Establishing a Patient Navigator Program to Reduce Cancer Disparities in the American Indian Communities of Western South Dakota: Initial Observations and Results

Petereit, Daniel G.; Molloy, Kevin; Reiner, Mary; Helbig, Petra; Cina, Kristin; Miner, Raylene; Tail, Caroline Spotted; Rost, Catherine A; Conroy, Patricia C.; Roberts, Clifford R.

doi:10.1177/107327480801500309

Cited by 77 publications

(110 citation statements)

References 10 publications

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“…First Nations People, M etit and Inuit living in Nunavut must travel a minimum of 2000 km by air to receive specialty care [26]. This geographical barrier and the requirements of transportation and temporary housing fall are analogous to that in LMICs [27].…”

Section: 'Global Health' Needed Within Highincome Countriesmentioning

confidence: 99%

“…Walking Forward is a superb example of a multifaceted programme that was developed through funding from the National Cancer Institute's Cancer Disparities Research Partnership. Through an emphasis on cancer education, patient navigation and clinical trial participation, Walking Forward addresses the barriers that prevent Lakota Sioux in the region surrounding Rapid City, South Dakota from being diagnosed with cancer at earlier stages and achieving optimal cancer outcomes [27,28]. To overcome deeply engrained mistrust of clinical trials, Walking Forward works with tribal councils, develops culturally sensitive consents, translates trial information into Lakota, and has created local employment opportunities for culturally competent staff members, many of whom grew up and still live on the reservations.…”

Section: 'Global Health' Needed Within Highincome Countriesmentioning

confidence: 99%

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Mobilising Expertise and Resources to Close the Radiotherapy Gap in Cancer Care

et al. 2017

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Closing the gap in cancer care within low-and middle-income countries and in indigenous and geographically isolated populations in high-income countries requires investment and innovation. This is particularly true for radiotherapy, for which the global disparity is one of the largest in healthcare today. New models and paradigms and non-traditional collaborations have been proposed to improve global equity in cancer control. We describe recent initiatives from within the radiation oncology community to increase access to treatment, build the low-and middle-income countries' radiation oncology workforce, mobilise more professionals from within high-income countries and raise awareness of the global need for equitable cancer care.

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Section: 'Global Health' Needed Within Highincome Countriesmentioning

confidence: 99%

Section: 'Global Health' Needed Within Highincome Countriesmentioning

confidence: 99%

Mobilising Expertise and Resources to Close the Radiotherapy Gap in Cancer Care

et al. 2017

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“…3,[14][15][16][17][18] The program employed community-based PN to deliver culturally appropriate community education about the value of screening and early detection and research. These PN played an important cultural role in developing a rapport with the community and reducing resistance to community engagement in clinical care and research activities.…”

Section: E92 Lj Whop Et Almentioning

confidence: 99%

“…18 Participants undergoing cancer treatment received around $1000 to assist with food, transportation and lodging. 15 Participants undergoing treatment had on average 15 (range 1 to 95) interactions with the PN and participants in the post-treatment follow-up phase of care received on average four (range 1-26) PN interactions. 15 A PN interaction was defined as a person-to-person contact or telephone call.…”

Section: E92 Lj Whop Et Almentioning

confidence: 99%

Navigating the cancer journey: A review of patient navigator programs for Indigenous cancer patients

Whop

Valery

Beesley

et al. 2012

Asia-Pac J Clncl Oncology

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Patient navigator programs have evolved to facilitate access to care and improve outcomes for Indigenous cancer patients. We reviewed the scientific literature on patient navigator programs in Indigenous people with cancer. We conducted a review of the published literature up to 13 April 2011. PubMed, MEDLINE and CINAHL databases were searched for original articles on Indigenous patient navigation programs. The review produced eight relevant articles covering two specific programs, the Native Sisters Program and the Walking Forward Program. Program descriptions, patient navigator's roles, cultural aspects and the impact of the programs were described. Patient navigators' roles in the programs varied, as did their qualifications, but importantly, all were Indigenous. Both programs aimed to increase participation in screening, remove barriers to treatment and decrease mortality. The Native Sisters Program documented an increase in adherence to breast screening among navigated American Indian participants, although there were substantial differences in the baseline screening adherence between navigated and non-navigated participants. The Walking Forward Program yielded on average 3 fewer days of treatment delays for navigated American Indians than for non-navigated American Indians. However, adjustments for socioeconomic characteristics and disease characteristics were not described. Although preliminary outcomes are seemingly positive, further rigorous evaluation of quantitative impacts are needed.

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“…A review of patient navigator programmes for Indigenous patients (Whop et al, 2012) identified two programmes, Native Sisters Program and Walking Forward Program, that have positively contributed to improve outcomes to patients by increasing adherence to breast screening and reducing delays to treatment. While several Patient Navigation interventions (Burhansstipanov et al, 1998;Kanekar & Petereit, 2009;Petereit et al, 2008) have been implemented, only a few have been evaluated through randomised clinical trials (RCTs), and have included Indigenous cancer patients (Braun et al, 2015;Dignan et al, 2005).…”

Section: Introductionmentioning

confidence: 99%

Lessons learned from a pilot study of an Indigenous patient navigator intervention in Queensland, Australia

et al. 2017

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Indigenous patient navigator (IPN) programmes show promise in addressing barriers to cancer care and facilitation of patient self‐efficacy. The purpose of this paper is to describe and reflect upon the experience of training an IPN and implementation of the intervention in the Australian context with Indigenous cancer patients. Randomised clinical trial might provide the best available evaluation measure of an intervention but caution should be taken in the implementation process. Socio‐cultural aspects and training can affect the conduct of this type of intervention. We report here five issues needing consideration prior to implementing such intervention. Specifically: (1) recognition of the collective bonds within Indigenous community and understanding by IPN of the degree of personal assistance perceived as not intrusive by the patient; (2) conduct ongoing evaluation of the different role of an IPN involved in this intervention care provider vs. researcher. (3) meaningful engagement develops from a trusting/collaborative relationship between research team and study site staff which may not occur in the study time frame; (4) existing skills as well as training provided may not translate in the IPN understanding and aligning with the study objectives/research values; (5) recruitment of participants requires innovative and highly flexible strategies to be successful.

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Establishing a Patient Navigator Program to Reduce Cancer Disparities in the American Indian Communities of Western South Dakota: Initial Observations and Results

Cited by 77 publications

References 10 publications

Mobilising Expertise and Resources to Close the Radiotherapy Gap in Cancer Care

Mobilising Expertise and Resources to Close the Radiotherapy Gap in Cancer Care

Navigating the cancer journey: A review of patient navigator programs for Indigenous cancer patients

Lessons learned from a pilot study of an Indigenous patient navigator intervention in Queensland, Australia

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