Ethical Issues concerning Participants in Community Surveys of Child and Adolescent Mental Disorders

Lépine, Suzanne; Smolla, Nicole

doi:10.1177/070674370004500107

Cited by 6 publications

(2 citation statements)

References 23 publications

(35 reference statements)

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“…These surveys report a high participation rate and thus a low social bias. However, active parental consent procedures may produce deleterious effects on participation rates and under‐representation of at‐risk youth in the sample [4, 5]. In accordance with these points of views, it was estimated that a demand for active parental consent would seriously bias a youth survey about sexual abuse.…”

Section: Introductionmentioning

confidence: 99%

The prevalence of unwanted and unlawful sexual experiences reported by Danish adolescents: Results from a national youth survey in 2002

Helweg‐Larsen

Larsen

2006

Acta Paediatrica

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Section: Introductionmentioning

confidence: 99%

The prevalence of unwanted and unlawful sexual experiences reported by Danish adolescents: Results from a national youth survey in 2002

Helweg‐Larsen

Larsen

2006

Acta Paediatrica

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“…Moreover, adolescents who assent to participate in research studies may be less likely to share personal and sensitive information if they suspect that their responses can be disclosed to their parents [39]. A study of adolescents 12-17 years old showed that fewer adolescents would report suicidal thoughts when told that researchers will share information with parents (1%) than when a promise of confidentiality was required (8%) [20].…”

Section: Discussionmentioning

confidence: 99%

Observational research with adolescents: a framework for the management of the parental permission

et al. 2013

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BackgroundWaiving parent permission can be an option in some epidemiological and social research with adolescents. However, exemptions have not been uniformly considered or applied. Our aim is to critically assess the different factors that could be taken into account when making decisions about waiving active parental permission in observational research with adolescents.DiscussionIn some cases alternatives to parental permission could be applied to protect the rights of both adolescents and parents and also to assure the benefits to adolescents as a group that can come from appropriately conducted studies. However, the criteria of ensuring minimal risk can be difficult to define and apply and a distinction between harm and discomfort is reviewed. Waiving active parental permission could be acceptable when the risk of harm is minimal; when the research questions are related to an activity for which adolescents are not legally considered to be children; when the risk of harm or discomfort may increase if parental permission is required; and when risk of discomfort is low because the questionnaire is not potentially offensive for some adolescents and/or for some parents.SummaryStringent rules concerning parental permission in some studies could be detrimental to adolescents. A framework and a decision tree guide are proposed to help researchers and Research Ethics Committees in their decisions on whether active parental permission must be obtained.

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Ethical Concerns in Carrying Out Surveys of Psychiatric Morbidity

Meltzer

Brugha

2010

Ethics in Psychiatry

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Ethical Issues concerning Participants in Community Surveys of Child and Adolescent Mental Disorders

Cited by 6 publications

References 23 publications

The prevalence of unwanted and unlawful sexual experiences reported by Danish adolescents: Results from a national youth survey in 2002

The prevalence of unwanted and unlawful sexual experiences reported by Danish adolescents: Results from a national youth survey in 2002

Observational research with adolescents: a framework for the management of the parental permission

Ethical Concerns in Carrying Out Surveys of Psychiatric Morbidity

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