Establishing the Need for Anticipatory Symptom Guidance and Networked Models of Disease in Adaptive Family Management Among Children With Medical Complexity: Qualitative Study (Preprint)
Jessica Keim-Malpass,
Christopher Lunsford,
Lisa C Letzkus
et al.
Abstract:BACKGROUND
Caregivers of children with medical complexity (CMC) navigate complex family management tasks for their child both in the hospital and home-based setting. The roles and relationships of members of their social network and the dynamic evolution of these family management tasks have been underexamined.
OBJECTIVE
The purpose of this study was to explore the structures and processes of … Show more
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