“End-of-life care is more than wound care”: Health-care providers' perceptions of psychological and interpersonal needs of patients with terminal cancer

Pinto, Nishal; Bhola, Poornima; Chandra, Prabha S.

doi:10.4103/ijpc.ijpc_26_19

Cited by 7 publications

(3 citation statements)

References 35 publications

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“…Para Pinto el at. (2019) 20 , as principais preocupações psicológicas desses pacientes são sobre afirmações de emoções negativas, angústias com à saúde mental e enfrentamento da morte. Os profissionais que dão apoio espiritual a esses pacientes também fazem parte da equipe multidisciplinar.…”

Section: Resultsunclassified

A Importância Do Farmacêutico Nos Cuidados Paliativos Em Pacientes Oncológicos Terminais

Ribeiro,

Da Silva,

Serrão

2023

Rev. Foco

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Introdução: O cuidado paliativo surgiu como uma filosofia humanitária de cuidar de pacientes em estado terminal, aliviando a dor e o sofrimento. O presente trabalho buscou ressaltar a importância do farmacêutico nos cuidados paliativos oncológicos. O trabalho foi realizado através de uma revisão bibliográfica narrativa por meio de artigos científicos. Assim as informações apresentadas nessa revisão têm como objetivo ressaltar a importância desses profissionais e suas principais atividades. Atuação do farmacêutico pode ser classificada em: separar os medicamentos, monitorar e prevenir efeitos adversos, uso racional, orientar a equipe multidisciplinar. Quanto a relação do farmacêutico com o paciente oncológico e seus familiares é regida pela confiança garantindo o cumprimento das normas de tratamento em conjunto com outras diferentes terapias profissionais com a finalidade de controlar a dor e ajudar o paciente a lidar com sua situação clínica de maneira mais favorável. É possível afirmar, que o farmacêutico executa papeis fundamentais e importantes na equipe multidisciplinar.

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Section: Resultsunclassified

A Importância Do Farmacêutico Nos Cuidados Paliativos Em Pacientes Oncológicos Terminais

Ribeiro,

Da Silva,

Serrão

2023

Rev. Foco

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“…On the contrary, similar studies conducted in Sri Lanka identified major knowledge and attitude deficiencies regarding end-of-life care. It highlighted the need for compulsory undergraduate and postgraduate medical curricula training, with supervised simulations and real-life encounters [ 6 , 17 ].…”

Section: Discussionmentioning

confidence: 99%

Family Medicine Residents' Knowledge and Attitudes About End-of-Life Care in Taif City, Saudi Arabia

Alghamdi,

Alzahrani,

Alswat

et al. 2023

Cureus

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Background End-of-life care is essential for individuals with advanced illness and their families, providing comfort, symptom control, and dignity in the final year of life. Additionally, physician competence requires the ability to communicate, make decisions, and create relationships in end-of-life care. This study assesses family physicians' knowledge and attitude regarding end-of-life care in Taif, Saudi Arabia. Methods This descriptive cross-sectional study conducted between October and November 2021 assessed the knowledge and attitudes of 163 family physicians in Taif City, Saudi Arabia, regarding end-of-life care. Using a convenient sampling technique, an adapted and validated questionnaire was administered electronically, collecting sociodemographic information and assessing participants' knowledge and attitudes. Data were analyzed using descriptive statistics in Statistical Product and Service Solutions (SPSS, version 28) (IBM SPSS Statistics for Windows, Armonk, NY). Results Findings included that 41.1% of residents believed the patient and family should be informed about diagnoses and prognoses in advanced diseases. At the same time, attitudes varied, with 45.4% agreeing that discussing such information could lead to patient depression and 42.9% believing it held no privilege for patients. Additionally, 57.7% recognized that grief reactions would occur, but patients would eventually adjust, and 44.8% agreed that discussing diagnoses would decrease patient anxiety. However, limited awareness of advance directives was evident, with 12.3% reporting being well aware and 45.4% having never heard of them. There was uncertainty and hesitancy regarding Do Not Attempt Cardiopulmonary Resuscitation (DNACPR) decisions, with 39.9% being well aware and 46% having heard of it without a strong understanding. Conclusion The findings revealed a mixed landscape, with physicians demonstrating awareness of the importance of transparent communication but needing more knowledge in areas such as advance directives and complex decision-making. The study highlighted the need for targeted education to address these gaps and promote a more informed and consistent approach to end-of-life care.

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“…More recently, in the human sciences, the distinction made between pain and suffering is less radical. For example, the concept of “global pain” defined by Clark (1999), Krawczyk et al (2018), and Pinto et al (2019) removes the boundaries between pain and suffering. For these authors, pain is more than a physical matter of sensation since it includes the interrelations between social, physical, psychological, and spiritual dimensions.…”

Section: Introductionmentioning

confidence: 99%

Social Representation of Pain and Suffering in Cancer Patients: A Mixed Methods Study

et al. 2023

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Most patients report physical pain and psychosocial problems (suffering, depression, anxiety) during and after cancer treatment. This mixed methods study, based on the Theory of Social Representations, examines if pain and suffering are taboo subjects for oncologists and patients, and if they share the same representations. The data collected included 33 in-depth interviews with patients in chemotherapy/radiotherapy treatment ( n = 20) and their oncologists ( n = 13). We measured the number of spontaneous mentions of the words “pain” and “suffering” and their synonyms. We then examined semantic networks related to these two terms. The results show that for patients, suffering refers to bodily degradation and vulnerability while pain confirms the presence of the disease. In the interviews conducted with oncologists, suffering is absent. Pain is perceived as a sign of disease progression and an indicator of tolerance to treatment. These results may help in increasing the mutual understanding between oncologists and patients and facilitating the detection of depression and anxiety.

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“End-of-life care is more than wound care”: Health-care providers' perceptions of psychological and interpersonal needs of patients with terminal cancer

Cited by 7 publications

References 35 publications

A Importância Do Farmacêutico Nos Cuidados Paliativos Em Pacientes Oncológicos Terminais

A Importância Do Farmacêutico Nos Cuidados Paliativos Em Pacientes Oncológicos Terminais

Family Medicine Residents' Knowledge and Attitudes About End-of-Life Care in Taif City, Saudi Arabia

Social Representation of Pain and Suffering in Cancer Patients: A Mixed Methods Study

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