Epilepsy: knowledge and attitudes of physiotherapists, occupational therapists, and speech therapists

Hackel, Katharina; Neininger, Martina Patrizia; Kieß, Wieland; Bertsche, Thilo; Bertsche, Astrid

doi:10.1007/s00431-019-03437-1

Cited by 9 publications

(6 citation statements)

References 18 publications

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“…Therefore, they felt that a physician should provide the patients with detailed information about the condition during the first conversation about epilepsy. This finding was in accordance with previous studies that show that many gaps in the knowledge about epilepsy exist 17–19 . It means that the physicians cannot presume any prior knowledge and they need to proceed in small steps and have sufficient time for this.…”

Section: Discussionsupporting

confidence: 92%

“…This finding was in accordance with previous studies that show that many gaps in the knowledge about epilepsy exist. [17][18][19] It means that the physicians cannot presume any prior knowledge and they need to proceed in small steps and have sufficient time for this. It can be helpful to start by asking the parents and patients if they already know anything about epilepsy.…”

Section: Discussionmentioning

confidence: 99%

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Interviews with patients aged 6–17 years provide valuable insights for physicians who need to deliver an epilepsy diagnosis

et al. 2020

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Aim Meeting children's needs when communicating an epilepsy diagnosis can have a large impact on their treatment. We investigated children's experiences and wishes concerning their first conversation about epilepsy. Methods This prospective study was performed in the neuropaediatric departments of two German university hospitals from 2 October 2018 to 12 April 2019. The semi‐structured interview contained open questions, and multiple answers were allowed. Results We interviewed 101 patients (57 male) aged 6–17 (median 11) years and asked them to put themselves in the place of a physician delivering an epilepsy diagnosis. They said they would be careful and friendly and consider the children's feelings (29%), give them detailed information about their condition (29%) and reduce their fears and offer hope (26%). They would tell them the importance of always taking their medication and explain why (25%), make sure that the conversation took place in a comfortable setting (21%), explain any safety precautions (19%), keep the conversation straightforward and provide examples (16%). Conclusion Children with epilepsy provided concrete recommendations for physicians delivering an epilepsy diagnosis, with regard to the ideal setting, important topics and optimal communication. The recommendations could help physicians meet children's needs.

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Section: Discussionsupporting

confidence: 92%

Section: Discussionmentioning

confidence: 99%

Interviews with patients aged 6–17 years provide valuable insights for physicians who need to deliver an epilepsy diagnosis

et al. 2020

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“…The result of the present study is not in agreement with that of Hackel and colleagues [24] which indicated that there was insufficient knowledge about epilepsy among rehabilitation professionals. In addition, Harimanana and Co-workers assessed knowledge of epilepsy on 284 medical health staff (Registered Nurses and physicians) of Lao People's Democratic Republic (PDR).…”

Section: General Knowledge About Epilepsycontrasting

confidence: 99%

“…The findings of the present study corroborates with that of Hackel et al [24] about the knowledge and attitude of rehabilitation professionals in children with epilepsy which indicated that majority of the therapists who treated patients with epilepsy also witnessed epileptic seizures in one occasion or another. Similar to our findings is the study of Sureka and colleagues [20] which studied knowledge, attitude and practices of health-care professionals in the management of epilepsy in a tertiary care center in Rajasthan, India.…”

Section: Current Practice About Exercise and Physical Activity In The Rehabilitation Of Children With Epilepsysupporting

confidence: 92%

Knowledge and current practices of physiotherapists on the physical activity and exercise in the rehabilitation of children with epileptic seizures

Yakasai

Danazumi

Zakari

et al. 2020

Epilepsy & Behavior

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Background: Physiotherapists play a key role in the rehabilitation of children with epileptic seizures. Regular physical exercise generates psychological and physiological benefits for people with epilepsy.Design: This study was a cross-sectional design.Purpose: The purpose of this study was to evaluate the knowledge and current practices of Physiotherapists on the physical activity and exercise in the rehabilitation of children with epileptic seizures in Nigeria.Methods: Physiotherapists with minimum Bachelor's degrees were invited to participate in the study using an electronic questionnaire. The subjects (N=117) answered a questionnaire comprising 33 simple closed-ended questions with three domain personal information, knowledge, and current practices.

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“…That is all the more important since children with epilepsy already feel impaired by their disease itself [10]. This negative impact on the patients' quality of life was also observed by physiotherapists, occupational therapists, and speech therapists [13]. Some children describe a negative impact on their body shape.…”

Section: Burden Of Experienced Adesmentioning

confidence: 92%

How do pediatric patients perceive adverse drug events of anticonvulsant drugs? A survey

et al. 2020

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Anticonvulsant drugs have a high risk of adverse drug events. Little is known about the perception of those events by pediatric patients. We performed a survey in the neuropediatric departments of two university hospitals. Using a questionnaire, we interviewed patients aged 6-18 years with current anticonvulsant treatment regarding (i) their fears about potential adverse drug events, (ii) experienced adverse drug events, and (iii) perceived burden of experienced adverse drug events. One hundred patients took part in the interview. (i) 40 (40%) expressed fears that the medication could harm them. Eighteen of 40 (45%) named fears concerning specific adverse drug events. Of those, 12/18 (67%) feared neurologic or psychiatric symptoms. (ii) 37 (37%) of children described altogether 60 experienced adverse drug events. Of those, 38 (63%) concerned neurologic or psychiatric symptoms. (iii) 32/37 (82%) children who experienced adverse drug events felt bothered by the experienced event. Among others, they described an emotional burden (11/37, 30%), and restrictions in school performance (8/37, 22%) and favorite leisure activities (4/37, 11%). Conclusion: School-aged children are well able to describe adverse drug events of their anticonvulsant medication. Almost two thirds of the described events concern neurologic or psychiatric symptoms that cause an emotional burden and restrictions according to the patients. What is Known: • Anticonvulsants have a high potential of adverse drug events. • In an earlier survey, parents expressed fears of severe adverse drug events such as liver failure, which seldom occur, and reported a high number of neurological and psychological adverse drug events. What is New: • Many children fear that their anticonvulsants could harm them, and they fear and experience neurological and psychological adverse drug events. • According to the children, adverse drug events cause an emotional burden and restrictions in school performance and favorite leisure activities.

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Epilepsy: knowledge and attitudes of physiotherapists, occupational therapists, and speech therapists

Cited by 9 publications

References 18 publications

Interviews with patients aged 6–17 years provide valuable insights for physicians who need to deliver an epilepsy diagnosis

Interviews with patients aged 6–17 years provide valuable insights for physicians who need to deliver an epilepsy diagnosis

Knowledge and current practices of physiotherapists on the physical activity and exercise in the rehabilitation of children with epileptic seizures

How do pediatric patients perceive adverse drug events of anticonvulsant drugs? A survey

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