2020
DOI: 10.1136/bmjspcare-2019-002006
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End-of-life care in general practice: clinic-based data collection

Abstract: BackgroundThere are no processes that routinely assess end-of-life care in Australian general practice. This study aimed to develop a data collection process which could collect observational data on end-of-life care from Australian general practitioners (GPs) via a questionnaire and clinical data from general practice software.MethodsThe data collection process was developed based on a modified Delphi study, then pilot tested with GPs through online surveys across three Australian states and data extraction f… Show more

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Cited by 13 publications
(21 citation statements)
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“…The information collected in our process included physical, psychosocial and spiritual aspects of care; communication with patients and families; settings for care and death; continuity and coordination of care and the support for families. A detailed description of the development is published elsewhere (Ding, Cook, Chua, et al, 2020).…”
Section: Measurements and Process Of Data Collectionmentioning
confidence: 99%
“…The information collected in our process included physical, psychosocial and spiritual aspects of care; communication with patients and families; settings for care and death; continuity and coordination of care and the support for families. A detailed description of the development is published elsewhere (Ding, Cook, Chua, et al, 2020).…”
Section: Measurements and Process Of Data Collectionmentioning
confidence: 99%
“…A good level of satisfaction has been reported, contrasting with accounts of the suffering experienced in accompanying and looking after a dying loved one ( Cía-Ramos et al, 2012 ). According to other studies ( Reigada, Ribeiro & Novellas, 2015 ; Finucane et al, 2020 ; Ding et al, 2020 ), experience of care can be influenced by practical issues (admittance, technical assistance, social resources/health) and factors related to relationships (bonds, loss, privacy, support to caregivers, sharing), inner experience (feelings, confrontation strategies, affection, suffering, death, psychological support), and health (symptoms, information on the disease, vulnerability of caregivers).…”
Section: Introductionmentioning
confidence: 99%
“…The findings are drawn from the perceptions of a breadth of peernominated experienced, TLs, operating practices of varying sizes and scopes, across each mainland state. The methodology used in this study is evidence-based (18)(19)(20)24) and the findings provide the first examination of the perceptions of leading primary care practitioners on the work they do.…”
Section: Discussionmentioning
confidence: 99%
“…A semi-structured interview protocol was developed by the research team and informed by protocols previously used by others (19,20) . The questions examined aspects of current and desired data collection and usage.…”
Section: Data Collectionmentioning
confidence: 99%