Establishment of a sustainable newborn TSH-screening program in the People's Democratic Republic of Laos

Vesaphong, Phommady; Lindemuth, Lea; Istaz, Bastienne; Kedsatha, Philavanh; Saysanasongkham, Bounnack; Hoehn, Thomas

doi:10.1016/j.earlhumdev.2021.105306

Cited by 2 publications

(2 citation statements)

References 7 publications

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“…In some countries, NBS may not appear to exist, but its availability from international screening laboratories may mean that a limited number are receiving the service anyway. Reviews of NBS activities in India, Malaysia, and Vietnam provide examples of some of the APAC NBS issues [7][8][9] .…”

Section: Introductionmentioning

confidence: 99%

Overcoming challenges in sustaining newborn screening in low-middle-income countries: the Philippine newborn screening system

Padilla,

Abadingo,

Munda

et al. 2023

Rare Dis Orphan Drugs J

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Newborn screening (NBS) was introduced in the Philippines in 1996, and the Newborn Screening Act of 2004 mandated its provision to all Filipino newborns. The program initially covered five conditions and has expanded to the current panel of 29 conditions. This report focuses on the steps taken for successful NBS implementation and the challenges that must be overcome to make NBS sustainable. While often considered a public health program, NBS is really a system of interacting parts that must be carefully considered and planned prior to embarking on their implementation. The basic challenges are the same in both high-income and low-middle-income countries (LMICs), but they are more difficult to overcome in LMICs. In addition to the technical aspects of screening, including supplies and maintenance, considerations must include human resources, professional and public education, and government support. Challenges may occur at any point in implementation and continuation, and it is important to learn from the experiences of others in order to make the process more efficient. Here, we report on the experiences in one LMIC, the Philippines, in creating and sustaining a NBS system so that others may gain from these experiences.

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Section: Introductionmentioning

confidence: 99%

Overcoming challenges in sustaining newborn screening in low-middle-income countries: the Philippine newborn screening system

Padilla,

Abadingo,

Munda

et al. 2023

Rare Dis Orphan Drugs J

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“…In 2019, the German group once again assisted with initiation of NBS, but limited to CH. Local laboratory capability was established, workshops were held for health personnel, and screening was again established[579]. Screening with financial support from Else Kröner-Fresenius-Stiftung, a German foundation, is scheduled to continue through 2024 after which time it will require local support[580].• Macau SAR, China-NBS for G6PD began in 1977 and since then it has expanded slowly in collaboration with other programs, including the Shanghai Xinhua Hospital NBS laboratory.…”

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confidence: 99%

Current Status of Newborn Bloodspot Screening Worldwide 2024: A Comprehensive Review of Recent Activities (2020–2023)

Therrell,

Padilla,

Borrajo

et al. 2024

IJNS

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Newborn bloodspot screening (NBS) began in the early 1960s based on the work of Dr. Robert “Bob” Guthrie in Buffalo, NY, USA. His development of a screening test for phenylketonuria on blood absorbed onto a special filter paper and transported to a remote testing laboratory began it all. Expansion of NBS to large numbers of asymptomatic congenital conditions flourishes in many settings while it has not yet been realized in others. The need for NBS as an efficient and effective public health prevention strategy that contributes to lowered morbidity and mortality wherever it is sustained is well known in the medical field but not necessarily by political policy makers. Acknowledging the value of national NBS reports published in 2007, the authors collaborated to create a worldwide NBS update in 2015. In a continuing attempt to review the progress of NBS globally, and to move towards a more harmonized and equitable screening system, we have updated our 2015 report with information available at the beginning of 2024. Reports on sub-Saharan Africa and the Caribbean, missing in 2015, have been included. Tables popular in the previous report have been updated with an eye towards harmonized comparisons. To emphasize areas needing attention globally, we have used regional tables containing similar listings of conditions screened, numbers of screening laboratories, and time at which specimen collection is recommended. Discussions are limited to bloodspot screening.

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Establishment of a sustainable newborn TSH-screening program in the People's Democratic Republic of Laos

Cited by 2 publications

References 7 publications

Overcoming challenges in sustaining newborn screening in low-middle-income countries: the Philippine newborn screening system

Overcoming challenges in sustaining newborn screening in low-middle-income countries: the Philippine newborn screening system

Current Status of Newborn Bloodspot Screening Worldwide 2024: A Comprehensive Review of Recent Activities (2020–2023)

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