Establishing Childhood Cancer Registry Status in 3 Pediatric Oncology Units of Pakistan - A Low Middle Income Country

Mr, Raza; Maqsood, Saad; Ma, Hongbing; Za, Rana; Arif, Aqsa; Hamid, Husnain; Ms, Ashraf

doi:10.47690/swjcst.2021.1201

Cited by 1 publication

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“…In the time period studied, leukemias(33%) were most commonly seen, followed by CNS tumors (17.8%) and lymphomas(11%); this proportion corresponds to Globocan's estimates for the most common childhood cancers-leukemia and CNS tumors accounted for 45% of cases and 57% deaths according to the 2018 report 7 . Patterns of site-wise case distribution are also somewhat similar within Pakistan-data from a study reporting pediatric cancer cases from 3 centers within Pakistan between 2016 and 2018 also showed a male predominance and leukemia, lymphomas and retinoblastomas as the top three cancers 9 . The Punjab Cancer Registry, which collects cancer incidence from 27 collaborating centers within Punjab province reported acute lymphoblastic leukemia, glioma and Hodgkins lymphoma as the most commonly occurring childhood cancers in 2020 10 .…”

Section: Discussionmentioning

confidence: 75%

Trends in Pediatric Cancers over 10 years from a Hospital based Registry in Pakistan

Ali,

Pervaiz,

Ashfaque

et al. 2024

Preprint

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BACKGROUND: In the absence of population based cancer registries, hospital records can only highlight the importance of collection and analysis of data to address the burden of cancer among children. For this purpose, a hospital-based registry’s pediatric cancer data (individuals aged 0-18 at diagnosis) from 2010 to 2019 was compiled and analyzed at AKUH in Karachi, Pakistan. METHODS: A paper-based system is used to record all interactions with patients at the hospital. A dedicated team of Cancer Registrars transcribe this data onto a US based registry software; CNExT. Registry data was extracted through software generated reports and compiled for analysis. RESULTS: The total number of children presented at our center was 2,694, out of which 1,673 were males while 1,021 were females. Top 5 sites were bone marrow (n=887), central nervous system (n=481), lymphoid tumors (n=294) bone (n=255) and soft tissues (n=145). All other sites contributed to 632 cases, 23.5% of the total patient population. Furthermore, 806 patients were aged 0-4, 627 were aged 5-9, 684 were aged 10-14 while 966 patients were 15-19 years old.. A consistent increase of 210% was noted during the 10-year period. CONCLUSION: Our database analysis shows that the top cancer sites are consistent with other databases around the world. Increase in numbers may reflect awareness and referral pattern emphasizing the need for capacity building at the national level to accommodate patients locally so families don’t have to travel over provincial and international borders to receive treatment.

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Section: Discussionmentioning

confidence: 75%