Ethical considerations in pediatric neurology

Ronen, Gabriel M.; Dan, Bernard

doi:10.1016/b978-0-444-52891-9.00011-7

Cited by 11 publications

(5 citation statements)

References 26 publications

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“…Moreover, the three critical analyses were published in French scientific journals. While some studies have focused on a more specific category of medical professionals such as neuropediatricians [11], the majority of studies have addressed healthcare professionals in daily contact with patients in PVS/MCS. Those interviewed and/or surveyed have thus been "healthcare professionals", in the sense proposed by Mimouni, i.e., "anyone dealing with the patient, including the psychologist" [12, p.63].…”

Section: Resultsmentioning

confidence: 99%

Patients in permanent vegetative or minimally conscious states: A literature review of the psychological and health impacts on healthcare personnel

Pinel-Jacquemin

Althaus

Boissel

2021

WOR

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BACKGROUND: To address the quality of life of patients in Permanent Vegetative or Minimally Conscious States, the occupational health of those around them must also be taken into account. OBJECTIVE: By analyzing how the available scientific literature has addressed this issue, this study seeks to better understand how caring for these patients affects healthcare professionals’ psychological and health status. METHODS: We identified and selected 15 publications from both Anglophone and Francophone databases, i.e., Cairn, Francis, HAL, PsycINFO, PubMed, ResearchGate and ScienceDirect. RESULTS: The reviewed publications and studies highlight the difficulties healthcare professionals face with regard to the relationship with patients and their families. Two studies in particular suggest that the difficulties these professionals experience daily can lead to burnout. Other potential burnout factors include the healthcare profession category, the work environment, lack of training and the time spent working with this specific group of patients. CONCLUSIONS: Our literature review highlights the institutional and personal resources that may prevent these occupational risks. It also provides avenues for future research.

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Section: Resultsmentioning

confidence: 99%

Patients in permanent vegetative or minimally conscious states: A literature review of the psychological and health impacts on healthcare personnel

Pinel-Jacquemin

Althaus

Boissel

2021

WOR

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“…39 The pediatric neurologist [and team], beyond coaching youth to prepare to enter the adult health care settings, may also take the opportunity to expand the definition of transitional care beyond health care management to incorporate personal, holistic life, and existential questions. 40 Pediatric neurologists (as members of interdisciplinary teams), in acknowledging and respecting youths' choices, values, desires, and decisions 5,41 can offer opportunities to young people to think about, ask about, and articulate broader lifestyle preferences and choices (eg, independent living, higher education, employment, leisure, sexuality). In doing so, they can also seek opportunities to evaluate how youth, like Liz, may understand what they need to do to prepare for the goal, and to help them seek supports and sources of information to address those needs as well.…”

Section: Analysis Using Contextualized Account Of Autonomymentioning

confidence: 99%

Contextualized Autonomy in Transitional Care for Youth With Neurologic Conditions: The Role of the Pediatric Neurologist

2020

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Youth with neurologic conditions experience multiple life transitions. The transfer from pediatric to adult health care systems exemplifies one such complex and multifaceted transition that occurs in parallel with developmental, legal, and social changes that may influence the roles and responsibilities of youth and their caregivers. As a result, ethical situations, questions, and challenges may surface in transition care to which pediatric neurologists may be confronted. In this article, we focus on the topic of autonomy and situations that may arise in transition care in the context of pediatric neurology. Building from a clinical case, we present the concept of contextualized autonomy to work through the questions that arise in the case and propose ways of thinking through those challenging situations in transition care.

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“…7 In addressing some of the ethical issues in the NICU, the goals of specific monitoring, diagnostic tests, treatment, and patient-centered research protocols and the situation of the family who will live with the long term consequences of the day to day decisions made in the care of the infant should be put into consideration. 8 Effective application of ethics to perinatal medicine requires that the clinicians be vast in the fine details of bioethics as related to clinical practice. This review highlights the basic aspects of ethics -the definition of medical ethics, bioethical orientation and the guiding principles of modern bioethics together with analytical level of its applications.…”

Section: Introductionmentioning

confidence: 99%

Ethics in Perinatal Medicine

Adinma¹

2016

Nig. J. Paed.

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Background: The current trend in perinatal medicine addresses the challenge posed to newborn survival by newborn prematurity and other morbidities requiring neonatal newborn intensive care. These ethical concerns span through the spectrum of education, clinical practice and research, domicile in obstetrics and neonatology. Effective application of ethics to perinatal medicine requires basic knowledge bioethics in health care and medical research. Objectives: The objective of the article is to highlight the basic aspects of ethics, review research ethics and practical ethical issues in perinatal medicine and provide an analytical application of the principles involved in bioethics. Methodology: A search for the relevant literature available on the internet, journal publications, textbooks and monographs was conducted Result: The basics of ethics span through the definition of medical ethics, ethical codes and bioethics. It also includes the various bioethical orientations (historical, duty-based, utilitarian, feminist, casuistry, communitarian and virtue orientation), together with the guiding principles of modern bioethics and their levels of application (micro-ethical, macro-ethical, meso-ethical and mega-ethical level). Research ethics developed tremendously during the 20 th century and it was boosted by a number of regulations such as Nuremberg code, CIOMS, Helsinki declaration, Belmont Report and the Nigerian National Code of Health Research Ethics. Ethics in perinatal medicine focus on medical decision making and foeto-maternal conflict as well as the concept of a foetus as a patient and medical futility. It includes prenatal diagnosis and interventions for severe congenital malformations of the foetus, safe mother hood and cord blood collection and newborn care. Conclusion: Bioethics is an important component of perinatal medicine. The consideration and application of bioethics in all aspect of perinatal medicine will undoubtedly improve the quality of care for obstetric patients and their newborn infants.

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Ethical considerations in pediatric neurology

Cited by 11 publications

References 26 publications

Patients in permanent vegetative or minimally conscious states: A literature review of the psychological and health impacts on healthcare personnel

Patients in permanent vegetative or minimally conscious states: A literature review of the psychological and health impacts on healthcare personnel

Contextualized Autonomy in Transitional Care for Youth With Neurologic Conditions: The Role of the Pediatric Neurologist

Ethics in Perinatal Medicine

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