Ethical considerations of phone-based interviews from three studies of COVID-19 impact in Bihar, India

Abstract

Phone-based interviews present a range of ethical challenges, including how to ensure informed consent and privacy and maintain confidentiality. Our paper presents conceptual and practical ethical considerations taken into account across three telephone studies on the impact of COVID-19 conducted following India’s nationwide lockdown imposed in March 2020. Two studies captured COVID-19 response impact on primary-level Reproductive Maternal Neonatal and Child Health (RMNCH) services and on provider wellness, respectively. The third study focused on how the gendered experience of COVID-19 and the state’s response to control transmission impacted women’s lives, focusing on health services, livelihood, entitlements and social change, by interviewing individual women. The ethical challenges as well as the advantages of digital data collection are presented with recommendations for low-resource settings. Ethical considerations included the above challenges as well as avoiding posing unreasonable time burden on the respondents, framing questions with a gendered lens, considering emotional states given contagion concerns and economic uncertainties, and redressing pandemic-induced distress. Using scripted Hindi was challenging in consent-taking, as was protecting household respondents’ privacy and confidentiality during lockdown. Unanticipated positive ethical implications of using a telephone approach included providing respondents privacy and catharsis, respondents choosing convenient interview times and affording health providers more privacy than institutional inperson interviews. Internalising empathy, respect and appreciative enquiry are key to establishing rapport in the absence of prior relationships. Institutional Review Board (IRB) time limits on call duration need to be flexible to allow for ‘active listening’ and empathetic enquiry in surveys on the impact of COVID-19.

Telephone-Based Structured Communication Simulation Program for the Follow-Up of COVID-19 Cases and Contacts in Primary Care

“…Lastly, telephone-based communication presents a range of ethical challenges. Some of the ethical issues to consider in telehealth, and more specifically in telephone-based communication, are privacy, security, confidentiality, liability, and so forth [ 58 , 59 ]. The positive ethical implications of using a telephone approach included providing respondents privacy, respondents choosing convenient interview times, and affording health providers more privacy than institutional in-person interviews [ 59 ].…”

“…Some of the ethical issues to consider in telehealth, and more specifically in telephone-based communication, are privacy, security, confidentiality, liability, and so forth [ 58 , 59 ]. The positive ethical implications of using a telephone approach included providing respondents privacy, respondents choosing convenient interview times, and affording health providers more privacy than institutional in-person interviews [ 59 ]. These positive aspects coincide with the results of our study, where the time limits on call duration were flexible to allow for active listening and empathetic inquiry.…”

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