Establishing a BMT support group

Abstract

References1 Takeda S, Ito K, Sakura T et al. Three AML patients with existing or pre-existing intracerebral granulocytic sarcomas who were successfully treated with allogeneic bone marrow transplantation. Bone Marrow Transplant 1999; 23: 731-734. 2 Oehmichen M, Domasch D, Wietholter H. Origin, proliferation, and fate of cerebrospinal fluid cells. A review on cerebrospinal fluid cell kinetics. J Neurol 1982; 227: 145-150. 3 Coriat AM, Muller U, Harry JL et al. PCR amplification of SRY-related gene sequences reveals evolutionary conservation of the SRY-box motif. PCR Meth Appl 1993; 2: 218-222.

Dialogue Among Survivors of Hematopoietic Cell Transplantation

“…Is a mixture of ages included? For example, some institutions do not permit pediatric and young chil-Sherman, Cooke, and Grant 17 dren to be in the same group as adults (Marks and Benjamin, 2000). Are caregivers included, not included, and/or is there a separate group for caregivers?…”

“…In establishing a support group for a group of BMT patients, Marks and Benjamin (2000) reported that their group wanted to meet somewhere other than the hospital. This may not always be feasible if funding for such a resource is not available.…”

“…Beginning on time, defining the length of the session, and ending promptly are important considerations. Most groups last from 1 to 2 hours with the longer period available for groups who meet less frequently (e.g., every three months) (Marks and Benjamin, 2000;Spira, 1998). Selection of topics to be discussed is a function of the group, with facilitators/leaders fostering a non-judgmental approach and identifying the need for outside speakers for specific topics.…”

Prospective analysis of the attendance behaviour of the participants of a facilitated support group for patients after allogeneic hematopoietic cell transplantation

“…For patients with solid tumours or chronic diseases, support groups have emerged over the past three decades as a successful tool for coping with the evolving stress associated with the disease and/or diagnostic or therapeutic procedures [ 25 – 28 ]. However, scientific data on support groups for HCT survivors are scarce [ 10 , 11 , 29 – 32 ]. With this prospective study, we report on establishing a support group for patients after allogeneic HCT.…”

“…Scientific data on support groups for these patients are scarce. More than 20 years ago, Marks and Benjamin reported on the establishment of a support group for patients after allogeneic HCT [ 10 ]. Lounsberry et al published a feasibility study of a telehealth-delivered psychoeducational support group for patients after allogeneic HCT in 2010 [ 11 ].…”