Ethical issues in hypoplastic left heart syndrome

Isaacs, David; Kilham, Henry

doi:10.1111/jpc.12382

Cited by 8 publications

(8 citation statements)

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“…Indeed, some would argue that cardiologists and surgeons give too much attention to survival alone and that compassionate care should still be an option for infants with HLHS. 25 Similar arguments were previously made about children with transposition or even Down syndrome. Such issues are challenging and are not unique to infants with heart disease.…”

Section: Ventricular Hypoplasiasupporting

confidence: 65%

“…While survival has improved dramatically, quality of life for many remains far from ideal. Indeed, some would argue that cardiologists and surgeons give too much attention to survival alone and that compassionate care should still be an option for infants with HLHS . Similar arguments were previously made about children with transposition or even Down syndrome.…”

Section: Ventricular Hypoplasiamentioning

confidence: 75%

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Paediatric cardiology: The last 50 years

Richardson

2015

J Paediatrics Child Health

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In the last half-century, the outlook for children with heart disease has changed dramatically. Morphologists have transformed our understanding of heart defects. Improved imaging methods, such as echocardiography, computed tomography and magnetic resonance imaging, have made diagnostic cardiac catheterisation almost redundant. However, interventional catheterisation has flourished as transcatheter procedures have replaced surgery for many lesions. The ability to pharmacologically manipulate the duct has revolutionised the management of the sick neonate with major heart disease. Better surgical techniques, such as deep hypothermia and circulatory arrest, allow repair of lesions in early infancy before irreversible complications develop. Advances in anaesthesia and intensive care have been integral. New sub-disciplines, such as fetal cardiology and electrophysiology, have emerged. The sum of these numerous developments is enormous. Lesions that were previously considered lethal are now routinely treated. Consequently, the great majority of children with major heart disease now reach adulthood in good health.

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Section: Ventricular Hypoplasiasupporting

confidence: 65%

Section: Ventricular Hypoplasiamentioning

confidence: 75%

Paediatric cardiology: The last 50 years

Richardson

2015

J Paediatrics Child Health

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“…However, there is a considerable cost to families of a palliative, non‐curative operation which has a great impact on the child's health and on the parents as well as on current and possible future siblings. It is debatable to what extent the ethical implications of this procedure were considered before the operation was made so widely available …”

mentioning

confidence: 99%

Justice in health spending

Isaacs

2016

J Paediatrics Child Health

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“…In addition, differences in physicians' attitudes regarding optimal EOL care in children with certain diseases are recognized (e.g. spinal muscular atrophy (SMA) type I, hypoplastic left heart syndrome) …”

mentioning

confidence: 99%