Ethical, legal, and practical concerns about recontacting patients to inform them of new information: The case in medical genetics

Hunter, Alasdair G. W.; Sharpe, Neil F.; Mullen, Michelle A.; Meschino, Wendy S.

doi:10.1002/ajmg.1568

Cited by 56 publications

(23 citation statements)

References 28 publications

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“…Additionally, many practical issues, including liability, exist with implementing a recontact policy. Previous legal decisions have held non-genetics healthcare providers liable for failing to recontact patients regarding potential complications not appreciated at the time of initial treatment [5]. Cancer genetics professionals could potentially be held to a similar standard.…”

Section: Introductionmentioning

confidence: 94%

Patient preferences regarding recontact by cancer genetics clinicians

et al. 2007

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Section: Introductionmentioning

confidence: 94%

Patient preferences regarding recontact by cancer genetics clinicians

et al. 2007

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“…The ‘duty to recontact’ necessitates ‘the communication of new information to a patient concerning a previously rendered service’ [6]. This duty to follow-up is generally restricted to those situations where a physician is responsible for a previously rendered service that requires updates or recontact.…”

Section: A Physician’s General Duty To Update and Recontact Patientsmentioning

confidence: 99%

Physicians’ Duty to Recontact and Update Genetic Advice

Stevens

Senner

Marchant³

2017

Per. Med.

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This perspective addresses whether physicians have a duty to recontact former or current patients to update clinical advice based on newly discovered genomic information. Genetic information is unique compared with other medical data in that the underlying data do not appreciably change during the patients’ lifetime, but the clinical significance of that information will continue to evolve. Based on relevant case law and guidelines, there is no general, established legal duty for physicians to affirmatively recontact former or current patients to update clinical advice based on newly discovered genetic information. However, integration of genomics into clinical practice is advancing quickly, and there may be limited, specific situations where a physician may have a duty to provide updated genetic information.

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“…Therefore, limiting the researchers' obligation to recontact and stating the limit in the informed consent is an acceptable approach; many protocols require follow-up for 5-10 years [16][17][18][19].…”

Section: The Length Of Time Since Testingmentioning

confidence: 99%