Erratum to: Diagnosis and treatment of patients with antiphospholipid syndrome: a mixed-method evaluation of care in The Netherlands

Haneveld, Mirthe J Klein; Lemmen, Caro H C; Brunekreef, Tammo; Bijl, Marc; Jansen, A.J. Gerard; Leeuw, Karina de; Spierings, Julia; Limper, Maarten

doi:10.1093/rap/rkab028

Cited by 2 publications

(7 citation statements)

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“…55 Moreover, mindfulness-based interventions and those that incorporate opportunities for peer mentoring and engagement may help to mitigate negative mental health symptoms, such as depression and isolation. 4,56,57 Despite the lack of evidence specific for APS, it seems likely that involving rehabilitation professionals in the management of APS patients may help to mitigate symptom burden. The field of rehabilitation specializes in designing, evaluating, and delivering non-pharmacological interventions to patients with diagnoses and symptoms that span the spectrum of disease and illness across the lifespan.…”

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

“…2,3 APS has the potential to affect numerous organs including the central nervous system, heart, kidneys, liver, and skin. Beyond affecting the ability to complete daily activities, 4 the result is a variety of additional neurological (e.g., cognitive impairment) and physical (e.g., chorea, impaired balance) symptoms and challenges that may not be entirely explained by discrete thrombotic or obstetric events alone. [5][6][7][8][9][10] For example, cognitive deficits were reported in 40%-80% of individuals in one literature review of primary APS.…”

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confidence: 99%

“…22 Moreover, patients with primary APS have reported a desire for non-pharmacological interventions to manage their health beyond the thrombotic risk following their diagnosis. 4 Thus, there needs to be a comprehensive and multidisciplinary approach to managing APS and mitigating its negative impact on health outcomes.…”

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confidence: 99%

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Non-pharmacological rehabilitation interventions for individuals with antiphospholipid syndrome: A scoping review

Harper,

Chen,

Tancer

et al. 2023

Lupus

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Objective The objective of this study was to explore what non-pharmacological interventions have been examined for individuals with antiphospholipid syndrome (APS). Methods We conducted a systematic literature search of the databases PubMed, Embase, Scopus, Web of Science, CINAHL, and ClinicalTrials.gov from 1983–Feb. 2023. Our scoping review included studies that examined non-pharmacological interventions for individuals with APS using patient-reported outcome measures. We excluded studies that reported physiological outcomes only. Results The review yielded one case study on the safety and efficacy of an exercise program for a 15-year-old male with secondary APS using physiological and patient-reported outcome measures. Despite the lack of evidence of non-pharmacological interventions for individuals with APS, one excluded study reported that individuals with APS want guidance about physical activity and exercise. We also found several types of potentially relevant non-pharmacological interventions for individuals with lupus, a disease that often co-occurs with APS. Conclusions Non-pharmacological interventions may offer a solution for addressing some non-thrombotic or non-obstetric APS symptoms, such as neurological, physical, and cognitive symptoms that are not well-controlled by anticoagulation. Due to the unique risks associated with APS, research is needed to determine the safety and efficacy of non-pharmacological interventions, particularly those involving exercise. Adopting a comprehensive, multidisciplinary approach to managing patients with APS and involving rehabilitation professionals, who are experts in the design and delivery of non-pharmacological interventions, may provide a foundation for developing and testing novel interventions that improve health outcomes while also fulfilling unmet needs reported by patients.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

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confidence: 99%

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Non-pharmacological rehabilitation interventions for individuals with antiphospholipid syndrome: A scoping review

Harper,

Chen,

Tancer

et al. 2023

Lupus

View full text Add to dashboard Cite

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“…heparin followed by oral warfarin who are pregnant, often during the first trimester. 13 Other pregnancy complications that can occur are eclampsia, preeclampsia, and placental insufficiency. 4 Obstetric APS is the most frequent acquired risk factor for treatable causes of recurrent miscarriage and is a significant health burden for childbearing individuals.…”

Section: Medication Category Summary Examplesmentioning

confidence: 99%