Engaging Community Leaders in the Development of a Cardiovascular Health Behavior Survey Using Focus Group–Based Cognitive Interviewing

Wallen, Gwenyth R.; Saygbe, Johnetta N; Brooks, Alyssa T.; McClurkin, Michael; Thomas, Samantha; Powell‐Wiley, Tiffany M.

doi:10.1177/1178632917701123

Cited by 9 publications

(12 citation statements)

References 21 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…To support the feminist research principles used throughout this mixed methods study and described in Keedle et al (2019) [17], it was imperative to involve potential survey participants in the co-design and pilot testing of the survey [34]. This was achieved using online cognitive focus groups [35].…”

Section: Pilot Testing Of the Surveymentioning

confidence: 99%

“…Cognitive focus groups have developed from cognitive interviewing which aims to understand the responses of survey questions by analysing the comprehension, recall, decisions and judgement and response processes of targeted participants [35][36][37][38]. Recruitment for the focus groups included social media pregnancy and parenting groups where women were asked to contact the researcher if interested in testing the survey and participating in focus groups.…”

Section: Pilot Testing Of the Surveymentioning

confidence: 99%

“…Mixed methods approach to survey development from the 'four factors' Higher scores on the MADM indicate higher levels of autonomy (very low patient autonomy 7-15, low patient autonomy 16-24, moderate patient autonomy 25-33, high patient autonomy[34][35][36][37][38][39][40][41][42]. Higher scores on the MORi indicate higher levels of respect (very low respect 14-31, low respect 32-49, moderate respect 50-66, high respect 67-84).…”

mentioning

confidence: 99%

See 2 more Smart Citations

Women’s experiences of planning a vaginal birth after caesarean in different models of maternity care in Australia

Keedle

Peters

Schmied

et al. 2020

BMC Pregnancy Childbirth

View full text Add to dashboard Cite

Background: Vaginal birth after caesarean (VBAC) is a safe mode of birth for most women but internationally VBAC rates remain low. In Australia women planning a VBAC may experience different models of care including continuity of care (CoC). There are a limited number of studies exploring the impact and influence of CoC on women's experiences of planning a VBAC. Continuity of care (CoC) with a midwife has been found to increase spontaneous vaginal birth and decrease some interventions. Women planning a VBAC prefer and benefit from CoC with a known care provider. This study aimed to explore the influence, and impact, of continuity of care on women's experiences when planning a VBAC in Australia. Methods: The Australian VBAC survey was designed and distributed via social media. Outcomes and experiences of women who had planned a VBAC in the past 5 years were compared by model of care. Standard fragmented maternity care was compared to continuity of care with a midwife or doctor. Results: In total, 490 women completed the survey and respondents came from every State and Territory in Australia. Women who had CoC with a midwife were more likely to feel in control of their decision making and feel their health care provider positively supported their decision to have a VBAC. Women who had CoC with a midwife were more likely to have been active in labour, experience water immersion and have an upright birthing position. Women who received fragmented care experienced lower autonomy and lower respect compared to CoC. Conclusion: This study recruited a non-probability based, self-selected, sample of women using social media. Women found having a VBAC less traumatic than their previous caesarean and women planning a VBAC benefited from CoC models, particularly midwifery continuity of care. Women seeking VBAC are often excluded from these models as they are considered to have risk factors. There needs to be a focus on increasing shared belief and confidence in VBAC across professions and an expansion of midwifery led continuity of care models for women seeking a VBAC.

show abstract

Section: Pilot Testing Of the Surveymentioning

confidence: 99%

Section: Pilot Testing Of the Surveymentioning

confidence: 99%

mentioning

confidence: 99%

See 1 more Smart Citation

Women’s experiences of planning a vaginal birth after caesarean in different models of maternity care in Australia

Keedle

Peters

Schmied

et al. 2020

BMC Pregnancy Childbirth

View full text Add to dashboard Cite

show abstract

“…The focus group was audiorecorded, and the recording was transcribed verbatim by an independent clinical research organization (Social Solutions International, Inc, Silver Spring, MD, USA). The discussion of reliability checks of the transcribing process, development of a codebook of themes, the coding process, and evaluation of the trustworthiness of qualitative analyses are available in previously published work [ 30 , 37 ].…”

Section: Methodsmentioning

confidence: 99%

Digital Food Records in Community-Based Interventions: Mixed-Methods Pilot Study

Fowler

Yingling

Brooks

et al. 2018

JMIR Mhealth Uhealth

Self Cite

View full text Add to dashboard Cite

BackgroundA pressing need exists to understand and optimize the use of dietary assessment tools that can be used in community-based participatory research (CBPR) interventions. A digital food record, which uses a mobile device to capture the dietary intake through text and photography inputs, is a particularly promising mobile assessment method. However, little is understood about the acceptability and feasibility of digital food records in CBPR and how to best tailor dietary assessment tools to the needs of a community.ObjectiveThe objective of our study was to evaluate the acceptability and feasibility of digital food records among church-based populations in resource-limited wards of Washington, DC, USA, using a mixed-methods approach.MethodsThis community-based pilot study was conducted as part of the Washington, DC Cardiovascular Health and Needs Assessment. Participants (n=17) received a mobile device (iPod Touch) to photodocument their dietary intake for a 3-day digital food record using a mobile app, FitNinja (Vibrent Health). The acceptability of the digital food record was explored through the thematic analysis of verbatim transcripts from a moderated focus group (n=8). In addition, the feasibility was evaluated by the percentage of participants complying with instructions (ie, capturing both before and after meal photos for at least 2 meals/day for 3 days).ResultsQualitative themes identified were related to (1) the feasibility and acceptability of the mobile device and app, including issues in recording the dietary information and difficulty with photodocumentation; (2) suggestions for additional support and training experiences; and (3) comparisons with other mobile apps. Overall, the participants accepted the digital food record by demonstrating satisfaction with the tool and intent to continue the use (eg, participants recorded an average of 5.2, SD 7, consecutive days). Furthermore, of the 17 participants, 15 photodocumented at least 1 meal during the study period and 3 fully complied with the digital food record instructions.ConclusionsThis study demonstrated digital food records as an acceptable tool in CBPR and identified contributors and barriers to the feasibility of digital food records for future research. Engaging community members in the implementation of novel assessment methods allows for the tailoring of technology to the needs of the community and optimizing community-based interventions.Trial RegistrationClinicalTrials.gov NCT01927783; https://www.clinicaltrials.gov/ct2/show/NCT01927783 (Archived by WebCite at http://www.webcitation.org/70WzaFWb6)

show abstract

“…Eight individuals from the target population were recruited to take the survey and test the device to ensure that the study instruments (survey and PA tracker) conveyed our intended meanings. The feedback received from the focus group participants provided feedback to the study group that identified possible barriers in completing the survey, such as unclear language in the survey questions [ 11 ].…”

Section: Methodsmentioning

confidence: 99%

The Communication, Awareness, Relationships and Empowerment (C.A.R.E.) Model: An Effective Tool for Engaging Urban Communities in Community-Based Participatory Research

Ceasar

Peters-Lawrence

Mitchell

et al. 2017

IJERPH

View full text Add to dashboard Cite

Little is known about recruitment methods for racial/ethnic minority populations from resource-limited areas for community-based health and needs assessments, particularly assessments that incorporate mobile health (mHealth) technology for characterizing physical activity and dietary intake. We examined whether the Communication, Awareness, Relationships and Empowerment (C.A.R.E.) model could reduce challenges recruiting and retaining participants from faith-based organizations in predominantly African American Washington, D.C. communities for a community-based assessment. Employing C.A.R.E. model elements, our diverse research team developed partnerships with churches, health organizations, academic institutions and governmental agencies. Through these partnerships, we cultivated a visible presence at community events, provided cardiovascular health education and remained accessible throughout the research process. Additionally, these relationships led to the creation of a community advisory board (CAB), which influenced the study’s design, implementation, and dissemination. Over thirteen months, 159 individuals were recruited for the study, 99 completed the initial assessment, and 81 used mHealth technology to self-monitor physical activity over 30 days. The culturally and historically sensitive C.A.R.E. model strategically engaged CAB members and study participants. It was essential for success in recruitment and retention of an at-risk, African American population and may be an effective model for researchers hoping to engage racial/ethnic minority populations living in urban communities.

show abstract

Engaging Community Leaders in the Development of a Cardiovascular Health Behavior Survey Using Focus Group–Based Cognitive Interviewing

Cited by 9 publications

References 21 publications

Women’s experiences of planning a vaginal birth after caesarean in different models of maternity care in Australia

Women’s experiences of planning a vaginal birth after caesarean in different models of maternity care in Australia

Digital Food Records in Community-Based Interventions: Mixed-Methods Pilot Study

The Communication, Awareness, Relationships and Empowerment (C.A.R.E.) Model: An Effective Tool for Engaging Urban Communities in Community-Based Participatory Research

Contact Info

Product

Resources

About