Erratum to: When parents face the death of their child: a nationwide cross-sectional survey of parental perspectives on their child’s end-of life care

Zimmermann, Karin; Bergstraesser, Eva; Engberg, Sandra; Ramelet, Anne‐Sylvie; Marfurt-Russenberger, Katrin; Weid, Nicolas von der; Grandjean, Chantal; Fahrni-Nater, Patricia; Cignacco, Eva

doi:10.1186/s12904-017-0188-x

Cited by 3 publications

(3 citation statements)

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“…This study also showed that compliance with European guidelines resulted in increased test scores. 115 …”

Section: Resultsmentioning

confidence: 99%

“…Only 43.9% of Japanese medical schools have compulsory palliative care sessions, while 30.3% have no clinical clerkship curriculum at all. 116 Teaching in Thailand revealed a lack of coping management skills when caring for palliative care patients while at least one school in India has no cancer education program at all. 117 Egyptian medical education showed a national public health based approach to cancer education which even requires completion of a community service project, however it lacks standardized training in cancer education and prevention.…”

Section: Resultsmentioning

confidence: 99%

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<p>A Thorough Analysis of the Current State of Cancer Education in Medical Schools and Application of Experimental Teaching Techniques and Their Efficacy</p>

Klufas¹,

Shin²,

Raphael³

et al. 2020

AMEP

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Newly diagnosed cases of cancer are expected to double by the year 2040. Although many different oncology teaching initiatives have been implemented, many students continue to report uncertainty when dealing with patients with cancer. Through this review, we aim to find the most effective teaching methods to better prepare future physicians. Papers studying different methods of teaching oncology were identified through a thorough review of specific electronic databases. Each study was analyzed and sorted into one of ten unique categories created by the authors specifically for this review. If portions of the study fit into multiple categories, relevant results would be analyzed in all applicable areas. Additionally, papers were separated and analyzed by country of origin, preclinical or clinical interventional basis, and quantitative versus qualitative form of statistical analysis. A total of 115 papers from 26 different countries and regions were included in the final analysis. 91.4% of papers analyzing Lecture and Small Group Discussions indicated a positive impact. 97.1% of papers analyzing Clinical Practice and Simulation indicated a positive impact. 100% of papers analyzing Early Experience and Mentorship, Summer Programs and Voluntary Electives, use of Multidisciplinary Teams, and Role Play stated that these methods had a positive impact. 50% of papers analyzing Computer/Web Based Programs indicated a positive impact. Clinical Practice and Simulation, Role Play, Summer/Elective Programs and interventions involving Multidisciplinary Team Work all appeared to be most effective. Intensive Block Programs, Didactic Lectures/Small Group Discussions, and Computer/Web Based Education tools as a whole were variable. General Review papers showed continued variability in domestic and international oncology curricula. Incorporation of effective teaching interventions should be highly considered in the future creation of standardized oncology curricula in order to best prepare the next generation of physicians. Future studies could explore the differing efficacies of teaching interventions in the postgraduate versus graduate realms.

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“…This study also showed that compliance with European guidelines resulted in increased test scores. 115 …”

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

<p>A Thorough Analysis of the Current State of Cancer Education in Medical Schools and Application of Experimental Teaching Techniques and Their Efficacy</p>

Klufas¹,

Shin²,

Raphael³

et al. 2020

AMEP

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“…Similarly, previous studies demonstrated that the care burden of mothers was quite high. [25][26][27][28] It has been stated that it is not easy for parents to transfer their responsibilities to someone else. 27 Home care teams and social support systems should be well coordinated in order to support the family and the home care needs of children who are dependent on medical technology.…”

Section: Discussionmentioning

confidence: 99%

Determining the Difficulties of Parents with Children in Home Care Who Were Discharged from Intensive Care

Bozkurt,

Sönmez Düzkaya,

Uysal

et al. 2024

cayd

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The end-of-life trajectory in childhood cancer: Bereaved parents’ perceptions of the availability, use, and helpfulness of support services

Bedoya

Battles

Gerhardt

et al. 2021

Journal of Psychosocial Oncology Research &Amp; Practice

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Background: The provision of bereavement support for parents is a recognized tenet of end of life (EoL) care, yet there is a knowledge gap concerning how and when health care providers can best provide this. To better understand bereaved parents’ perspectives, the present study examined what supportive interventions parents reported to be available, utilized, and found helpful based on their experiences at the medical institution where their child received care. They also identified the types of supportive interventions they felt were needed both before and after the death of their child and when along the cancer trajectory parents felt these services should be made available. Methods: Parents whose child died from cancer or complications of cancer treatment were invited to complete a survey through a closed social media (Facebook) group. The survey was developed by pediatric psychosocial oncology professionals with input from bereaved parent advocates. The survey was designed to gather retrospective reports of EoL support services offered and utilized. Descriptive information about reports of services available, services utilized, and services found to be helpful is reported. χ 2 analyses were utilized to compare availability, utilization, and helpfulness by cancer type and child's age at death. Results: One hundred seventy-eight parents of children aged 0 to 37 years at death (median age 12 years) participated. Most reported their care institutions to have availability of palliative care support (67.4%, n = 91), spiritual/religious support (n = 83, 61.9%), resource materials (n = 82, 60.7%), counseling for the child (n = 82, 59.0%), and advance care planning (n = 65, 50.0%). All parents who utilized assistance with food/beverages at bedside, funeral planning and legacy building found it to be helpful, with other services (ie, palliative care, advance care planning, counseling for child/family, among others) also rated as highly helpful (>75%). Most bereaved parents perceived a need for supportive interventions, particularly during the EoL experience, whereas about half reported a desire for services after the death of their child. Bereaved parents felt these services should be offered to the entire family, including the patient. Some services (eg, supportive counseling for parents, child, and siblings) were desired from diagnosis onward, whereas others (eg, advance care planning, discussions of location of death) were preferred if the disease was not responsive to treatment. Thematic analysis of open-ended responses of services that would have been helpful elicited a desire for treatment navigation, ongoing support/communication from the healthcare team, financial help, support for the child (both counseling and integrative therapies), meals, counseling (for the family and those impacted by the child's death in their community), legacy options, connection with other families, information about tissue donation, and grief support after the death of their child. Conclusions: Most bereaved parents utilized the supportive interventions provided to them by the healthcare team during their child's EoL care and reported finding them helpful. Additional services, not offered or available, were also desired, particularly during the EoL experience, and after the death of their child. These findings are consistent with guidance from evidence-based standards of care which promote early integration of palliative care and continuity of care after the death of a child. Provision of a variety of services may be beneficial to families both before and after their child's death, but additional research is needed to inform timing and how to best tailor these services to the family.

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Erratum to: When parents face the death of their child: a nationwide cross-sectional survey of parental perspectives on their child’s end-of life care

Abstract: During production of the original article [1], Additional file 2 of this article was linked to an incorrect document. Instead of the complete item list of the PaPEQu as the authors submitted it, it was a STROBE checklist. The correct additional file has been included with this erratum.

Cited by 3 publications

References 1 publication

<p>A Thorough Analysis of the Current State of Cancer Education in Medical Schools and Application of Experimental Teaching Techniques and Their Efficacy</p>

<p>A Thorough Analysis of the Current State of Cancer Education in Medical Schools and Application of Experimental Teaching Techniques and Their Efficacy</p>

Determining the Difficulties of Parents with Children in Home Care Who Were Discharged from Intensive Care

The end-of-life trajectory in childhood cancer: Bereaved parents’ perceptions of the availability, use, and helpfulness of support services

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