Erratum

Abstract

Survival following pediatric heart transplantation (HTx) continues to improve. The transition from pediatric to adult care is becoming a pivotal stage in the ongoing medical management of this population. Published data support enhanced outcomes for adolescent patients with increased attention to transitional care. The purpose of this study was to explore the 'transition experience' of adolescent HTx recipients and families.All teens (12-18 years) and parents at a singlecenter HTx program were invited to participate in semistructured interviews. Qualitative, phenomenological methodology was used to build theoretical knowledge and guided the data collection and analysis. The study population included 14 patients (7 males) with a mean age of 15.7 ± 1.8 years (11.7-17.8 years) and at a mean of 4.1 ± 3.3 years post-HTx (0.3-9.2 years) at the time of study participation. Major themes identified included: (i) adolescent disinterest and apathy regarding transition to adult care versus parental anxiety about their child's eventual departure from the pediatric transplant center, (ii) perceived differences in pediatric versus adult care and (iii) identification of strategies described as helpful in facilitating the transition. Understanding the experiences and perceptions of adolescent HTx recipients and their parents is crucial to planning effective transitional care and necessary for evidenced-based practice.

Transition of care: What Is the pediatric hospitalist's role? An exploratory survey of current attitudes

“…1 Transition is the purposeful planned movement of adolescents and young adults with chronic medical conditions and disabilities from pediatric (child-centered) to adult-oriented providers and facilities. 2 The 2005-2006 National Survey of Children with SHCN identified 4 component measures of transition which included discussions between the patient and the healthcare provider about: 1) shifting to adult providers, 2) adult healthcare needs, 3) health insurance, and 4) encouraging the patient to take responsibility for his/her care. [3][4] Overall, only 41% of youth with SHCN met the core outcomes.…”

“…Transition is defined as the purposeful planned movement of adolescents and young adults, with chronic medical conditions and disabilities, from pediatric (child-centered) to adult-oriented providers and facilities. 2 …”

Adolescents’ and young adults’ transition experiences when transferring from paediatric to adult care: A qualitative metasynthesis

“…The adult-care provider might have little knowledge about the transferred patient's condition, making the young adult worried about not receiving the right level of care (Tuchman et al, 2008). They tired of retelling their life story and described the transition as being in no man's land (Anthony et al, 2009, Patterson and Lanier, 1999, Valenzuela et al, 2011.…”

“…Patients and families find it hard to leave the familiar paediatric environment (Alpay, 2009, Anthony et al, 2009, Rutishauser et al, 2011, health-care professionals in paediatric settings express mixed feelings about relinquishing responsibility for patients (Clarizia et al, 2009), and staff on adult wards are not always properly prepared to receive the transferred young patients (Peter et al, 2009, Rapley and Davidson, 2010, Suris et al, 2009.…”

The life experience of parents of Congenital Heart Disease adolescents: A meta-synthesis

“…Therefore, the continuous experience of contradictions lived by parents during the transition phase of the adolescents affected by CHD is the main underpinning the meta-synthesis. Nevertheless, parents and adolescents may have different perceptions: parents could typically be anxious, whereas adolescents display a wait-and-see attitude [22,23]. A detailed description of new four themes are presented in the following sections, supported by data from the original studies.…”