End-of-life care in the Western world: where are we now and how did we get here?

Guilbeau, Catherine

doi:10.1136/bmjspcare-2017-001424

Cited by 4 publications

(2 citation statements)

References 17 publications

(6 reference statements)

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“…As well as changing social patterns, contemporary community models of care and palliative care models of care in many countries are often disparate and fragmented (Brereton et al, ), struggling to cope with demands, and while not all of those at the end of life require intervention from palliative care services, most if not all, will require support at home. With healthcare systems now increasingly overwhelmed, there appears to be a move back to its roots in the community (Gott et al, ), albeit a changed community, and one that may no longer necessarily adequately support its members at the end of life (Guilbeau, ).…”

Section: Introductionmentioning

confidence: 99%

What role do Death Doulas play in end‐of‐life care? A systematic review

Rawlings

Tieman

Miller-Lewis

et al. 2018

Health Soc Care Community

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Current health and social care systems do not always meet the needs of the dying in our communities. As a result, patients and families are choosing to place their trust in those who can advocate for them or fill the gaps in care. Birth Doulas have been working with women during pregnancy and after birth for many years, and we are now seeing a new role, that of a Death Doula emerging in the end‐of‐life care space. How Death Doulas work within health and social care systems is not understood and we conducted a systematic review to explore the published literature to explore the role and potential implications for models of care delivery. Following the PRISMA recommendations, we searched the literature in January 2018 via bibliographic databases and the grey literature without search date parameters to capture all published literature. We looked for articles that describe the role/work of a death doula or a death midwife in the context of end‐of‐life care, or death and dying. Our search retrieved 162 unique records of which five papers were included. We analysed the papers in relation to relationship to health service, funding source, number and demand for services, training, licensing and ongoing support, and tasks undertaken. Death Doulas are working with people at the end of life in varied roles that are still little understood, and can be described as similar to that of “an eldest daughter” or to a role that has similarities to specialist palliative care nurses. Death doulas may represent a new direction for personalised care directly controlled by the dying person, an adjunct to existing services, or an unregulated form of care provision without governing oversight.

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Section: Introductionmentioning

confidence: 99%

What role do Death Doulas play in end‐of‐life care? A systematic review

Rawlings

Tieman

Miller-Lewis

et al. 2018

Health Soc Care Community

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“…Despite evidence of a decrease in the number of people dying in hospital (Cross & Warraich, 2019; PHE, 2019), forecasters predict that ageing of the population and the provision of community‐based health and social care are likely to influence future nationwide trends (Finucane et al, 2019; Gomes & Higginson, 2008). In a historical review of EoLC in the Western world, Guilbeau (2018) also questions the ideology of a de‐institutionalised death in light of contemporary community characteristics and values. Consideration must therefore be given to the availability and quality of end‐of‐life service provision in a variety of settings, including institutional hospital care.…”

Section: Introductionmentioning

confidence: 99%

Family experiences of in‐hospital end‐of‐life care for adults: A systematic review of qualitative evidence

Walker

Efstathiou

Jones

et al. 2022

Journal of Clinical Nursing

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