Ethical Considerations of Photosensitive Epilepsy in Mixed Reality

South, Laura; Borkin, Michelle A.

doi:10.31219/osf.io/y32td

Cited by 5 publications

(2 citation statements)

References 7 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…The screens we are staring into daily are reshaping our eyes [1]; our backs bend into our devices stretching our spines into new postures [2]; our minds twist to adapt new modes of information processing [3]; all the while our tapping fingers are reshaping our tendons and joints [4,5]. The implantation and ingestion of digital technologies into the body has further expanded the remit of possible technology-related bodily phenomena [6][7][8][9][10][11]. Our psychology and physicality are constantly in flux, moulded by our shifting environment that is evermore defined by digitisation as we carry out dual online and offline lives.…”

Section: Introductionmentioning

confidence: 99%

21st century medicine and emerging biotechnological syndromes: a cross-disciplinary systematic review of novel patient presentations in the age of technology

Straw,

Rees,

Nachev

2023

BMC Digit Health

View full text Add to dashboard Cite

Background Biotechnological syndromes refer to the illnesses that arise at the intersection of human physiology and digital technology. Now that we experience health and illness through so much technology (e.g. wearables, telemedicine, implanted devices), the medium is redefining our expression of symptoms, the observable signs of pathology and the range of diseases that may occur. Here, we systematically review all case reports describing illnesses related to digital technology in the past ten years, in order to identify novel biotechnological syndromes, map out new causal pathways of disease, and identify gaps in care that have disadvantaged a community of patients suffering from these digital complaints. Methods PubMed, MEDLINE, Scopus, Cochrane Library and Web of Science were searched for case reports and case series that described patient cases involving biotechnological syndromes from 01/01/2012 to 01/02/2022. For inclusion the technology had to play a causative role in the disease process and had to be digital (as opposed to simple electronic). Results Our search returned 7742 articles, 1373 duplicates were removed, 671 met the criteria for full review and 372 were included in the results. Results were categorised by specialty, demonstrating that syndromes were most common in Cardiology (n = 162), Microbiology and Infectious Diseases (n = 36), and Emergency and Trauma (n = 26). Discussion The 372 unique patient cases demonstrated a range of severity from mild (e.g., injuries related to Pokemon Go) to moderate (e.g. pacemaker-generated rib fractures) and severe (e.g. ventilator software bugs causing cardiac arrest). Syndromes resulted from both consumer technology (e.g. gaming addictions) and medical technologies (e.g. errors in spinal stimulators). Cases occurred at both the individual level (e.g. faulty insulin pumps) and at the population level (e.g. harm from healthcare cyberattacks). Limitations This was a retrospective systematic review of heterogeneous reports, written in English, which may only reflect a small proportion of true prevalence rates in the population.

show abstract

Section: Introductionmentioning

confidence: 99%

21st century medicine and emerging biotechnological syndromes: a cross-disciplinary systematic review of novel patient presentations in the age of technology

Straw,

Rees,

Nachev

2023

BMC Digit Health

View full text Add to dashboard Cite

show abstract

“…Based on: Barriers to photosensitive accessibility in VR [169] (ACM CHI 2024 Full Paper) and Ethical considerations of photosensitive epilepsy in mixed reality [165] (ACM CHI 2020 Workshop Paper)…”

Section: Immersive Platforms In Virtual Realitymentioning

confidence: 99%

Designing for photosensitive accessibility across social, interactive, and immersive digital platforms

South

View full text Add to dashboard Cite

Photosensitive epilepsy (PSE) is a neurological condition in which seizures are triggered by certain visual stimuli, such as flashes, strobes, or bright patterns. People who have been diagnosed with photosensitive epilepsy often struggle to use digital technology safely, as strobing lights can appear on screens without warning in ways that are difficult to anticipate and avoid. Given the severe medical complications and adverse outcomes associated with seizures, it is fundamental that digital platforms have systems to detect and mitigate seizure-inducing content before it reaches users with photosensitivity. However, detecting seizure-inducing content on digital platforms can be complicated due to variations between technology modalities, unpredictable sources of seizure-inducing flicker, and differences in sensitivity levels among people with PSE. This dissertation examines design considerations for minimizing photosensitive risk in digital spaces that are social, interactive, and even immersive in nature. This work establishes a theoretical foundation for incorporating photosensitive epilepsy into the broader research area of digital accessibility, building on prior work in human-computer interaction research. Through software prototypes and interviews with people with PSE, this work explores the benefits and limitations of creator-, consumer-, and platform-driven systems for detecting and mitigating photosensitive risk across digital platforms. Finally, this work encompasses several empirical studies that contribute to broader knowledge about the prevalence and presentation of seizure-inducing content on digital platforms. am forever grateful for the encouragement and support shown by Bruce Draper and Ross Beveridge in advising my undergraduate thesis efforts on the topic of photosensitive accessibility. I am also grateful to Janne Lindqvist for his advice and guidance while at the DIMACS REU at Rutgers University, which was a formative experience in learning what research can be. I have been lucky to find talented and kind collaborators and peers at Northeastern University and beyond over the past six years: thank you to

show abstract

21st century medicine and emerging biotechnological syndromes: a cross- disciplinary systematic review of novel patient presentations in the age of technology

Straw

Rees

Nachev

2023

Preprint

View full text Add to dashboard Cite

Background Biotechnological syndromes refer to the illnesses that arise at the intersection of human physiology and digital technology. Now that we experience health and illness through so much technology (e.g. wearables, telemedicine, implanted devices), the medium is redefining our expression of symptoms, the observable signs of pathology and the range of diseases that may occur. Here, we systematically review all case reports describing illnesses related to digital technology in the past ten years, in order to identify novel biotechnological syndromes, map out new causal pathways of disease, and identify gaps in care that have disadvantaged a community of patients suffering from these digital complaints. Methods PubMed, MEDLINE, Scopus, Cochrane Library and Web of Science were searched for case reports and case series that described patient cases involving biotechnological syndromes from 01/01/2012 to 01/02/2022. For inclusion the technology had to play a causative role in the disease process and had to be digital (as opposed to simple electronic). Results Our search returned 7742 articles, 1373 duplicates were removed, 671 met the criteria for full review and 372 were included in the results. Results were categorised by specialty, demonstrating that syndromes were most common in Cardiology (n = 162), Microbiology and Infectious Diseases (n = 36), and Emergency and Trauma (n = 26). Discussion The 372 unique patient cases demonstrated a range of severity from mild (e.g., injuries related to Pokemon Go) to moderate (e.g. pacemaker-generated rib fractures) and severe (e.g. ventilator software bugs causing cardiac arrest). Syndromes resulted from both consumer technology (e.g. gaming addictions) and medical technologies (e.g. errors in spinal stimulators). Cases occurred at both the individual level (e.g. faulty insulin pumps) and at the population level (e.g. harm from healthcare cyberattacks). Limitations This was a retrospective systematic review of heterogeneous reports which may only reflect a small proportion of true prevalence rates in the population.

show abstract

Ethical Considerations of Photosensitive Epilepsy in Mixed Reality

Cited by 5 publications

References 7 publications

21st century medicine and emerging biotechnological syndromes: a cross-disciplinary systematic review of novel patient presentations in the age of technology

21st century medicine and emerging biotechnological syndromes: a cross-disciplinary systematic review of novel patient presentations in the age of technology

Designing for photosensitive accessibility across social, interactive, and immersive digital platforms

21st century medicine and emerging biotechnological syndromes: a cross- disciplinary systematic review of novel patient presentations in the age of technology

Contact Info

Product

Resources

About