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Section: Discussionmentioning

confidence: 76%

Reconnecting with oneself while struggling between life and death: The phenomenon of recovery as experienced by persons at risk of suicide

Sellin

Asp

Wallsten

et al. 2016

Int J Mental Health Nurs

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“…The ethical and pragmatic problems posed by including suicidal patients in research have contributed to the currently limited research regarding the treatment of high-risk and hospitalized suicidal patients [8]. To understand safety in health care services, information must be obtained from multiple sources, including the patient’s perspective.…”

Section: Introductionmentioning

confidence: 99%

Suicidal patients’ experiences regarding their safety during psychiatric in-patient care: a systematic review of qualitative studies

Berg

Rørtveit

Aase

2017

BMC Health Serv Res

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BackgroundIn-patient suicide prevention is a high priority in many countries, but its practice remains poorly understood. Patients in a suicidal crisis who receive psychiatric care can provide valuable insight into understanding and improving patient safety. The aim of this paper was therefore to summarize the qualitative literature regarding suicidal patients’ in-patient care experiences. The following question guided the review: How can we describe suicidal patients’ experiences regarding safety during psychiatric in-patient care?MethodsSystematic searches were conducted in the MEDLINE, Academic Search Premier, CINAHL, SOCINDEX and PsycINFO databases, identifying 20 qualitative studies on suicidal patients and their psychiatric in-patient care experiences. These studies were systematically reviewed using the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines, synthesized via thematic analysis and subjected to quality appraisals.ResultsPatients described safety as “feeling safe”, and three components, i.e., connection, protection and control, were vital to their experiences of safety. Fulfilling these needs was essential to patients recovering from suicidal crises, feeling safe during encounters with health care professionals and feeling safe from suicidal impulses. Unmet needs for connection, protection and control left patients feeling unsafe and increased their suicidal behaviour.ConclusionOur review addresses the importance of adopting a wider perspective of patient safety than considering safety solely in technical and physical terms. Safety for the suicidal patient is highly dependent on patients’ perceptions of their psychological safety and the fulfilment of their needs. The three patient-identified factors mentioned above – connection, protection and control – should be considered an integral part of patient safety practices and should form the basis of future efforts to understand the safety of suicidal patients during psychiatric in-patient care.Electronic supplementary materialThe online version of this article (doi:10.1186/s12913-017-2023-8) contains supplementary material, which is available to authorized users.

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“…Research with vulnerable people requires particular consideration, and relates to emotional issues and risks 2. Lakeman and FitzGerald3 report findings from a survey of ethics committees whose members were asked about the risks, benefits and ethical problems associated with suicide research. Concerns included access to vulnerable people, potential harm to participants or researchers, researcher competency, maintaining confidentiality, providing support to participants and responding sensitively to family needs.…”

Section: Introductionmentioning

confidence: 99%

Ethical practice in internet research involving vulnerable people: lessons from a self-harm discussion forum study (SharpTalk)

Sharkey

Jones²,

Smithson³

et al. 2011

Journal of Medical Ethics

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The internet is widely used for health information and support, often by vulnerable people. Internet-based research raises both familiar and new ethical problems for researchers and ethics committees. While guidelines for internet-based research are available, it is unclear to what extent ethics committees use these. Experience of gaining research ethics approval for a UK study (SharpTalk), involving internet-based discussion groups with young people who self-harm and health professionals is described. During ethical review, unsurprisingly, concerns were raised about the vulnerability of potential participants. These were dominated by the issue of anonymity, which also affected participant safety and consent. These ethical problems are discussed, and our solutions, which included: participant usernames specific to the study, a closed website, private messaging facilities, a direct contact email to researchers, information about forum rules displayed on the website, a 'report' button for participants, links to online support, and a discussion room for forum moderators. This experience with SharpTalk suggests that an approach to ethics, which recognises the relational aspects of research with vulnerable people, is particularly useful for internet-based health research. The solutions presented here can act as guidance for researchers developing proposals and for ethics committees reviewing them.

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Ethical suicide research: A survey of researchers

Cited by 60 publications

References 17 publications

Reconnecting with oneself while struggling between life and death: The phenomenon of recovery as experienced by persons at risk of suicide

Reconnecting with oneself while struggling between life and death: The phenomenon of recovery as experienced by persons at risk of suicide

Suicidal patients’ experiences regarding their safety during psychiatric in-patient care: a systematic review of qualitative studies

Ethical practice in internet research involving vulnerable people: lessons from a self-harm discussion forum study (SharpTalk)

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