Establishing and Maintaining Couple Relationships as Perceived by Couples with Intellectual Disabilities: Implications for Families, Support Staff, and Policy Change

Neuman, Ran

doi:10.1111/jppi.12329

Cited by 5 publications

(15 citation statements)

References 26 publications

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“…They also show the compensatory role of love in the face of unpleasant interpersonal relationships experienced in the past (Bates et al, 2016). The sexual experiences, desires, needs and thought of people with ID presented in the studies have a lot in common with behaviors typical of non-disabled people (Black & Kammes, 2019;Neuman, 2020). This confirms the assumption that positive experiences in relationships, such as love, intimacy and others, are the source of people with ID life normalization.…”

Section: Discussionsupporting

confidence: 69%

“…The analyzed perspective included the previous, current and planned experiences of the respondents. Only a few analyses were carried out with the participation of both partners (Lafferty et al, 2013;Neuman, 2020). The following general and specific aspects were identified: 1) Establishing relationships: preferences and choosing a partner, phases of creating a relationship (Bates et al, 2017;Neuman, 2020).…”

Section: Problem Analysismentioning

confidence: 99%

“…2) The essence of partnerships: emotional bonds, love; joint activity; mutual support and help, partner autonomy, respect, trust, the role of communication (Kelly et al, 2009;Neuman, 2020;Rojas et al, 2014;Rushbrooke et al, 2014) 3) The importance of partnership relations: the need to be in a relationship, perceiving positive personal development, sense of pride, normality (Bane et al, 2012;Bates et al, 2016;Healy et al, 2009;Lafferty et al, 2013;Rushbrooke et al, 2014). 4) Love: understanding, desire for love and experiencing love; the importance of love for the quality of life; love as the source of empowerment (Arias et al, 2009;Bates et al, 2016;Ćwirynkało & Żyta, 2019;Mattila et al, 2017;Morales et al, 2015).…”

Section: Problem Analysismentioning

confidence: 99%

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Sexuality of People with Intellectual Disabilities: A Proposal to use the Positive Sexuality Model

Parchomiuk

2021

Sexuality & Culture

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The aim of this research was to determine the trends in the field of analyzing positive aspects of sexuality of people with intellectual disabilities (ID). In relation to these findings, the possibilities of applying the model of positive sexuality were presented. A literature search covering studies published between 1980 and 2020 was conducted. 19 studies were included. Researchers focus on partnerships, mainly heterosexual ones, associated experiences, plans and ideas. The results show that people with ID are able to report on experiences accompanying relationships and their depiction is relatively rich. People who do not have such experiences expect them in the future, treating them as a very important aspect of life. Referring to the model of positive sexuality, the areas of research in the population of people with intellectual disability were specified, and the theoretical justification of the model, general methodological aspects and practical usefulness were provided.

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Section: Discussionsupporting

confidence: 69%

Section: Problem Analysismentioning

confidence: 99%

Section: Problem Analysismentioning

confidence: 99%

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Sexuality of People with Intellectual Disabilities: A Proposal to use the Positive Sexuality Model

Parchomiuk

2021

Sexuality & Culture

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“…One of the challenges parents face when their child with intellectual disabilities reach adulthood relates to their interest in interpersonal relationships in general and in couple relationships in particular (Neuman, 2017). Most research with regard to parents' perceptions of couple relationships involving their adult children with intellectual disabilities focuses on the sexual aspect of close and intimate relationships and their fears of unwanted pregnancy or sexual abuse (Cuskelly, Bryde, & Centre, 2004;Evans, McGuire, Healy, & Carley, 2009;Garbutt, Boycott-Garnett, Tattersall, & Dunn, 2010;Haynes, 2016;Hollomotz, Speak, & up Committee, 2008;Pownall et al, 2012).…”

Section: Introductionmentioning

confidence: 99%

“…Some studies have also found parents expressing fear and doubt about their children's ability to form relationships, make reasonable choices regarding romantic partners, manage sexual desires and make appropriate decisions about family planning (Haynes, 2016;Pownall et al, 2012). These negative perceptions may help explain the finding that adults with intellectual disabilities seldom regard their parents as a source of support in creating and maintaining couple relationships (Neuman, 2017).…”

Section: Introductionmentioning

confidence: 99%

Parents' perceptions regarding couple relationships of their adult children with intellectual disabilities

Neuman

2019

Research Intellect Disabil

Self Cite

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Background: A particular challenge facing parents of children with intellectual disabilities occurs when their adult children with intellectual disabilities has an interest in pursuing couple relationships. This study explores parents' perceptions regarding the nature of couple relationships, the right of their adult children with intellectual disabilities to pursue such relationships, the difficulties their children encounter and their own role in providing support.Method: Interviews were conducted with 30 parents of adults with intellectual disabilities who had left home for independent and semi-independent living arrangements. A thematic content analysis was conducted.

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Couples with intellectual disability where one partner has dementia – a scoping review exploring relationships in the context of dementia and intellectual disability

Jacobs

Watchman²,

Wilkinson³

et al. 2023

Ageing and Society

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Relationships and marriages between couples with intellectual disability are to be celebrated, as is the longer life expectancy now enjoyed by many with intellectual disability. However, dementia disproportionately affects people with intellectual disability, especially people with Down's syndrome. Research into experiences of couples without intellectual disability who are affected by dementia suggests that a relational perspective provides health and social care professionals with information to support the wellbeing of both partners. This dyadic perspective is missing for couples with an intellectual disability where one partner has dementia. There is currently no evidence base informing how each partner may best be supported. This scoping review, with three separate searches, aims to address this gap. The first search sought to establish if any studies had explored the experiences of couples with intellectual disability where one partner has dementia. After determining that no studies have been published to date, the review explores what is known about relationships in the context of dementia (N = 8) and in the context of intellectual disability (N = 10), in second and third searches. Different ways to approach care and support in relationships among partners, staff and other family members were identified and it was evident that support could act as a facilitator as well as a barrier to people and their relationships. While the lives of couples affected by dementia appeared to remain largely private, couples with intellectual disability had a high involvement of staff and family members in their life. Potential implications for future research with couples with intellectual disability affected by dementia are discussed, highlighting the importance of exploring how couples navigate emotional complexities and changes in their relationship, while understanding that the context in which the lives of people with intellectual disability take place and relationships happen is different.

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Establishing and Maintaining Couple Relationships as Perceived by Couples with Intellectual Disabilities: Implications for Families, Support Staff, and Policy Change

Cited by 5 publications

References 26 publications

Sexuality of People with Intellectual Disabilities: A Proposal to use the Positive Sexuality Model

Sexuality of People with Intellectual Disabilities: A Proposal to use the Positive Sexuality Model

Parents' perceptions regarding couple relationships of their adult children with intellectual disabilities

Couples with intellectual disability where one partner has dementia – a scoping review exploring relationships in the context of dementia and intellectual disability

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