Ethical Imperatives for Working With Diverse Populations in Digital Research (Preprint)
Jonathan Herington,
Kay Connelly,
Judy Illes
Abstract:UNSTRUCTURED
Digital research methodologies are driving a revolution in health technology but do not yet fully engage diverse and historically underrepresented populations. In this paper, we explore the ethical imperative for such engagement alongside accompanying challenges related to recruitment, appreciation of risk, and confidentiality, among others. We critically analyze existing research ethics frameworks and find that their reliance on individualistic and autonomy-focused models … Show more
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