Entwicklung und Validierung eines Fragebogens zur Messung des Empowerments bei erwachsenen Patienten mit atopischer Dermatitis. Der DATEMP‐Fragebogen

SummaryBackgroundTREATgermany, a registry for patients with moderate to severe atopic dermatitis (AD), established an additional questionnaire in spring 2020 to investigate the effects of the coronavirus pandemic on the daily life of patients with AD.Material and MethodsA questionnaire was used to analyze general information regarding a patient’s experience of the coronavirus pandemic and, using the Inventory of Life‐Changing Events, the resulting personal burden. To analyze possible associations between disease severity (EASI score, oSCORAD, IGA, PGA, POEM), quality of life (DLQI) and personal burden, t‐tests, analyses of variance and correlations were evaluated, controlled for sex and age.Results58 % (n = 233) of the included 400 registry patients reported high burden scores caused by the coronavirus pandemic, regardless of an actual infection. Men showed significantly higher burden scores than women, and younger than older respondents (both P = 0.03). There were no differences in burden scores related to the physician’s assessment of disease severity. However, patients with higher quality of life impairments and higher disease severity perceived the burden of the coronavirus pandemic as less severe (DLQI P = 0.019, PGA P = 0.044).ConclusionsOur data show that registry patients considered the coronavirus pandemic as a life‐changing event and perceived the burden differently. This should be taken into account in the treatment of patients with moderate to severe AD as well as in further studies.

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Perception of the coronavirus pandemic by patients with atopic dermatitis – Results from the TREATgermany registry

Helmert

Siegels

Haufe

et al. 2021

J Deutsche Derma Gesell

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Wahrnehmung der Corona‐Pandemie durch Neurodermitispatienten – Ergebnisse aus dem Neurodermitisregister TREATgermany

Helmert¹,

Siegels²,

Haufe³

et al. 2022

J Deutsche Derma Gesell

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Seit dem Frühjahr 2020 sind weite Teile des gesellschaftlichen Lebens in Deutschland von den Auswirkungen der Corona-Pandemie betroffen. Um dem Pandemiegeschehen entgegenzuwirken, wurden umfassende Maßnahmen, wie die Corona-Schutz-Verordnung (CoronaSchV 2021) [1] und Änderungen des Infektionsschutzgesetzes (IfSG 2021, 2000) [2, 3] durch die Bundes-beziehungsweise Länderregierungen beschlossen, welche Abstands-und Hygieneregeln, Zusammenfassung Hintergrund: TREATgermany, ein Register für Patienten mit moderater bis schwerer atopischer Dermatitis (AD), etablierte im Frühjahr 2020 einen zusätzlichen Fragebogen, um Auswirkungen der Corona-Pandemie auf die Lebenssituation von Patienten mit AD zu untersuchen. Methodik: Anhand eines Fragebogens wurden allgemeine Informationen zum Erleben der Corona-Pandemie und, unter Anwendung des Inventars lebensverändernder Ereignisse, die resultierenden Belastungen der Patienten untersucht. Zur Analyse möglicher Assoziationen zwischen Erkrankungsschwere (EASI-Score, oSCORAD, IGA, PGA, POEM), Lebensqualität (DLQI) und persönlichen Belastungen wurden t-Tests, Varianzanalysen und Korrelationen kontrolliert nach Geschlecht und Alter genutzt. Ergebnisse: 58 % (N = 233) der einbezogenen 400 Registerpatienten berichteten eine hohe Belastung durch die Corona-Pandemie, unabhängig von einer tatsächlichen Infektion. Männer zeigten signifikant höhere Belastungswerte als Frauen sowie jüngere höhere als ältere Befragte (jeweils P = 0,03). Es gab keine Unterschiede der Belastungswerte bezogen auf die ärztliche Beurteilung der Erkrankungsschwere. Jedoch reflektierten Patienten mit höherer Einschränkung der Lebensqualität und ausgeprägterer Krankheitslast die Belastung durch die Corona-Pandemie als weniger hoch (DLQI P = 0,019, PGA P = 0,044). Schlussfolgerungen: Es konnte gezeigt werden, dass die Registerpatienten die Corona-Pandemie als lebensveränderndes Ereignis reflektieren und die Belastung unterschiedlich wahrnehmen. Dies sollte sowohl bei der Behandlung von Patienten mit moderater bis schwerer AD berücksichtigt als auch in weiterführenden Untersuchungen vertieft werden.

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Proposal of a self‐assessment questionnaire for the diagnosis of sensitive skin

Corazza

Guarneri

Montesi

et al. 2021

J of Cosmetic Dermatology

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Background Sensitive skin is very common and distressing. Its diagnosis may be difficult with the tools/methods available at the moment. Aims To assess the reliability of a self‐assessment questionnaire for the diagnosis of sensitive skin, using the results of lactic acid stinging test (LAST) as a reference for the identification of subjects suffering from this condition. A further objective was to identify the questionnaire cutoff score that better discriminates between subjects with or without sensitive skin. Patients/methods Among the adult volunteers included in this observational, cross‐sectional study, both LAST‐positive subjects, who were considered as having sensitive skin (“patients”), and negative ones (“controls”) completed the questionnaire. It consisted of a part for self‐assessing and quantifying (0–10) sensitive skin and another one that included 10 items, each referring to a specific, potentially triggering stimulus. A cumulative score (questionnaire‐based skin sensitivity score, 0–10) was calculated from the sum of all items considered capable of triggering unpleasant skin sensations in real‐life experience. Results One hundred and sixty‐two subjects were enrolled, 102 patients and 60 controls; 98 subjects thought they had sensitive skin. The mean questionnaire‐based skin sensitivity score was significantly higher among patients than controls and correlated with skin sensitivity self‐assessments. A cutoff value of 3 was set for the identification of LAST‐positive subjects, with 79% accuracy. Conclusions The study self‐assessment questionnaire seems to be a reliable tool for diagnosing sensitive skin in clinical practice. These results led us to identify a numerical cutoff for detecting propensity to experience sensitive skin.

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Entwicklung und Validierung eines Fragebogens zur Messung des Empowerments bei erwachsenen Patienten mit atopischer Dermatitis. Der DATEMP‐Fragebogen

Cited by 3 publications

References 29 publications

Perception of the coronavirus pandemic by patients with atopic dermatitis – Results from the TREATgermany registry

Perception of the coronavirus pandemic by patients with atopic dermatitis – Results from the TREATgermany registry

Wahrnehmung der Corona‐Pandemie durch Neurodermitispatienten – Ergebnisse aus dem Neurodermitisregister TREATgermany

Proposal of a self‐assessment questionnaire for the diagnosis of sensitive skin

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