Enhancing physical well-being and overall quality of life among underserved Latina-American cervical cancer survivors: feasibility study

Ashing-Giwa, Kimlin T.

doi:10.1007/s11764-008-0061-2

Cited by 32 publications

(66 citation statements)

References 64 publications

(116 reference statements)

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“…Three studies focused on the re‐entry phase alone while one focused on watchful waiting for prostate cancer and another on long‐term survivorship . Only one screened on the basis of psychosocial need, showing positive intervention effects .…”

Section: Resultsmentioning

confidence: 97%

Psychosocial telephone interventions for patients with cancer and survivors: a systematic review

et al. 2014

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Objective: Over one third of patients with cancer experience elevated psychosocial distress. As screening for distress becomes more common, the number of patients referred for psychosocial care will increase. Psychosocial telephone interventions are recommended as a convenient and exportable alternative to inperson interventions addressing psychosocial distress. This study reviews the efficacy of randomized controlled trials (RCTs) of psychosocial telephone interventions for patients with cancer.Methods: We conducted a systematic review of peer-reviewed RCTs evaluating telephone interventions in adult patients with cancer across the survivorship continuum.Results: Through a database search, 480 articles were identified. After manual review, 13 were included, with 7 additional studies identified by back citation, totaling 20 studies. Participants were largely Caucasian, highly educated, with mean age ranging from 49 to 75 years. Most participants were patients with breast cancer (n = 13 studies). Sample sizes were generally small, with most patients recruited from large medical centers. Only one screened for psychosocial need. Interventions varied greatly in length and intensity. Eight studies reported significant effects post-intervention in the hypothesized direction on at least one psychosocial outcome measure. Of these eight studies, four included more than one follow-up assessment; of these, only one reported significant effects at last follow-up. No clear commonalities were found among studies reporting significant effects.Conclusions: Methodological concerns and lack of consistency in adherence to CONSORT reporting guidelines were identified. This body of research would benefit from well-designed, theory-based RCTs adequately powered to provide more definitive evidence for intervention efficacy. This will probably require multi-institutional collaborations, guided by intervention and research methodology best practices.

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Section: Resultsmentioning

confidence: 97%

Psychosocial telephone interventions for patients with cancer and survivors: a systematic review

et al. 2014

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“…The cancer site-specific QOL instruments were developed to measure the QOL of cervical cancer patients. This category consisted of 3 scales: the EORTC Quality of Life Questionnaire-Cervix-24items (QLQ-Cx24) [33], the Functional Assessment of Cancer Therapy-Cervix (FACT-Cx) [34,35], and the Quality of Life Instruments for Cancer Patients-Cervical Cancer (QLICP-CE) [36]. The survivor-specific category included the Cancer Survivors' Unmet Needs (CaSUN) scale [37], which was developed to assess QOL among long-term cancer survivors using a needs-based approach.…”

Section: Resultsmentioning

confidence: 99%

Quality of life measurement in women with cervical cancer: implications for Chinese cervical cancer survivors

Zeng

Ching

Loke

2010

Health Qual Life Outcomes

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Background: Women with cervical cancer now have relatively good 5-year survival rates. Better survival rates have driven the paradigm in cancer care from a medical illness model to a wellness model, which is concerned with the quality of women's lives as well as the length of survival. Thus, the assessment of quality of life among cervical cancer survivors is increasingly paramount for healthcare professionals. The purposes of this review were to describe existing validated quality of life instruments used in cervical cancer survivors, and to reveal the implications of quality of life measurement for Chinese cervical cancer survivors. Methods: A literature search of five electronic databases was conducted using the terms cervical/cervix cancer, quality of life, survivors, survivorship, measurement, and instruments. Articles published in either English or Chinese from January 2000 to June 2009 were searched. Only those adopting an established quality of life instrument for use in cervical cancer survivors were included. Results: A total of 11 validated multidimensional quality of life instruments were identified from 41 articles. These instruments could be classified into four categories: generic, cancer-specific, cancer site-specific and cancer survivor-specific instruments. With internal consistency varying from 0.68-0.99, the test-retest reliability ranged from 0.60-0.95 based on the test of the Pearson coefficient. One or more types of validity supported the construct validity. Although all these instruments met the minimum requirements of reliability and validity, the original versions of these instruments were mainly in English. Conclusion: Selection of an instrument should consider the purpose of investigation, take its psychometric properties into account, and consider the instrument's origin and comprehensiveness. As quality of life can be affected by culture, studies assessing the quality of life of cervical cancer survivors in China or other non-English speaking countries should choose or develop instruments relevant to their own cultural context. There is a need to develop a comprehensive quality of life instrument for Chinese cervical cancer survivors across the whole survivorship, including immediately after diagnosis and for short-(less than 5 years) and long-term (more than 5 years) survivorship.

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“…Latino oncology patients, particularly Latinas, are less likely than nonminority patients to access and receive culturally and linguistically appropriate formalized psychosocial services, which complicates the identification of their psychosocial needs (Ashing-Giwa, 2008; Galvan, Buki, & Garces, 2009; Napoles-Springer et al, 2009). Moreover, research has shown that culture and ethnic factors influence how an individual understands, explains, and responds to the facts and meaning surrounding life-threatening diseases such as cancer; how side effects will be understood and experienced; how emotions will be expressed; and which treatments will be sought (Kawaga-Singer, 1995).…”

Section: Latino Culture’s Influence On Psycho-oncological Needsmentioning

confidence: 99%

Santería as Informal Mental Health Support Among U.S. Latinos with Cancer

Rosario

Rosa

2014

Journal of Religion & Spirituality in Social Work: Social T

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This article explores and examines Santería’s function as a culturally congruent informal mental health support that assists U.S. Latinos to cope with the psychosocial sequelae of living with cancer. Research has demonstrated that Santería serves as a mediating institution for many Latinos. The tradition functions as both a religion and a health care system within various Latino subgroups and has functioned as an informal mental health service in occurrences of health versus illness.

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Enhancing physical well-being and overall quality of life among underserved Latina-American cervical cancer survivors: feasibility study

Abstract: An ethnically sensitive, behaviorally based telephone counseling approach with Latina Americans cervical cancer survivors can achieve short term improvements in physical well-being and overall QOL.

Cited by 32 publications

References 64 publications

Psychosocial telephone interventions for patients with cancer and survivors: a systematic review

Psychosocial telephone interventions for patients with cancer and survivors: a systematic review

Quality of life measurement in women with cervical cancer: implications for Chinese cervical cancer survivors

Santería as Informal Mental Health Support Among U.S. Latinos with Cancer

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