Essential knowledge for family caregivers: a qualitative study

Angelo, Jennifer; Egan, Richard; Reid, Kate

doi:10.12968/ijpn.2013.19.8.383

Cited by 27 publications

(28 citation statements)

References 28 publications

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“…Knowledge of the symptoms [14,16,19,20] that may be present in a certain disease is also a focal point that was mentioned by the caregivers in the studies analyzed, especially when the disease has a large diversity of symptoms that need to be recognized and controlled [11,14,15,19].…”

Section: Caregiver Knowledge and Skillsmentioning

confidence: 99%

“…Information needs also are found with the anticipation of care [11,14,15,19], i.e. what the prognosis and the progress of the health status of their family member is.…”

Section: Caregiver Knowledge and Skillsmentioning

confidence: 99%

“…In addition to knowledge, caregivers feel the need for training to develop skills to perform the role of a care provider [11,13,16,18], since they do not always feel able to provide all of the necessary care.…”

Section: Caregiver Knowledge and Skillsmentioning

confidence: 99%

“…The way in which these skills can be learned or trained requires a prior needs assessment by professionals [20], so that psycho-educational programs or other measures within the scope of providing information or learning are appropriate for caregivers [11,12,16,18,21].…”

Section: Caregiver Knowledge and Skillsmentioning

confidence: 99%

“…This situation leads them to stress the need for such support caregiver programs to be available in the form of educational programs that can be more generic in content and in the recipients since certain situations and contexts are common to many caregivers, but also specifically directed to each of the caregivers according to their specific needs and preferences [11,18,21].…”

Section: Potential Caregiver Resourcesmentioning

confidence: 99%

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Information needs of family caregivers of dependent individuals

Neves¹,

Sequeira²,

Lleixà-Fortuño³

et al. 2017

IJCNMH

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The increase in the number of dependent individuals means that more and more families find themselves in the situation of caregivers, with all the consequences that performing this role entails. Based on this reality, we considered it to be completely relevant to systematize knowledge in this area. This study aimed to identify the information needs of the family caregiver-dependent individuals in the available scientific literature, having performed an integrative review of the literature. The main results and conclusions indicate that the information needs of family caregivers can be grouped into three main themes: 1) caregiver knowledge and skills, 2) potential resources for the caregiver and 3) caregiver coping strategies and well-being. The comprehensive nature of the integrative review as the chosen method allowed us to get a good understanding of the information needs of family caregivers of dependent individuals. The relevance of this study to clinical practice is that, although it is still necessary to expand and enhance the scope of research in this area, we consider this information essential for all health professionals seeking to provide effective support to family caregivers, as well as to serve as support for the development of intervention projects and health services.

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Section: Caregiver Knowledge and Skillsmentioning

confidence: 99%

“…Information needs also are found with the anticipation of care [11,14,15,19], i.e. what the prognosis and the progress of the health status of their family member is.…”

Section: Caregiver Knowledge and Skillsmentioning

confidence: 99%

Section: Caregiver Knowledge and Skillsmentioning

confidence: 99%

Section: Caregiver Knowledge and Skillsmentioning

confidence: 99%

Section: Potential Caregiver Resourcesmentioning

confidence: 99%

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Information needs of family caregivers of dependent individuals

Neves¹,

Sequeira²,

Lleixà-Fortuño³

et al. 2017

IJCNMH

View full text Add to dashboard Cite

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Benefits of Chinese family caregivers of patients with urostomy: a qualitative study

Han,

Liu,

Shang

et al. 2024

Support Care Cancer

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Caregivers of patients with malignant pleural mesothelioma: who provides care, what care do they provide and what burden do they experience?

et al. 2023

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Purpose There are limited data on the impact of caregiving for patients with malignant pleural mesothelioma (MPM) on the caregiver. We aimed to identify the demographic characteristics of these caregivers, the caregiving activities they perform and how caregiving burden impacts their work productivity and overall activity. Methods This cross-sectional study collected data from caregivers of patients with MPM across France, Italy, Spain and the United Kingdom January-June 2019. Caregiver demographics, daily caregiving tasks and the impact of caregiving on physical health was collected via questionnaire. The Zarit Burden Interview (ZBI) was used to assess caregiver burden and the Work Productivity and Activity Impairment questionnaire (WPAI) assessed impairment at work and during daily activities. Analyses were descriptive. Results Overall, 291 caregivers provided data. Caregivers were mostly female (83%), living with the patient (82%) and their partner/spouse (71%). Caregivers provided over five hours of daily emotional/physical support to patients. ZBI scores indicated 74% of caregivers were at risk of developing depression. Employed caregivers had missed 12% of work in the past seven days, with considerable presenteeism (25%) and overall work impairment (33%) observed. Overall, the mean activity impairment was 40%. Conclusion Caregivers provide essential care for those with MPM. We show caregiving for patients with MPM involves a range of burdensome tasks that impact caregivers’ emotional health and work reflected in ZBI and WPAI scores. Innovations in the management of MPM must account for how caregivers may be impacted and can be supported to carry out this important role.

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Essential knowledge for family caregivers: a qualitative study

Cited by 27 publications

References 28 publications

Information needs of family caregivers of dependent individuals

Information needs of family caregivers of dependent individuals

Benefits of Chinese family caregivers of patients with urostomy: a qualitative study

Caregivers of patients with malignant pleural mesothelioma: who provides care, what care do they provide and what burden do they experience?

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