Enduring stigma and precarity: A review of qualitative research examining the experiences of women living with HIV in high income countries over two decades

Herron, Lisa-Maree; Mutch, Allyson; Lui, Chi‐Wai; Kruizinga, Lara; Howard, Chris; Fitzgerald, Lisa

doi:10.1080/07399332.2021.1959589

Cited by 4 publications

(14 citation statements)

References 113 publications

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“…Our results describe positive meaningful experiences of HIV among both participants groups. A review of the qualitative literature by Herron et al 16 illustrated similar findings among women with HIV. Many men and women with HIV in our study noted being grateful for being physically fit, and they attributed supporting and receiving support from a community to be a positive influence of HIV on their QoL.…”

Section: Discussionmentioning

confidence: 88%

“…In addition, the negative influence of HIV described by participants was mainly related to social factors and interpersonal relationships, as also noted by Andersson et al who showed that these factors have changed in the last decades. In early years of the HIV pandemic when medication was not available, HIV was linked to activism and was a matter of constant public discussion 5 , 16 , 35 . Activism was necessary to make sure that HIV became a priority and to accelerate the development of effective HIV treatment.…”

Section: Discussionmentioning

confidence: 99%

“…Being diagnosed with HIV or being vulnerable to HIV in the pre-ART era may have caused a significant burden in the past 5,16,[35][36][37][38][39] . The predominant and negative influence of HIV shared by participants in our study was described to have improved due to ART, PrEP, and U = U, but it did not disappear 5,33,[40][41][42] .…”

Section: Discussionmentioning

confidence: 99%

“…Several studies underlined that shifting the focus beyond the clinical management of HIV will ultimately improve the QoL 4,6,7,13,14 . Some studies addressed the multifaceted influence beyond exploring the experienced negative predominant influence of HIV [15][16][17][18][19][20][21] . For example, Herron et al 16 reported in a review of qualitative literature that women with HIV experienced stigma, socio-structural barriers to healthcare and support, and negative encounters with health professionals due to HIV.…”

mentioning

confidence: 99%

“…Some studies addressed the multifaceted influence beyond exploring the experienced negative predominant influence of HIV [15][16][17][18][19][20][21] . For example, Herron et al 16 reported in a review of qualitative literature that women with HIV experienced stigma, socio-structural barriers to healthcare and support, and negative encounters with health professionals due to HIV. However, they also found that women with HIV experienced positive personal growth due to HIV.…”

mentioning

confidence: 99%

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The experienced positive and negative influence of HIV on quality of life of people with HIV and vulnerable to HIV in the Netherlands

Romijnders

Groot

Vervoort

et al. 2022

Sci Rep

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This qualitative study aimed to explore the experienced influence of HIV on the quality of life (QoL) of people with HIV (PHIV) and key populations without but are vulnerable to HIV in the Netherlands. We conducted and thematically analyzed interviews with 29 PHIV and 13 participants from key populations without HIV (i.e., men who have sex with men). PHIV and key populations shared positive meaningful experiences regarding HIV, i.e., feeling grateful for ART, life, and the availability of PrEP, being loved and supported in the light of HIV, and providing support to the community. Negative predominant experiences regarding HIV were described by both PHIV and key populations as the negative effects of ART, challenges with regards to disclosing HIV, social stigmatization, and self-stigma. It remains important to support HIV community organizations in their efforts to reduce social stigmatization and to continue improving biomedical interventions for HIV.

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Section: Discussionmentioning

confidence: 88%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

mentioning

confidence: 99%

mentioning

confidence: 99%

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The experienced positive and negative influence of HIV on quality of life of people with HIV and vulnerable to HIV in the Netherlands

Romijnders

Groot

Vervoort

et al. 2022

Sci Rep

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‘The spiral just keeps on going’: Cascading health and social issues for women living and aging with HIV

Herron

Mutch

Mugamu³

et al. 2022

Womens Health (Lond Engl)

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Background: There has been limited qualitative inquiry aimed at understanding the gendered and unique experiences of women living with HIV in high-income countries. In Australia, the relatively small number of women living with HIV means they have been largely overlooked in social, clinical, and policy representations of HIV over time. Objectives: To explore the experiences of women living long-term and aging with HIV, to understand the complex intersections between their health and social trajectories. Methods: Data were collected as part of Living Positive in Queensland, a longitudinal qualitative study of the experiences of living long-term and aging of people living with HIV in Queensland, Australia. This study analysed data from three annual, semi-structured interviews with the 11 female participants. Results: Women negotiated gendered roles and identities as they grappled with ongoing and intertwined health and psychosocial challenges over their life course. Development of co-morbidities, experiences of stigma, gendered social roles, financial precarity, and limited social support amplified the challenges of living with HIV and cumulatively impacted women’s health and wellbeing as they aged with HIV. Conclusion: The health and wellbeing of women living with HIV are adversely impacted by intersecting complex health issues, HIV-related stigma, gendered identities, social disadvantage, and aging. Greater attention to the unique needs of women living with HIV is necessary to reduce the prevalence of psychological distress, financial stress, and vulnerability to social isolation which, in turn, lead to poorer health.

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The experienced positive and negative influence of HIV on quality of life of people with HIV and vulnerable to HIV

Romijnders

Groot

Vervoort

et al. 2022

Preprint

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This qualitative study aimed to explore the experienced influence of HIV on the quality of life (QoL) of people living with HIV (PLHIV) and key populations who live without but are vulnerable to HIV in the Netherlands. We conducted and thematically analyzed interviews with 29 PLHIV and 13 participants from key populations without HIV (i.e., men who have sex with men). PLHIV and key populations shared positive meaningful experiences regarding HIV, i.e., feeling grateful for ART, life, and the availability of PrEP, being loved and supported in the light of HIV, and providing support to the community. Negative predominant experiences regarding HIV were described by both PLHIV and key populations as the negative effects of ART, challenges with regards to disclosing HIV, social stigmatization, and self-stigma. It remains important to support HIV community organizations in their efforts to reduce social stigmatization and to continue improving biomedical interventions for HIV.

show abstract

Enduring stigma and precarity: A review of qualitative research examining the experiences of women living with HIV in high income countries over two decades

Cited by 4 publications

References 113 publications

The experienced positive and negative influence of HIV on quality of life of people with HIV and vulnerable to HIV in the Netherlands

The experienced positive and negative influence of HIV on quality of life of people with HIV and vulnerable to HIV in the Netherlands

‘The spiral just keeps on going’: Cascading health and social issues for women living and aging with HIV

The experienced positive and negative influence of HIV on quality of life of people with HIV and vulnerable to HIV

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