Ethical complexities in child co-research

Spriggs, Merle; Gillam, Lynn

doi:10.1177/1747016117750207

Cited by 24 publications

(18 citation statements)

References 17 publications

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“…Where possible, and appropriate, it may be beneficial to partner with experienced clinicians to seek their advice and support regarding appropriate levels and mechanisms for children’s participation. Furthermore, ongoing reflexive practice and safety and risk assessments would need to guide decision-making to ascertain what level of participation may be most appropriate for each individual child at different points within each given study (Spriggs & Gillam, 2019). Considerations such as age, developmental stage, culture and the individual strengths, challenges and interests of each potential child participant should be taken into consideration when assessing suitable methodologies and methods.…”

Section: Discussionmentioning

confidence: 99%

The Nature and Extent of Qualitative Research Conducted With Children About Their Experiences of Domestic Violence: Findings From a Meta-Synthesis

Noble‐Carr

Moore

McArthur

2019

Trauma, Violence, & Abuse

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Domestic violence is a significant issue experienced by many children that can have a detrimental impact on their health, development, and well-being. This article reports on the findings of a meta-synthesis that examined the nature and extent of qualitative studies conducted with children about their experience of domestic violence. Studies were identified by a search of electronic databases and included gray literature. Studies were included for review if they were published between 1996 and 2016, were from countries considered as comparable Western nations to Australia and available in the English language, and reported on qualitative studies that directly engaged with children under the age of 18 years on their experiences of intimate partner violence involving one or more of their parents/carers. Forty peer-reviewed publications that reported on 32 studies were included for the review. This study was unique in that it included child participation measures to assess the quality of available studies. This article explores the contribution that research with children has made to our understandings of, and responses to, domestic violence, and provides a critique of the limitations and gaps evident in the extant qualitative research with children on the issue of domestic violence. The article considers implications for future research, policy, and practice and in particular focuses our attention on the need to engage more children more fully in participatory research in the field of domestic violence.

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Section: Discussionmentioning

confidence: 99%

The Nature and Extent of Qualitative Research Conducted With Children About Their Experiences of Domestic Violence: Findings From a Meta-Synthesis

Noble‐Carr

Moore

McArthur

2019

Trauma, Violence, & Abuse

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“…Arguably, the greatest challenge that may arise from co‐producing research with young people refers to their need to be protected from harm . It is important that facilitators develop a child protection protocol, tailored to the needs and potential vulnerabilities of their particular group.…”

Section: Running a Meetingmentioning

confidence: 99%

“…57,58 Arguably, the greatest challenge that may arise from co-producing research with young people refers to their need to be protected from harm. [59][60][61] It is important that facilitators develop a child protection protocol, tailored to the needs and potential vulnerabilities of their particular group. For example, in the NeurOx YPAG, partially because many participants had first-hand experience of mental health difficulties, we invited a clinically trained psychologist to attend our initial session.…”

Section: Ta B L E 1 Values and Associated Commitments Agreed Upon By mentioning

confidence: 99%

Co‐producing research with youth: The NeurOx young people's advisory group model

Pavarini

Lorimer

Manzini

et al. 2019

Health Expectations

124

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Context The 1989 UN Convention on the Rights of the Child states that children have the right to be heard in all matters affecting them. The Convention inspired a surge in research that investigates young people's perspectives on health and wellness‐related concerns and that involves children as ‘co‐researchers'. Young people's advisory groups (YPAGs) are a widely used method to enable young people's involvement in all research stages, but there is a lack of academic literature to guide researchers on how to set up, run and evaluate the impact of such groups. Objective In this paper, we provide a step‐by‐step model, grounded in our own experience of setting up and coordinating the Oxford Neuroscience, Ethics and Society Young People's Advisory Group (NeurOx YPAG). This group supports studies at the intersection of ethics, mental health and novel technologies. Our model covers the following stages: deciding on the fit for co‐production, recruiting participants, developing collective principles of work, running a meeting and evaluating impact. Results We emphasize that throughout this process, researchers should take a critical stance by reflecting on whether a co‐production model fits their research scope and aims; ensuring (or aspiring to) representativeness within the group; valuing different kinds of expertise; and undertaking on‐going evaluations on the impact of the group on both the young people and the research. Conclusion Adopting a critical and reflective attitude can increase researchers' capacity to engage youth in democratic and inclusive ways, and to produce research outputs that are aligned with the target audience's needs and priorities.

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“…It must, of course, be remembered that child co-research or child-led research is not free from ethical complexities. For instance, child co-researchers may be exposed to distressing information during the research process, researchers might take advantage of children's relationships, or child co-researchers might pressure other children to take part in the research (Spriggs and Gillam, 2019).…”

Section: Discussionmentioning

confidence: 99%

Participation as a methodological and ethical issue in child protection research

Kiili

Moilanen

2019

JCS

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Purpose The purpose of this paper is to explore how children have been involved in research activities in recent international child protection research and what kinds of ethical and methodological decisions are made by researchers regarding children’s participation. Design/methodology/approach In the paper, the complexity of children’s participation in research activities is analysed through an integrative literature review. Findings Children’s right to self-determination and the right to make informed decisions were the most challenging ethical principles to implement in practice. The study shows that researchers usually decide on the research design, and child welfare professionals and parents assess the eligibility of the children as research subjects. Originality/value More ethical reflection and critical discussion on the rights that adults, both parents and professionals, have in deciding the involvement of children in research activities is required.

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Ethical complexities in child co-research

Cited by 24 publications

References 17 publications

The Nature and Extent of Qualitative Research Conducted With Children About Their Experiences of Domestic Violence: Findings From a Meta-Synthesis

The Nature and Extent of Qualitative Research Conducted With Children About Their Experiences of Domestic Violence: Findings From a Meta-Synthesis

Co‐producing research with youth: The NeurOx young people's advisory group model

Participation as a methodological and ethical issue in child protection research

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