Engaged patients, engaged partnerships: singles and partners dealing with an acute cardiac event

Bertoni, Anna Marta Maria; Donato, Silvia; Graffigna, Guendalina; Barello, Serena; Parise, Miriam

doi:10.1080/13548506.2014.969746

Cited by 40 publications

(39 citation statements)

References 50 publications

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“…Findings of the APIM analyses suggest that the more one (patient or partner) perceives his or her spouse as being supportive, the lower his/her levels of CISC behavior. This finding is consistent with studies showing that one's perception of one's partner's responses as being negative or unsupportive is associated with one's own greater autonomous management of treatment, 33 holding back, and cognitive and behavioral avoidance from thoughts and feelings about cancer. 5,20,21 It would therefore seem that a supportive response from a partner reduces one's need to conceal cancer-related issues.…”

Section: The Actor-partner Interdependence Modelsupporting

confidence: 90%

Correlates of concealment behavior among couples coping with cancer: Actor partner model

et al. 2017

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Findings stress the important roles played by spousal support and perspective-taking in communication patterns between couples affected by cancer. Although the perception of support from one's spouse seems to reduce the need to conceal cancer-related issues, interventions that focus on couples' communication should address the differential implications of perspective-taking, as they can lead to either more or less self-concealment among couples, depending on role and gender.

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Section: The Actor-partner Interdependence Modelsupporting

confidence: 90%

Correlates of concealment behavior among couples coping with cancer: Actor partner model

et al. 2017

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“…For YAC patients, a lack of social support was associated with health, emotional, mental, and depressive issues and lower QoL (Joubert et al, 2013 ; Bucholz et al, 2014 ; Leung Yinko et al, 2014 ). These results are consistent with the literature in older patients for whom the presence of friends, family, and partners seems crucial after the appearance of a cardiac disease (Kristofferzon et al, 2008 ; Bertoni et al, 2015 ; Ooi et al, 2016 ). According to the findings, young patients (≤40 years old) may be more at risk of isolation after the implant of an ICD (Dubin et al, 1996 ; Sears et al, 2009 ; Larimer et al, 2016 ).…”

Section: Discussionsupporting

confidence: 92%

What Do We Know About Young Adult Cardiac Patients' Experience? A Systematic Review

et al. 2020

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Background: Studies interested in patients coping with a cardiac illness usually focus on children, teenagers, and adults above the age of 55. Apart from the field of congenital heart diseases, there is a general lack of literature regarding young adult cardiac patients (18-55 years old) who seem to cope with psychosocial issues. Therefore, the objective of this paper was to gather all the research carried out concerning the psychological experiences of young adult cardiac patients. Methods and Results: A comprehensive, systematic review was conducted on quantitative, qualitative, and mixed-method studies in PsycINFO, PubMed, ScienceDirect, and Cochrane Library databases. Out of the 10,747 articles found, 32 were included. While we aimed to include many cardiac diseases, coronary patients dominated the data. Five main themes emerged: emotional states (depression, anxiety, emotional distress, and stress), quality of life (health-related quality of life, physical functioning, and sexuality), adjusting to the medical environment (coping with the disease, health behavior change, financial barriers, and interactions with medical professionals), social life (social support and work), and identity (parenthood, new challenges, and new meanings). The results highlighted that their levels of depression, anxiety, stress, and quality of life were sometimes worse than in the general population and than in older and younger patients coping with a cardiac illness. Social isolation, identity changes, work, and parenthood were the specific challenges that this population had to face. Furthermore, young adult cardiac patients showed worse health behavior profiles than the general population and felt that they lacked information from professionals, especially regarding sexuality. Compared to men, women had worse psychosocial outcomes, especially regarding depression, stress, emotional distress, and quality of life. Conclusions: Young adult cardiac patients are to be considered with their own identity and challenges. They may be in need of specific interventions, some dedicated to women, and better communication is necessary with their families and professional caregivers so as to improve the patient's mental health, quality of life, coping skills, and adherence.

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“…Moreover, optimizing the partners functioning may not only benefit the partner, but the patient as well. Suboptimal adaptation of the partner to the patient’s illness may negatively influence the partners’ engagement in the patient’s care [48]. Furthermore, low partner support can lead to less treatment adherence or fewer favorable lifestyle changes made by the patient [49].…”

Section: Discussionmentioning

confidence: 99%

The association between patient’s and partner’s fatigue in couples coping with colorectal cancer: a longitudinal study

Traa

Vries

Roukema

et al. 2016

Support Care Cancer

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Background Couples coping with colorectal cancer were monitored during the first year after diagnosis to evaluate the following: (i) levels of patients' and partners' fatiguehereby comparing their scores to each other and a normative population, (ii) association between patients' and partners' fatigue, (iii) the course of partners' fatigue, and (iv) biopsychosocial predictors of the partners' fatigue, including the patients' level of fatigue. Method Couples (n = 171) preoperatively completed questions regarding age and sex as well as questionnaires assessing neuroticism and trait anxiety. Questionnaires assessing fatigue, anxiety, and depressive symptoms were measured preoperative (time-0) and 3 (time-1), 6 (time-2), and 12 months (time-3) postoperative. Patients' clinical characteristics were retrieved from the Eindhoven Cancer Registry. Descriptive statistics, correlations, and linear mixed effect models were used. Results Compared with a normative population, partners' fatigue was similar (p > .05), while patients' fatigue was higher at Time-2 and Time-3 (p values <.001). At each time point, correlations between patients' and partners' fatigue were small (r < .30). Partner's course of fatigue was as follows: 18.2 at time-0, 19.0 at time-1, 19.4 at time-2, and 19.2 at time-3 (p = 0.64). Scoring higher on neuroticism (β = .12) and trait anxiety (β = .23), and more depressive symptoms (β = .30) significantly contributed to higher partners' fatigue. Conclusion Trait anxiety, neuroticism, and depressive symptoms predicted higher levels of partners' fatigue, while demographic factors, patients' fatigue, and clinical factors did not. Health professionals are advised to be alert for partners with a vulnerable personality and depressive symptoms. If needed, they can for instance refer to a psychologist for treatment.

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Engaged patients, engaged partnerships: singles and partners dealing with an acute cardiac event

Cited by 40 publications

References 50 publications

Correlates of concealment behavior among couples coping with cancer: Actor partner model

Correlates of concealment behavior among couples coping with cancer: Actor partner model

What Do We Know About Young Adult Cardiac Patients' Experience? A Systematic Review

The association between patient’s and partner’s fatigue in couples coping with colorectal cancer: a longitudinal study

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