2011
DOI: 10.1590/s1807-59322011000900011
|View full text |Cite
|
Sign up to set email alerts
|

End of life in the neonatal intensive care unit

Abstract: PURPOSE:Death at the beginning of life is tragic but not uncommon in neonatal intensive care units. In Portugal, few studies have examined the circumstances surrounding the final moments of neonates. We evaluated the care given to neonates and their families in terminal situations and the changes that had occurred one decade later.DESIGN AND METHODS:We analyzed 256 charts in a retrospective chart review of neonatal deaths between two periods (1992-1995 and 2002-2005) in a level III neonatal intensive care unit… Show more

Help me understand this report

Search citation statements

Order By: Relevance

Paper Sections

Select...
1
1
1
1

Citation Types

1
19
1
5

Year Published

2012
2012
2024
2024

Publication Types

Select...
9

Relationship

0
9

Authors

Journals

citations
Cited by 30 publications
(28 citation statements)
references
References 23 publications
1
19
1
5
Order By: Relevance
“…One possible explanation for the increase in redirection of care to comfort care without a concomitant increase in family meetings is the conversations were in fact taking place but the documentation was not in place. Although others have shown a national trend toward withholding or withdrawing curative support over a decade in Portugal, 33 our study indicates an increase in redirecting care to comfort measures and an increase in palliative medication usage at the end-of-life associated with the implementation of a perinatal palliative care intervention.…”
Section: Discussioncontrasting
confidence: 68%
“…One possible explanation for the increase in redirection of care to comfort care without a concomitant increase in family meetings is the conversations were in fact taking place but the documentation was not in place. Although others have shown a national trend toward withholding or withdrawing curative support over a decade in Portugal, 33 our study indicates an increase in redirecting care to comfort measures and an increase in palliative medication usage at the end-of-life associated with the implementation of a perinatal palliative care intervention.…”
Section: Discussioncontrasting
confidence: 68%
“…Although infant mortality rates have declined since the 1990s (MacDorman & Gregory, 2013), infant deaths continue to represent over 55% of all childhood deaths (Osterman et al, 2015). Infants born with life threatening health conditions often spend their short lives in the neonatal intensive care unit (NICU) with limited access to both palliative and hospice care (Chavoski, Miller, & Siden, 2013; Moura, Costa, Rodrigues, Almedia, Maia, & Guimaraes, 2011). Recent examination of infant utilization rates of hospice care is often the lowest when compared to other pediatric age groups (Leuthner, Boldt, & Kirby, 2004; Lindley & Lyon, 2013; Lindley & Shaw, 2014).…”
Section: Background and Significancementioning
confidence: 99%
“…Some parents may opt not to participate with their infant's care. Th at's their decision, and it shouldn't be judged (De Lisle-Porter & Podruchny, 2009). Some individuals may insist on having extra visitors, as it's expected that the dying aren't left alone, or due to cultural expectations of familial support for the parents.…”
Section: Assessment and Respectmentioning
confidence: 99%
“…Palliative care provides total, active treatment therapies to terminally ill infants and their families. Phrases such as "there's nothing more we can do, " or "withdrawal of care" may be interpreted as no further support services are available, or provider abandonment (De Lisle-Porter & Podruchny, 2009 providers should be aware that communication styles vary not only with culture but individually, and while Americans tend to value patient autonomy and individual decision-making, many other cultures are family-or society-based and make decisions as groups (Kagawa-Singer & Blackhall, 2001).…”
Section: Language Mattersmentioning
confidence: 99%