Enhancing Stewardship of Community-Engaged Research Through Governance

Oetzel, John; Villegas, Malia; Zenone, Heather; Wallerstein, Nina; Duran, Bonnie

doi:10.2105/ajph.2014.302457

Cited by 59 publications

(75 citation statements)

References 29 publications

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“…We use this whakataukī to illustrate the need to ground interventions in the community co-developed and supported by the status and self-determination of community members. CE and CEnR are advocated for by indigenous and non-indigenous researchers, community members, and public health practitioners working with indigenous communities as a method for improving health and achieving health equity [ 52 – 54 ]. CE is a process of collaborating with groups directly affected by a particular health issue or with groups who are working with those affected [ 55 ].…”

Section: Theoretical Foundationmentioning

confidence: 99%

“…CE and CEnR involve clinicians, researchers, and policy makers working with communities rather than introducing top-down interventions. This approach enables co-created interventions to enhance implementation effectiveness and sustainability [ 52 , 71 ]. Further, a CBPR approach guided by a conceptual model has strong support for outcomes related to health equity [ 18 , 57 , 109 , 110 ].…”

Section: Implications and Conclusionmentioning

confidence: 99%

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Implementation framework for chronic disease intervention effectiveness in Māori and other indigenous communities

et al. 2017

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Background: About 40% of all health burden in New Zealand is due to cancer, cardiovascular disease, and type 2 diabetes/obesity. Outcomes for Māori (indigenous people) are significantly worse than non-Maori; these inequities mirror those found in indigenous communities elsewhere. Evidence-based interventions with established efficacy may not be effective in indigenous communities without addressing specific implementation challenges. We present an implementation framework for interventions to prevent and treat chronic conditions for Māori and other indigenous communities. Theoretical framework: The He Pikinga Waiora Implementation Framework has indigenous self-determination at its core and consists of four elements: cultural-centeredness, community engagement, systems thinking, and integrated knowledge translation. All elements have conceptual fit with Kaupapa Māori aspirations (i.e., indigenous knowledge creation, theorizing, and methodology) and all have demonstrated evidence of positive implementation outcomes.

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Section: Theoretical Foundationmentioning

confidence: 99%

Section: Implications and Conclusionmentioning

confidence: 99%

Implementation framework for chronic disease intervention effectiveness in Māori and other indigenous communities

et al. 2017

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“…In the U.S., strategies employed by, or that can be used by tribes and others, include advocating that federal government and other entities collect and analyze data more frequently (Cross et al, 2004;DeWeaver, 2013;Freemantle et al, 2015); creating meaningful partnerships and data sharing agreements with other governments (including other tribes) and data collection entities (Cross et al, 2004;DeWeaver, 2013;Freemantle et al, 2015;Tribal Epidemiology Centers, 2013); stewarding research through tribal institutional review boards and research regulations including data sharing agreements (Cross et al, 2004;Oetzel et al, 2015;Snipp, 2016); engaging the community in defining information needs and data indicators (Cross et al, 2004;Knudson et al, 2012;Oetzel et al, 2015;Red Star Innovations, 2013); and identifying needs and planning for the effective collection, management, and use of data at the tribal level as an essential part of everyday governance (Cross et al, 2004;DeWeaver, 2013).…”

Section: Tribal Innovationsmentioning

confidence: 99%

Data as a Strategic Resource: Self-determination, Governance, and the Data Challenge for Indigenous Nations in the United States

Carroll

Schultz

Briggs

et al. 2017

iipj

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Data about Indigenous populations in the United States are inconsistent and irrelevant. Federal and state governments and researchers direct most collection, analysis, and use of data about U.S. Indigenous populations. Indigenous Peoples' justified mistrust further complicates the collection and use of these data. Nonetheless, tribal leaders and communities depend on these data to inform decision making. Reliance on data that do not reflect tribal needs, priorities, and self-conceptions threatens tribal self-determination. Tribal data sovereignty through governance of data on Indigenous populations is long overdue. This article provides two case studies of the Ysleta del Sur Pueblo and Cheyenne River Sioux Tribe and their demographic and socioeconomic data initiatives to create locally and culturally relevant data for decision making.

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“…A mission may or may not generate a positive financial margin for the medical school or AHS, but each medical school mission positively contributes to improving society [26], and its value should be considered on multiple levels. For CE, there are measurements that have been described on a project basis and the factors that contribute to partnership success (context, trust, reciprocity, power dynamics, bi-directional communication, others) have been established [5,[27][28][29][30]. Although some institutions have taken the initiative to document and catalog the extent of their CE activities [16,18,31], it is uncommon among AHSs or medical schools to have a deep understanding of the types and number of CE activities that occur in their institution [4,16,25,32].…”

mentioning

confidence: 99%

Measuring institutional community engagement: Adding value to academic health systems

Ahmed

Young

DeFino³

et al. 2019

J. Clin. Trans. Sci.

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Beyond medical schools’ historical focus on pillar missions including clinical care, education, and research, several medical schools now include community engagement (CE) as a mission. However, most academic health systems (AHSs) lack the tools to provide metrics, evaluation, and standardization for quantifying progress and contributions of the CE mission. Several nationwide initiatives, such as that driven by the Institute of Medicine recommending advances in CE metrics at institutions receiving Clinical and Translational Science Awards, have encouraged the research and development of systematic metrics for CE, but more progress is needed. The CE components practical model provides a foundation for analyzing and evaluating different types of CE activities at AHSs through five components: research, education, community outreach and community service, policy and advocacy, and clinical care. At the Medical College of Wisconsin (MCW), an annual survey administered to faculty and staff assessed the types and number of CE activities from the prior year. Survey results were combined to create a CE report for departments across the institution and inform MCW leadership. Insights gathered from the survey have contributed to next steps in CE tracking and evaluation, including the development of a CE dashboard to track CE activities in real time. The dashboard provides resources for how individuals can advance the CE mission through their work and guide CE at the institutional level.

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Enhancing Stewardship of Community-Engaged Research Through Governance

Cited by 59 publications

References 29 publications

Implementation framework for chronic disease intervention effectiveness in Māori and other indigenous communities

Implementation framework for chronic disease intervention effectiveness in Māori and other indigenous communities

Data as a Strategic Resource: Self-determination, Governance, and the Data Challenge for Indigenous Nations in the United States

Measuring institutional community engagement: Adding value to academic health systems

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