Engaging African American family Caregivers in Developing a Culturally-responsive Interview Guide: A Multiphase Process and Approach

Palliative Care Clinician Perspectives on Person-Centered End-of-Life Communication for Racially and Culturally Minoritized Persons with Cancer

“…Community-based participatory research approaches have proven useful in ensuring patient, family, and community priorities and values into palliative care interventions for people of color [ 23 , 51 , 52 ]. These approaches include not only investigations that are centered on community needs and values but also the design of community-engaged recruitment strategies [ 53 ] and culturally-responsive interview guides [ 22 ]. Further testing of existing models is needed to evaluate efficacy of racially and culturally sensitive conversation guides that build connection, promote patient control, and consider religious faith and family values [ 29 ]; interpersonal approaches that explicitly invite and address patients’ experiences of racism while enhancing the quality of clinician-patient relationship [ 32 ]; and faith and social community engagement to improve advance care planning and EOL care communication in ways that are contextually sensitive and relevant [ 30 ].…”

“…Such disparities lead to poorer clinical outcomes for patients (e.g., pain, goal discordant care) and caregivers (e.g., bereavement). Many palliative care researchers and professional organizations have committed to dismantling structural barriers that prevent equitable access, calling for culturally-responsive and community-based social justice methods and adoption of antiracist principles in all domains of practice [ 22 , 23 , 24 , 25 ].…”