Erfassung der Lebensqualität in der Onkologie

Bullinger, Monika; Petersen, Corinna; Mehnert, Anja

doi:10.1007/3-540-30036-8_29

Cited by 3 publications

(3 citation statements)

References 33 publications

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“…This describes a multidimensional concept that focuses on the patient's subjective perceptions about the effects of illness and the impact of treatment on their daily life, including the physical, psychological, and social burden on the patient [7]. Although the QoL has become increasingly important, there is no gold standard available to assess it [8][9][10]. The QoL is mainly measured via questionnaires, indices, or patient diaries.…”

Section: Quality Of Life and Cancermentioning

confidence: 99%

User-Centered Development of a Mobile App to Assess the Quality of Life of Patients With Cancer: Iterative Investigation and Usability Testing

Beutter,

Zeller,

Martens

et al. 2023

JMIR Cancer

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Background The treatment for cancer can have a negative impact not only on physical well-being but also on mental health and the quality of life (QoL). Health apps enable the monitoring of different parameters, but to date, there are only few that support patients with cancer and none that focuses on the assessment of QoL. Furthermore, patients as stakeholders are often only integrated at the late stage of the development process, if at all. Objective The aim of this research was to develop and evaluate a smartphone app (Lion-App) to enable patients with cancer to autonomously measure the QoL with an iterative, user-centered approach. Methods Patients with cancer were involved in a 3-stage process from conceptualization to the point when the app was available on the tester’s private device. First, focus groups with members (N=21) of cancer support groups were conducted to understand their expectations and needs. Thereafter, individual tests were performed. After developing a prototype that incorporated findings from the focus groups, a second test cycle was conducted, followed by a beta test lasting 2 months. In our app, the QoL can be assessed via a patient diary and an integrated questionnaire. Through all stages, usability was evaluated using the modular extended version of the User Experience Questionnaire (UEQ+), including the calculation of a key performance indicator (KPI). If possible, the impact of sex on the results was evaluated. As part of the beta test, usage rates as well as age-dependent differences were also assessed. Results A total of 21 participants took part in the initial 3 focus groups. In the subsequent usability testing (N=18), 17 (94%) participants rated their impression through the UEQ+, with a mean KPI of 2.12 (SD 0.64, range: –3 to 3). In the second usability test (N=14), the mean KPI increased to 2.28 (SD=0.49). In the beta test, the usage rate of 19 participants was evaluated, of whom 14 (74%) also answered the UEQ+ (mean KPI 1.78, SD 0.84). An influence of age on the number of questionnaire responses in Lion-App was observed, with a decrease in responses with increasing age (P=.02). Sex-dependent analyses were only possible for the first usability test and the beta test. The main adjustments based on user feedback were a restructuring of the diary as well as integration of a shorter questionnaire to assess the QoL. Conclusions The iterative, user-centered approach for development and usability testing resulted in positive evaluations of Lion-App. Our app was rated as suitable for everyday use to monitor the QoL of patients with cancer. Initial results indicated that the sex and age of participants seem to play only a minor role.

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Section: Quality Of Life and Cancermentioning

confidence: 99%

User-Centered Development of a Mobile App to Assess the Quality of Life of Patients With Cancer: Iterative Investigation and Usability Testing

Beutter,

Zeller,

Martens

et al. 2023

JMIR Cancer

View full text Add to dashboard Cite

show abstract

“…Bei der Erfassung der gesundheitsbezogenen Lebensqualität sollten, in Anlehnung an das Modell der funktionalen Gesundheit der WHO, der Gesundheitszustand, Körperfunktionen und -strukturen, Aktivitäten, Partizipation, Umweltfaktoren und persönliche Faktoren berücksichtigt werden, welche sich wechselseitig aufeinander auswirken [Bullinger et al 2006].…”

Section: Lebensqualität In Der Onkologieunclassified

“…Die vorhandenen Messinstrumente der Lebensqualität lassen sich nach folgenden Aspekten klassifizieren [Bullinger et al 2006]:…”

Section: Messinstrumente Der Lebensqualitätunclassified